The Things Unseen
I try not to take too many writing prompts from television, I really do. But this week seemed to have it in for me.
A few days ago, we were watching Parenthood. It’s one of those shows that Julie watches more than I do, but not one that actually make me leave the room. (I’m looking at you, Glee.) This week, however, a plot point caught our attention, like I’m sure it did with any special needs parent who watched. That’s quite a few, I know; the show is extremely popular with a lot of parents of kids who are different because of Max, a little boy on the show who has Asperger’s Syndrome. My daughter is not on the spectrum, but there are some universal experiences that come up on the show every so often (although perhaps less frequently than you might imagine).
This week, Max was a member of a math club decathlon kind of a thing, and his reports to his parents about the experience were resoundingly positive. The other club members were his friends, he insisted, and when they laughed when he engaged in repetitive stimming motions, they were doing so because they were so impressed with his math skills.
His parents discussed the situation, and when his mother said that she thought the other kids were making fun of Max without him even realizing it, Julie and I looked at each other, slightly wide-eyed. I said what we were both thinking.
“That’s one of my biggest fears with Schuyler.”
The episode went on to show the parents witnessing the actions of the other hop-in-the-ass punky kids, and in the end, the mother confronted the most egregious bully and let him have it. “Be a friend, not a bully,” she concluded. Cue the applause by parents of bullied kids everywhere.
Another blogger asked if the mother was correct in directly confronting the bully the way she did and it’s a valid question. But I think for many of us who worry about our kids when they’re the ones who are naive enough that they very well may not even know they’re being made fun of, it’s something of an academic question.
First of all, I think a lot of us might be asking a different question. Not so much if we would intervene in a situation where we saw our kid being bullied, but rather how big of a stick we’d find before doing so. Because seriously.
More than that, however, the reality of bullying is that it mostly takes place out of the view of parents and teachers. We find out secondhand, and often after the problem has existed for a very long time. For kids like Schuyler who have communication issues and for those who misread social cues and are generally trusting, I suspect some of it is never detected. And for the parents of these kids, the fear of unreported and even unrecognized abuse is very real. Like most of the things that scare us all, there is an exponential relationship between how much information we don’t have and the intensity of that fear.
It should matter to us that neither Schuyler nor her teachers at her new school have ever suggested that such a thing might be happening. And while we have observed how Schuyler exists apart from most of her neurotypical classmates, we’ve also only ever seen them treat her with respect and affection. Shouldn’t that be enough for us? Absolutely. When Schuyler told us that the boy on whom she has had her girly little eye for a year or so told her that she smelled nice the other day, should we have believed her, without wondering if he was being sincere or if it was part of something ugly that she might not even recognize as such? Surely looking for that big stick wasn’t an appropriate response, right?
Yet there’s that internal voice, the one that protects and anticipates but can also smother our kids’ independence and pilot the helicopter if we let it. And it whispers to us. Well, of course they’re nice to her. You’re standing right there. Just imagine what they say and do to her when you’re gone…
So we try to laugh at our fears and trust that the world might just be a better place than we give it credit for. And then the next morning, we see the report on the Today Show, about the ten year-old girl who hanged herself to death because she was being bullied in school. Ten years old. In fifth grade. The teachers and counselors were having a hard time explaining it to her classmates because most of them had no real solid concept of death or suicide or irrevocable choices. One girl said that she learned that death wasn’t something you could just come back from. We’re left to wonder if the poor girl who made such a sad and terrible choice understood the price she would pay for escape.
As a parent of a child who is different, a little girl who is sensitive and trusting and vulnerable even as she is strong, and one who wants so very much to fit in, I can tell you that it is very much the things unseen that keep me up late at night, the things that might remain unrevealed until they have completely and irreversibly done their wicked work. Some of those hidden monsters live in her different, broken, beautiful brain. But not most of them. And not the worst of them, either.
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About The Author
Julia Roberts
Julia Roberts is founder of Support for Special Needs and has been a regular contributor since its inception in May 2010. A mom to two kids with special needs, she didn't want other parents to feel what is the often isolating world of raising a child (or two!) with disabilities. Her kids had kidney transplants at the age of eight and will need liver transplants in the future as a result of ARPKD/CHF. They both have vision disorders and learning disabilities.
It truly is the fears that you can’t see that spring to life in the night. The ones were you can’t comfort yourself that you are monitoring them, kid yourself that you have some control over them.
As an educator, I totally cringed at that episode. The parents did not communicate with the adults in the school at all! OK, mom confronts bully (in my experience that tends to go all Jerry Springer a little faster than the adults predict it will), but will that really change the situation? If the bully is inside a truly nice but somewhat misguided kid, yes. That was not my read of the asshole on the math team, and we’ll see where the writers take this – if they take it anywhere.
When parents come to us early and tell us something is happening, we can be more attentive, watch more carefully, and put plans in place to protect a kid who is vulnerable.
My greatest fear for my grandson, who had a stroke before or just at birth is his progress into the horror of adolescence, a difficult time even for the non-disabled child. He is a beautiful child, but he has physical, speech and developmental difficulties. He has progressed amazingly considering the severity of his stroke. I cannot thank his therapy team enough for the loving, caring and hard work they have put into his abilities. His personality is sweet and loving. He is socializing better and better at pre-school but clearly would not understand if he was being made fun of or bullied. I don’t believe he has experienced either yet, as the Montessori staff is very watchful and I am so thankful for that. I hate to say this, but in truth, I’m not sure there is a big enough stick for me if I ever find out he is being bullied or made fun of. I WILL be there for him until my last breath.
My son Max is beginning to be mainstreamed this year, and this is also one of my biggest fears with him as well. Max is very bright in some areas, but is extraordinarily naive even for an 8 year old, and his speech is very delayed. So I’m not sure he’d recognize a bullying situation, and even if he did, if he would be able to tell anyone.
He always had a 1:1 aide with him now, so it’s not really an issue yet, but it’s one that won’t go away.
As someone who was at times the victim of bullying, the school response always seemed to be that I needed to work harder at fitting in, but I had no idea how to do that.
I’m hoping times have changed and the school would take bullying more seriously now then they did back when I was in school.
Gah! I cringed when Max’s mom confronted that kid because in my head, it had the potential to make the situation worse. In the real world, said bully will just get meaner, and sneakier, or perhaps we should expect the bully’s parents to show up on Christina’s doorstep and threaten her. Oh yes, cynical and burned, I am. Sorry.
My first instinct would be to call the school and make them aware of the situation, though in the storyline, this is supposed to be some kind of difficult-to-get-into charter school and should have a population small enough for the bullying not to go unnoticed by adults. I’m fortunate to have a good relationship with our principal and most of the teachers and there have been times when they have called me to make me aware of situations P doesn’t communicate at home. I haven’t had a situation that warranted calling the other parents involved yet, but he’s not in Middle School, where his childlike behaviors will stand out in a big way.
Tackling bullying in any meaningful way requires the cooperation of all the adults surrounding the situation, and I struggle with what to tell my kids about “fitting in” because sometimes the crowd that sets those parameters isn’t that great to begin with.
I love this: “Not so much if we would intervene in a situation where we saw our kid being bullied, but rather how big of a stick we’d find before doing so.” I think most parents fear their children being bullied, but for those of us who are parenting children who communicate differently than most of those around them (in whatever way that means) it’s particularly frightening.
I worry about this a lot. I witnessed bullying of kids with disabilities multiple times growing up, and my brother and I were both victims of it. The adults in charge never intervened, not even when we or our parents made them aware. I relayed an instance of my brother being bullied by an adult to my mom just yesterday and apparently she’d never known. We had the skills to tell her at the time but were too scared to.
Now I am the parent of two boys with special needs. My experiences growing up make me even more scared for my sons, especially as my older one (at least at this point) could not tell me if he was being bullied. That first scene on Parenthood already had my eyes welling up.
Thank you for this Rob. My daughter is 14 and attends a HUGE public high school. She is just beginning 9th grade there this year. And what I have seen throughout her inclusion journey, from K until now, is her peers treating her with respect and kindness. And people always ask me if I think it’s true that it happens all the time. Mama ain’t no fool, so no, I guess I don’t think that her peers never say anything to bully her, that’s a delusion. But I have to say, 95% of the time, it’s been kindness and friendship. Her peers have journeyed with her since they were 6. She just is. They understand her. And she ain’t easy, let me tell you. But there is an acceptance that happens with long term inclusion, I have seen it happen. Call it acceptance. Call it just seeing her as another peer. But it has led us to a world of kindness for my daughter, and peers to help her. So yes, it is always a worry, for me, that she may be bullied and I may not know, but I also believe that some of her 400 peers would spill the beans if she was. That’s the beauty of it.
to the people saying that the parent should have talked to the people at the school, i’m not sure how that would have helped at all. it’s pretty much common knowledge at this point that telling people in authority when you’re being bullied doesn’t help at all. they only respond when someone gets physical, regardless of how much they’re provoked. that’s just how it is.
when i was in junior high, nobody at the school cared when a girl in my gym class deleted an entire file off of my alphasmart, since apparently i shouldn’t have let her touch it (i didn’t, for the record, someone else asked to play with it, i opened to the file i would let people play with, instructed her not to let anyone else touch it or to go to any other files or delete anything, and she immediately handed it to her friend, who switched files and deleted the whole file when i looked away for a second) but they sure did care when, a few weeks later, drama over that incident got so nasty that i ended up pulling another girl’s hair.
now that i think of it, none of my teachers particularly cared that i was now missing an entire file of schoolwork, and expected me to just magically get my notes back with no help.
that was also the year that i took a required public speaking class, where most of the class would say nasty things during my speeches and the teacher would either ignore it or join in. as far as i know, that teacher still has her job.