A Father's Fear
I tried to write about another topic today, something more general, and maybe more applicable and helpful for other parents. But I couldn’t stop thinking about something kind of personal and interior, and so I guess I’m going to write about it here, with apologies and also gratitude for your indulgence.
I want to talk about a kind of helplessness.
The big news story all weekend revolved around the guilty verdict handed down to the two Steubenville, Ohio teenaged boys accused of taking advantage of an inebriated young girl at a party and raping her. It’s an especially ugly case, full of testimony of disgusting text messages, cell phone photos and video of the incident, as well as social media used to continue to violate and revictimize the girl after the incident took place. The story isn’t entirely relevant to special needs parenting, not specifically, but at the same time, it very much feels relevant. I challenge you to find a special needs parent who feels otherwise.
It feels relevant because we know the statistics. They’re not hard to find, nor easy to put out of mind.
In 2007, according to data from the National Crime Victimization Survey, about 47,000 persons with disabilities were victims of rape; rates of rape and sexual assault were more than twice those for people without disabilities. And among that population, people with cognitive disabilities had an even higher risk of being violently victimized than those with any other type of disability.
A Canadian study showed remarkable numbers for sexual assault among different categories of disability. 40% of women with disabilities have been assaulted or raped; 54% of boys who are deaf and 50% of deaf girls; 68% of psychiatric outpatients and 81% of psychiatric inpatients. According to one 1995 study, more than 90% of persons with developmental disabilities will experience some form of sexual abuse at some point in their lives. Almost 50% will experience ten or more such incidents.
And almost all of those incidents of abuse will be carried out by people who are familiar with and trusted by the victims.
As a parent, those statistics are sobering. As a father, or at least as this father, these odds fly in the face of every protective impulse I feel, and I feel a lot of them, all the time. When Schuyler was a little girl, protecting her felt, well, not easy exactly, but it felt possible, at least. Now that she’s thirteen, it seems as if the dangers to my daughter lurk in every darkened space, every hallway at her school, but most of all, those dangers hide in her own trusting and gregarious and naive nature. Schuyler understands a great deal, but she trusts very easily and is eager to meet new people, eager to a fault.
As parents, we can’t be there all the time. In the case of an ambulatory and sociable girl like Schuyler, we as her parents have to face the fact that every year, we’ll have even fewer opportunities to protect her. It’s a rude, cruel and predatory world for kids like Schuyler, and it won’t be any less so for her as she becomes a young adult.
This isn’t my finest blog post, I realize. And I recognize that its greatest weakness is that I simply don’t have any answers. I read those statistics and I perhaps selfishly look for the loopholes, the factors that might be missing from her own life that would make her own chances of being victimized and less than others like her. Those loopholes remain elusive.
When I watched coverage of the Steubenville case, all I could think was “That’s someone’s little girl.” There’s a father out there who took care of her and tried to keep the wolves at bay, and in the end he just couldn’t. I don’t want to feel kinship with that father. I desperately want not to. But I do.
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Friendship circle has a well-timed blog post on a closely related topic as well:
http://www.friendshipcircle.org/blog/2013/03/18/how-to-talk-about-sex-relationships-with-a-special-needs-child/
Thank you for posting that!
Hi Rob, been reading you and lurking for a very long time. How about looking into self-defence classes for women and young girls which could accomodate Schuyler? It would make you and her feel more secure and empowered, I should think… Love from Germany
Thank you! We have thought about that, and we’ll probably get her into a class this summer. The harder thing to teach her is when to trust and how to spot danger. Particularly since it’s not the random strangers and internet malcontents who scare us more. Nor should they, statistically speaking.
I saw this today and thought of you and Schuyler and Julie. http://www.newsobserver.com/2013/03/16/2752525/coming-together.html
That’s awesome! Conceptually it reminds me a little of the L’Arche communities, except with extended families.
I understand you are talking about how you feel, about your fear. Schuyler is in a unique position of being known of and about, not by her own actions but by yours and I’m sure it’s an additional worry to you that her naïvety, her face, her habits and her own sweet trust make the predators she has been exposed to so much more numerous.
There is a de facto blame attatched to the parents of children who have been violated whether parental negligence has been a factor or not but that would pale in comparison to the very special hell in which you would then be living. Rightly or wrongly, our society in large part continue to look to dads to provide physical protection and emotional security. It’s a constant job and fear can make us all weak- but it can also provide the stimulus to take both passive and proactive protective measures in place in order that, should the unthinkable happen, Schuyler has a fighting chance.
I know you wrote this to give your fears a voice but educating yourself on how to teach Schuyler to protect herself would be a fitting response to those fears.
You must be so aware of people watching you and I can’t imagine that would ever be other than intrusive but it’s not impossible to protect your family- these are overwhelmingly crimes of opportunity. It may be as easy as making your Twitter feed private or showing Schuyler how and when to use a rape alarm.
I’m sorry to have spoken for SO long but please forgive me- I feel like living proof that after crimes of violation and rape, and one can only survive. It’s not possible to heal from some injuries to your psyche or thefts from your soul. The stats tell a story but what they don’t say is that, if you are unlucky enough to be counted in them, you are a 100% member for life. You will meet different facets of your new status every day for the rest of your life- better inconvenient but active measures today than the perpetual half life of the self-damned.
This is such a dangerous world we live in. The usual conversations about “good touch versus bad touch” can be repeated as often as you feel necessary. Role play with her – develop scenarios where she needs to decide when to ask for help, and find good people to turn to for aid etc. You could get her a whistle or air horn if she needs to alert others she needs help. Self defense classes would be great. Something like a set of house keys in pocket or purse, even fingernails and finger strikes could be used in self defense. You could reinforce self preservation in her, that its ok to lash out or run away to safety if she feels cornered. The need to cover this w/ her sucks, but safety is the primary concern.
It’s definitely something we talk to her about, frequently. I think she gets it, at least when we’re talking about it. But I have no idea how she’ll react in the moment. Here’s hoping we never have to find out.
Another thought – does she have a Medic Alert type of bracelet or necklace or some means of letting emergency contacts know her medical condition and difficulty w/ verbal communication? Are personal information and emergency contacts programmed into her speech device, even some kind of button to use quickly?
I’m not going to discuss the specifics, but yeah, she’s got something like that.
There is precious little resource out there for teaching students with special needs to protect themselves from caregivers who step over the line and become abusers. The fact is, we tend to teach overcompliance to caregivers/authority figures, which can be extremely dangerous for our students to interernailze.
We’ve been creating our own materials and rersources as we work on this important topic with my current group of students. I do not know of any premade curriculum that covers it adequately.
That’s the catch, isn’t it? We can send her to self-defense classes until she’s a certified ninja, but it’s not going to do a bit of good when someone, not a pervert hiding in the shadows and certainly not someone who read my book or my blog, but rather someone who has been placed in a position of unquestioned trust violates that trust.
And honestly, I don’t have a clue what the answer to that is, other than to make sure that those caregivers only have access to her at school (no guarantee of safety, but still) and to try to teach her where that line lies.
Lord knows I don’t have any answers. I did think about Dave Hingsburger, who blogs at Rolling Around in My Head (http://davehingsburger.blogspot.com/), because the main focus of his work is advocating for, and particularly conducting trainings and education about, healthy sexuality and sexual awareness for disabled adults, particularly those with developmental disabilities. He has blogged vociferously and often about sexual, and other, mistreatment and exploitation of this population (but also about their rights, including sexual rights). So, I wonder if he might have some helpful resources that could help you to teach Schuyler about determining what behavior is OK and not OK from other people.
Thank you so much for sharing that resource!
omg that’s an awesome blog post! Thanks for sharing it!
What do you discuss about drinking and drugs?
I’m not sure what you’re asking exactly.
Holly Hell.
Today I actually sent my first boyfriend who I haven’t seen in many years a message on facebook. I thanked him for always being a gentleman and protecting me at parties when I was drinking (even when we weren’t dating). I thanked him for being a good guy, because of everything that’s going on in the media, I just wanted him to know that his actions were appreciated.
So, this has all been on my mind, especially since I have a daughter, and I have a lot of fear for her. She’s not special needs, and the idea of special needs people being in more danger never crossed my mind. But reading those statistics, jeez, they just blew my mind. It physically makes me sick to know that there are so many people out there being unprotected and victimized.
I’m sorry that we have to have these fears. And I’m sorry that we live in a society where these things are far too common.