Possibilities
The other day, during our now-regular Friday lunch visit with Schuyler at her school, we spoke to one of the school administrators. She had something she wanted to bounce off of us.
“Do you think Schuyler would be interested in being a cheerleader next year?”
Well, now. That’s an interesting idea.
Briefly stated, Schuyler possesses a brain that doesn’t work like most, not even the brains of other people with Bilateral Perisylvian Polymicrogyria, her particular monster. Schuyler’s manifestation of PMG, unique in all the world according to the leading researcher in her field, presents itself primarily as a developmental delay and a pretty serious speech impairment. Schuyler can’t speak, not like most kids and not with much clarity, and her understanding of the world around her is extremely naive and without much in the way of nuance.
In some ways, she is like any twelve year-old girl, and in others, she is even wise beyond her years. But while she is making progress academically and is fighting the good fight as far as keeping up with her mainstream classmates is concerned, in some very significant ways Schuyler moves through the world in confusion. Her speech is weird and hard to follow sometimes, at least until you know her well, and the thoughts she is trying so hard to express aren’t always what you might expect. If every kid is a special, unique snowflake, Schuyler is a very odd snowflake indeed. A purple one, with blinking LED lights, perhaps.
To say that Schuyler joining the cheerleading squad was not an option that had naturally occurred to any of us might be an understatement.
As we got more information, it became less of a daunting thought. In my youth, the cheerleading squad was a gathering of a very specific kind of kid. They weren’t just the popular kids, although they were very much that. They were the über-popular kids, the ones who showed up at school every day in the shiniest, fanciest cars arriving directly from Valhalla. They were the ones who only spoke to each other and their courtiers, and they were often the meanest of the mean girls. Mean, but perfect. I was no shrinking nerd in school; I had a fairly diverse group of friends in band and in my classes. But I can say with absolute certainty that in all my years in junior high and high school, I never exchanged so much as a word with any of the cheerleaders, at least not after they joined the squad. I don’t know that it would have ever even occurred to me to try.
But apparently things have changed in this brave new world, at least at Schuyler’s school. Eighth graders can sign up for the squad and learn the routines, and if they show up for auditions, they are generally accepted. There are about twenty of them, sounding more like a spirit squad than cheerleaders. The faculty advisor who runs the squad is apparently an extremely laid back person (in my mind, I always imagine the cheerleading advisor as Violet Beauregarde’s mom in the remake of Charlie and the Chocolate Factory), and I can’t imagine Schuyler’s teacher would have said anything to us about this without having a pretty good idea that it would be okay with the faculty sponsor.
“Of course, Schuyler might not be able to do the cheers,” she said diplomatically, “but I’m sure she would be great at the routines and the dancing. And I’ll bet she would just love it.”
And she would.
With Schuyler, it’s always a challenge, identifying the things that present real possibilities for her. As parents, we take the official party line of “anything is possible if you just believe, by golly”, but as parents of a different child, we are accustomed to a delicate dance, the one where we try to open as many doors as possible for her while at the same time gently working to avoid the ones that don’t easily accommodate her broken parts. Schuyler will probably not join the speech club, or drama, or any academic groups. She won’t take foreign language classes, challenged enough by mastering English in a reasonably communicative way (speaking, as she does, in a dialect that she shares with no other human in the world).
And as wonderful as she is, Schuyler will always be a deeply weird kid. Too weird for the likes of the cheerleading squad, or at least so I would have thought.
But maybe not. Maybe I’m selling her short. Perhaps my fear of watching her fail at this most social of endeavors, at a time that social interactions are already giving her fits, maybe that fear has caused me to step cautiously when I should be helping her to leap fearlessly.
It’s probably a purely academic issue. After all, if we’re still living in Texas by the time Schuyler enters the eighth grade, that will mean that things have gone terribly wrong with our Chicago plans. And once we’ve moved, I’m certainly not so pollyanna that I think that every school in America has replaced the Mean Girls’ Cheer Squad with the Inclusive Spirit Group.
But the possibilities remain, if only someone else is creative enough to make them available, and if we’re brave enough to take the chance, to risk one more giant heartbreak if it might mean a chance for friendships and acceptance, which are the currency of her twelve year-old world.
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Go for it Schuyler!
I work with a kiddo that has a pretty severe speech impediment, as well as some other developmental delays. She recently joined a local (not school affiliated) cheer squad and absolutely loves it. I say go for it, and good luck!!
I’ve been saying for a while that Music, Sports, and Art are some of the most connecting activities we can do.
Psyched for Schuyler!
I totally agree with this, my daughter has add and was basically selectively mute. But she was coordinated. I put her in dance and for some reason, her silence turned out to be very enticing to the other little girls who would run to the teacher saying “Krista talked to me!”, like it was a prize only given to the best of them. Frankly I really didn’t understand it, but it made me happy. We also did swim team and roller skating, but dance is where she really shone.
Never underestimate the power of socialization.
Lisa
This is FANTASTIC! I hope it is a great experience for her, what an eye opener!
That seems so brilliantly obvious in a way. I hope it works out for her to do it, and I hope it’s pure awesomeness for her! And it’s not lost on me that her teachers are trying to think outside the box for opportunities for her, which it’s maybe the most fantastic take-away for me.
I hope you get to Chicago because that’s clearly what’s best for the whole, big family. I hope when you get there, though, that you take a good look at the cheer and spirit options because of the brilliant idea this TX teacher had. I can absolutely see Schuyler as a pep squad all star! She’s had a lot of practice.
Don’t forget not everything requires a speaking role-Drama has set and costume design not to mention non-verbal parts. I bet she would love it! Lots of great kids in drama…
Hi Rob, my son is a freshman in the same district as Schuyler. There were two special needs kiddos on the 7th and 8th grade cheerleading squad last year at his middle school. It always looked like they were having a fabulous time at the games! Being a part of a group outside of class at these huge schools is always beneficial.
Even if the cheerleading doesn’t pan out in Chicago, there’s plenty of other social type things I bet she would be good at. Marching Band and Flag Corp immediatly come to mind. Of course, cheerleading is “the thing”, even I tried out for the Freshman squad.
I love the way you wrote this – risking heartbreak for a chance at friendship. Scary and painful but spot on and potentially wonderful. Obviously you’ll know what the best fit is for her but I really do love that the school saw the possibility of success there. This is encouraging. Thanks for sharing.
Schuyler is already leading all of us commenters to cheer her on to try out cheerleading. Sounds like she has this one in the bag. 😉
This post also made me think of a two other semi-related items.
Kyle Maynard and The Little Book of Talent.
Kyle Maynard is a congenital amputee (all 4 limbs) who wrestled in highschool. He has gone on to work very hard to be able to compete in MMA competition.
Book: http://www.amazon.com/No-Excuses-Congenital-Champion-Wrestling/dp/0895260115?tag=duckduckgo-d-20
Movie: http://fightingchancemovie.com/
I came across The Little Book of Talent in searching for personal growth books because I started a new career path and there is a wicked learning curve. Basically the author went around to talent hotbeds and figured out how places were turning out talented people in all sorts of endeavors. The thing that made me think of this book in relation to your family is ‘praise the effort not the result’. So Schuyler tries out cheerleading. If it is a bust, she still did great because she tried it out and gave it her best.
Schuyler could absolutely be a public speaker. Stephen Hawking and Temple Grandin come to mind as a few people with considerable disability to overcome who have made public speaking a big part of their career path.
Cheerleading is more inclusive at my son’s high school than it ever was at mine. I think Title IX has played a role is this; with more avenues available to them the “popular” girls don’t have to dominate the cheerleading squad anymore. At my son’s school the socially dominant are on the soccer team.
But don’t overlook drama club as a potential activity for Schuyler. There are crowd scenes, and walk-on roles with no speaking. If being on stage isn’t her thing, she could do hair & make-up or work on costuming–things she appears to have an eye for anyway. In my experience, if the faculty advisor for an activity promotes acceptance and inclusion, the kids will embrace it.
I was going to say the exact same thing. She is a creative young woman and drama might be an excellent fit. There are always drama groups both school and non-school related. Drama often brings together a hugely diverse group of people.
My kids school cheerleading squad is just like the one you described. I think a kid like Schuyler would have a ball. I will tell you that the inclusive” anyone can join” standards while wonderful also decreased the ” cool ” factor of the group (a good thing IMHO) but also ( unfortunately) it’s “bonding as a team….part of a group” vibe. It was still great fun but there wasn’t the kind of group spirit in the more competitive teams at the other schools.
Hey Aj! I’m the Director of Outreach at The Sparkle Effect, Inc., a nonprofit that tangibly supports school-based inclusive cheer and dance teams nationwide with free uniforms and free on-site training. Can you tell me where your kids’ school is located? Thanks!
I am in the middle of reading “Schuyler’s MOnster”. My daughter is 6 and the more I read, the more I learn she is almost EXACTLY like Schuyler. She was diagnosed 1 week ago with PMG.
She participates in dance, gymnastics, and CHEERLEADING!
what a wonderful school administrator for making the suggestion.
My sister (who has Down Syndrome) was on the cheer squad in high school, and LOVED it. She’s gregarious (like Schuyler) and also has an “accent” that a lot of people can’t understand and that makes it hard for her to do cheers (like Schuyler). But she’d been cheering me on at my soccer games (complete with pom poms) for years and years, so at some point it occurred to my parents to send her to a “cheer camp” that was put on at my local high school (taught partially by cheer squad members), and that was that.
I will also say that cheering was probably the best possible way for Meg to meet and make friends with neurotypical kids that she otherwise would’ve had trouble meeting, largely because I can’t think of another school activity (curricular or extra-curricular) that would’ve been as forgiving of her disabilities (she’s hopeless at sports, and our theatre group was largely student-run and Meg would’ve immediately gotten lost in the shuffle and would’ve spent hours alone in the costume closet). She made genuine friends in cheers, people who appreciated her, not just girls who were being nice out of charity.
So, I think you should ask Schuyler if she’s interested, and if she is, give the mean girls a chance to get past their reputations.
Moving to Chicago might open up even more of these doors. I’ve noticed there are more opportunities for kids who don’t fit in the box in cities, both because the schools tend to be larger, so there can be greater opportunities for diversity that way, and also because the number of students can lead towards alternative education opportunities. Like, in Cleveland, near where we live, there is a magnet school for kids interested in the arts.
I echo what Joyce said above: marching band is awesome, and Schuyler already plays mallet percussion, right? In college, our pit created little dance routines to do while we played. Flag corps is another option. We used flags, but also other props and sometimes just danced. It was a lot of fun, and definitely a more inclusive group than my particular high school’s cheerleading squad.