Finding Support For Children With Disabilities
Parents of children with severe disabilities have many challenges and concerns. One big worry is who will care for their children after the parents are gone.
Al Etmanski is a veteran community activist, and after his daughter Liz was born with Down syndrome, he turned his attention to the needs of those with disabilities and their families. Etmanski was feeling pretty good about the work he was doing in Vancouver, British Columbia, until he was approached by three men at a party. All were in their 70s and had children with disabilities.
Etmanski says the men told him they were pleased with his work helping younger parents. But they asked: “What about us?”
Etmanski wasn’t sure precisely what they meant.
The men told him their adult children were OK now, but they were worried about what would happen to their children in the future. Existing programs and services wouldn’t keep their children safe, they said.
Read more and listen to the story here: Finding Support For Children With Disabilities : NPR.
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About The Author
Julia Roberts
Julia Roberts is founder of Support for Special Needs and has been a regular contributor since its inception in May 2010. A mom to two kids with special needs, she didn't want other parents to feel what is the often isolating world of raising a child (or two!) with disabilities. Her kids had kidney transplants at the age of eight and will need liver transplants in the future as a result of ARPKD/CHF. They both have vision disorders and learning disabilities.