Bay Village mother is on mission to find cure for Dravet Syndrome
While some give up, others fight back.
Paula Lyles of Bay Village is one who won’t take things lying down. She is on a mission to help find a cure for Dravet Syndrome, a rare neurological condition that has affected her 15-year-old Jordan, since she was 6 months old.
In July, she sponsored her second fundraiser in three years to benefit the International Dravet Epilepsy Action League, a nonprofit organization that describes itself as a “powerful global partnership of parents and medical experts united in the goal of improving treatments for children with Dravet syndrome and related conditions, while empowering families to cope with the daily challenges of this disorder.”
Read more here: Bay Village mother is on mission to find cure for Dravet Syndrome | cleveland.com.
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About The Author
Julia Roberts
Julia Roberts is founder of Support for Special Needs and has been a regular contributor since its inception in May 2010. A mom to two kids with special needs, she didn't want other parents to feel what is the often isolating world of raising a child (or two!) with disabilities. Her kids had kidney transplants at the age of eight and will need liver transplants in the future as a result of ARPKD/CHF. They both have vision disorders and learning disabilities.