web analytics

Transitioning to Adulthood with a Disability: Pre-transitioning

February 28, 2013 in Featured, Future Glimpse by Scott MacLellan

Pre-transitioning describes the steps I or my parents took in my teens that helped prepare me for adulthood. There are many things you can do to become more self-sufficient, but I’ve chosen to focus on two areas that were essential to me gaining more independence. Some of these points will be expanded on in later articles.

Medical Signing Authority:

I was sixteen years old, at a doctors’ appointment, and was talking about an upcoming surgery. My father was with me, ready to sign the appropriate documents, when the doctor passed the papers to me. I was old enough that I now had authority to sign my own medical forms. My doctor was gracious enough to explain everything in detail, so nothing was misunderstood. From then on, this was my responsibility.

Having signing authority, it is important to make sure all important information is discussed before anything is put to paper. Keep asking question, even if it’s about something that may seem trivial. Ask the doctor to write things down for you, or have a pen and paper on hand. Parents, guardians, or care-givers should still be informed for the sake of assistance or emergencies.  

College/University Selection and Application:

Looking into college or university can require a lot of extra planning if you’re disabled. Before even looking at course descriptions or tuition fees, you have to consider factors such as campus accessibility, disability support, and your personal limitations. I recommend taking a tour of the schools you’re interested in before applying. They allow you to meet with people and judge the campus’s accessibility for yourself. Meeting with a counsellor at the school’s disabled student’s centre (names will vary) is a must.  These counsellors can assess the needs of prospective students, and provide them with a variety of tools to make learning more accessible.

During the application process, I found it very helpful to keep in touch with my high school guidance counsellor. She was aware of my disability, and took that into account when helping me fill out my application. She even got in touch with the college I chose a few times to ask about my status.

First post about transition. 

DISCLAIMER: The legal details associated with some of the following topics apply to my personal experiences, and may differ from place to place. Consult with local professionals for specifics.

Scott is twenty-seven years old from Ottawa Canada. He is physically disabled, with Joubert Syndrome, a genetic condition similar to Cerebral Palsy. He has done a lot of public speaking about his disability, but this is Scott’s first time as a contributing writer regarding being adult with a disability.

He has a certificate in Scriptwriting, and hopes to ultimately end up working on a major science fiction television show. Right now, he is creating his own comic book with the hope that it will get published.

He lives with his parents and sister who are a great support, but are respectful enough to let him be independent whenever he’s able.

————–

Thank you to Mabel’s Labels for their sponsorship this month! Be sure to connect with them…

150x150_adMabelsLabels

Mabel’s Labels siteTwitterFacebook, andtheir blog! Subscribe to their newsletter here.

Did you know that Mabel’s Labels can help you fundraise? Check it out here!

What are Preschool Shoe Labels? Help your toddlers learn left from right AND label their shoes with their names!

Introduction: Transitioning to Adulthood with a Disability

January 30, 2013 in Featured, Future Glimpse by Scott MacLellan

Note from the editor: Scott will be writing here regularly about transitioning to adulthood with a disability. Please feel free to ask him questions in the comments for ideas for future articles.

————–

For a young person with a disability, becoming an independent adult can seem almost impossible at times. I know this first hand. I am twenty-seven years old, and was recently diagnosed with Joubert Syndrome, a genetic disorder with characteristics similar to Cerebral Palsy. I live with my parents, receive a disability pension from the government, and am currently waiting for accessible housing. Getting to this point required research, form-filling and lots of trial and error. I’m fairly independent and have two college certificates.

Since my early teens, I’ve become interested in disabilities and how I can use my experiences to help others in similar situations. At first, my involvement was purely social. I joined special needs athletics, like Taekwondo and sledge hockey. I attended a summer camp for disabled children, where I made many friends, some of whom later became college roommates. In high school, I was asked to sit on my area’s district council for Easter Seals as a youth representative.

As a youth representative, I was part of a group called the Leaders of Tomorrow. I spoke on behalf of Easter Seals Ontario about disability and accessibility awareness. When my time with Leaders of Tomorrow was over, I continued making presentations. Some were still on behalf of Easter Seals, but now I was frequently invited to speak on my own. Over time, I became more comfortable with talking about my experiences as a disabled youth transitioning into adulthood. I was now presenting to management at hospitals, classes at universities, and youth groups at summer camps. I’ve covered topics such as going from pediatric to adult healthcare, entering post-secondary education, getting a job, accessibility, invisible disabilities, and living independently.

Recently, I have been searching online for a way to share my message with a broader audience. I contacted Support for Special Needs, which seemed like the perfect place for me to start. Over the next couple of months, I will be writing a series of articles for the site based on my personal experiences, as well as helpful tips to make transitioning smoother.

After reading these articles, if anyone has any questions or topics they would like to me to discuss, please feel free to let me know.

————

Scott twenty-seven years old from Ottawa Canada. He is physically disabled, with Joubert Syndrome, a genetic condition similar to Cerebral Palsy. He has done a lot of public speaking about his disability, but this is Scott’s first time as a contributing writer regarding being adult with a disability.

He has a certificate in Scriptwriting, and hopes to ultimately end up working on a major science fiction television show. Right now, he is creating his own comic book with the hope that it will get published.

He lives with my parents and sister who are a great support, but are respectful enough to let him be independent whenever I’m able.

%d bloggers like this: