Now Peace, I Can Use Giveaway
/Since I have been a parent to a child with special needs people have told me that I was hand-picked. I was “chosen” by God to parent because I am strong, because I am able to handle all that my kids need and somehow implying that they’d be unable to do it because I’m the only person that could do it this well.
When one friend said this to me, I barked back, “Wait! You could do this, you are one of the most organized and strongest people I know!” She told me that I was right, that she had all the skills to do it, but she said she couldn’t do it with as much grace.
When I’m feeling impatient with my son for his behaviors, or my daughter for her (validated) fears I don’t feel I have much grace. But other days I rely on my relationship with God to get me through with grace. I have a great deal of faith that has seen me through some pretty dark times. From times that included seeing my kids through some health scares as well as a recent bout of mental illness with one, to relying on faith to know that my marriage would be there on the other side after the chips fall.
For me, I’ve not had faith without work. My faith hasn’t always been strong and it’s during those times that I rely on my friends to have enough faith for me and so that is how I maintain my connection to God when I am working out my God relationship problems out. Because that is there too.
I’m open enough to know that there are many ways people make their way with their faith and so the theme for the week, which we’ve been calling God Week, was born. That isn’t to say that God is the only path to faith, either. It was born out of the interest of how other faiths see God and disabilities. Of how different faiths and theology explain the “God wouldn’t give you more than you can handle” belief that caregivers in the special needs arena so often hear.
Finding people who could provide essays from different faiths was harder than we expected but we think we have some unique experiences and beliefs to share. As we post essays this week, we’d love your input, so please comment here, or join in the discussions at our non-denominational group Faith & Disability or create a spirituality group focused on the religious path you are walking. It’s not as much about God Week as it is about Peace Week. Hoping that by bringing some other ideas to discussion means that we can all find our way to peace – whatever that means for us.
In honor of that, we’re giving away a little peace. Registered members can comment for a chance to win a little peace for themselves. Here’s a suncatcher for your corner of the world, a 4″ ice blue reminder of peace from Northern Sun.
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I’m Jewish and probably less religious than most. I do believe in my religion and feel proud to be Jewish but most of all I like the traditions of it. I like doing things for the holidays with my family. I like incorporating special things into these holidays for myself and my children to make them special and memorable. Since my boys were diagnosed with their kidney disease (ARPKD) I would definitely say I have turned more to religion. I am not necessarily more religious and do not believe in G-d more or less than before. I just think I am drawn to the traditions more and drawn to start new traditions and hook on to the old ones. I’ve also found myself chanting a specific prayer in my head as a mantra to calm myself down. I do this in hebrew and sometimes spell out the words too. It’s amazing how this does calm me and helps me move on from my panic attacks or fears or just frustrations when dealing with the disease. So I guess in a sense I do turn to my religion to help me find “peace” by practicing the traditions and chanting my prayer.
I do not like when people say that to me as well. Or variations, such as “God doesn’t give you more than you can handle”. I do not believe this at all. It is overwhelming at times, but things become our new normal. It would be that way for anyone else, but hard for those who are not in our shoes. I don’t necessarily wish for someone to be-but then again, I wouldn’t take myself out of these shoes either. It’s not easy. At all. However, I wouldn’t trade my children and their specialness for anything. My faith has waivered many times and with many situations. It calms me down most of the time. I struggle with it as I stand over my youngest in the hospital or hold him down for labs. Although, I also find myself praying the same prayer over and over as well. I don’t know if that is just to help me? Especially on days when it is too much around here and the mental issues are at an all time high. The days when my oldest is crying and saying he just wants a “normal” family. I completely understand what he is saying…even though “normal” doesn’t exist, and I don’t even know what that really is anyway. Yet, he has more empathy than any other ten year old I have seen because he has seen more than a “typical” fourth grader too. So, faith is a huge part of holding my family together. I didn’t really think about it until reading this post. Huh…clear out more space in my head, because I am really thinking about this a lot now:)
I just started a topic about answered prayers on the faith group. We’ve always been real active in our church with good examples from our parents. I’ve worked on my physical well being the past several months with good results so am now turning to the spiritual side again. The people of our church have always been really supportive so its getting time to share this new part of our journey with them. Focusing on all of our blessings helps with the tough times.