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Supporting Young Adults With Learning Disabilities

February 28, 2011 in Featured, Insider Insight by Admin Dawn

Americans have been positively affected by the American with Disabilities Act (ADA), which mandates that certain services and assistance be given to people with disabilities. As effective as this law is, there are still many loopholes that fail to provide all the necessary support persons with disabilities need.  Special needs services provided by caring needs assistant providers can bridge the gap and provide people needing assistance with daily life issues a reliable resource. An adult with special needs wanting to live independently can face many obstacles. Being able to secure the help to make independent living a reality is a integral component of making an adult with special needs become self sufficient.

What Services Are Provided

Special needs support comes in various forms and can be delivered in such a way as to empower the special needs adult.  Wanting to have the skills to maintain their lives and live alone or with a roommate requires special needs adults to seek out resources and special needs providers. From securing a job for special needs adults to help with renting an apartment, managing their finances and staying on a budget, cooking healthy meals and other social skills the special needs assistant will provide the support needed.

Securing Employment

Most adults whether special needs or not need to have employment to support their lifestyle. For special needs adults procuring employment can present unique challenges.  Having someone that will walk with the special needs adult through the job seeking process, assist in completing the job application and help prepare for the job interview is paramount in becoming independent. Special needs assistants are trained and experienced in providing this support to those who need assistance.

Managing Finances and Staying on a Budget

Once the job is secured and the apartment or living space is a reality the special needs adults will have to maintain their lifestyle and special attention needs to be given to how to manage money and live within budget constraints.  In addition to paying rent or mortgage, the special needs individual will have to learn how to manage utility bills, buy food and clothing and set aside some funds to have fun.  Special needs counselors and providers will assist in integrating these life skills into the day to day management of independent living.

Special needs support is often provided by Life Coaches in an academic program especially designed to prepare young adults with special needs to live alone.  These same services can be tailored to the special needs adult on a one to one basis by a special needs assistant within your community. These individuals will not only provide all the services mentioned above but will also address local issues such as transportation navigation, involvement in community activities, and the preparation of healthy meals.  The personal connection with the “life skills coach” will build confidence in the adult with special needs and enable them to effectively maintain their independent living choices.

Barbara Richardson owns Elements Services: Special Needs Support Services provided at the home of young adults with various disabilities in the Chicago-area. Barbara offers Life skills/Coaching which includes Budgeting, Career supports and Social support. You can become a fan of Elements Services on Facebook here.

 

Happy new year everyone!

January 7, 2011 in Around the Site by Admin Dawn

Here’s what’s been happening around our community since we last updated:

Are you in Atlanta?

Join us on March 5th for our first (but definitely not last) In Real Life Connect event! We will be adding details over the next month as we finalize speakers but you can get a head start on registration here! Keep an eye out for our updates!

On the Forums

Julia is looking for tips on helping her son with his confidence issues. Have ideas for her? Please share them here.

Andy asked for (and got!) some tips on getting a new digital camera. (Did you know you can share pictures in your profile? Get more info on that here!)

Siobhan is offering a New Year’s discount on Creative Memories scrapbooking supplies! Go here for details — offer ends January 31st!

Melanie would like to hear from community members with experience changing a child’s behavior meds over here.

We have lots of new members! Welcome!

Vicky: “I am a mom to two dtrs who are my world. I am a nurse who currently works in a childcare center.”

Karen Yaughn: “I am a 48 year old single mom of a 7 year old daughter diagnosed with Freeman Sheldon Syndrome with Arthrogryposis, glenoid hypoplasia, midline cleft in the soft palate (repaired).”

The Domestic Goddess: “I am a Domestic Engineer, Total Babe and SAHM to two boys with autism, ADHD, OCD and a variety of other acronyms. I was a band geek in high school, live vicariously through computers and prefer dogs to people, which means I have STELLAR social skills.”

Renee Pratt: “I am a 29 yr old single mom. I have little boys who are my world. My 6 yr old has several disabilities. We currently live in Gwinett & are trying to build a support network with other social need families. My son attends Kanoheda. He is in 1st grade. He has trouble being social but does well doing one on one with a similar diagnosed child.”

Cheneespeaks

Julie Tutwiler: “mom of 2 kids – son has Down syndrome, ADHD and AV Canal defect; daughter has some ADHD and mostly LOTS of attitude”

Sadie

Laura LaPlante: “My name is Laura and I have 3 wonderful kids! My oldest who is 10, has Lyme’s disease, my middle who is 4 has moderate Sensory Integration Disorder along with Lyme’s which was passed through via pregnancy and my youngest who is now 18mths has severe “intolerances” to all Dairy and Soy products (both food and non food items). We remain active to the best of our ability. I have a wonderful, supportive Husband who tries his best. My jobs as both Mother, Wife and Employee to Sprint make my life non-stop.”

Jennifer: “Mother to 4. 2 That are differently-abled. My oldest is nearly 20, my 2nd(ASD-PDD-Nos) 15, my 3rd (severe verbal childhood apraxia, global) is 7 and my 4th is almost 4!”

Jennifer Giroux: “Mom and advocate of 3 children, the oldest of whom has hydrocephalus/strabismus/amblyopia and all the LDs that go with it: NVLD, apraxia, cognitive delay.”

Dana Sears: “I am a Blog designer and a Mom of three boys under five. My second son Mason has been diagnosed with Smith-Magenis Syndrome and PDD-NOS.”

Rachela

Carolyn Dagliesh: “My husband and I are the parents of two wonderful children. I have a home organizing business – Simple Organizing Strategies and I offer in home organizing support for general organizing, paperwork management and closet design. The larger part of my business is my Systems for Sensory Kids business – http://www.systemsforsensorykids.com. As the parent of a “sensory” child, I have learned the importance of organizing supports for “Sensory” Kids in the home. Sensory kids—like those with anxiety disorder, sensory integration dysfunction, learning challenges, ADD/ADHD, obsessive/compulsive disorder, high-functioning autism, Asperger’s syndrome, or other sensory challenges—often look at the world through a different lens. It can be challenging to connect with them, and little things can often turn into major stress points. Learning simple ways to create structure and routines as well as ways to connect and communicate can be life changing in your day-to-day living experience – something that can make the whole family more successful!”

Nicole

Mary

Stacy

Nicole Gutrich

Meagan Watts: “I am the mother of a 3 yr old with Childhood Apraxia of Speech and Sensory Processing Disorder. He’s making tremendous strides and working hard, but we have longer to go before he’s actually able to communicate with others.”

Christie Roberts: “I have two special needs grandchildren. I am a grandmother to ten children.”

Charity

I know we’ve missed a lot of new members since our Great Big Wish List giveaway derailed our community updates! If you would like a special shout-out for your intro, please contact me so I can add you to our list for our next update.

Meanwhile, did you know you can search member profiles? Just go to our members page and put your search term in the search box at the top of the list. You can also list members by new registrations, too, to see who has joined us recently.

We’re looking for your input!

What do you want to see on the site in 2011? So far we’re hearing you’d like more livechats! Michelle Howard has stepped up to volunteer to host a Rant Chat Thursdays at 8pm EST. Just drop in! You can check out Michelle’s blog including her Ranting Sessions for Stress Relief here!

Assessments In the Driver’s Seat

November 3, 2010 in Ask the Special Ed Lawyer, Insider Insight by dianaglick

The most important thing to remember about assessments is that they not only determine eligibility — they also drive placement and services.

A good and appropriate initial assessment can be used by the IEP team to determine whether a child is eligible for special education. My prior articles have described the requirements for eligibility, in short: a qualifying disability and a showing that the disability interferes with a student’s ability to access his or her education. However, that initial assessment will also set the stage for the placement and services offered by the district. While the eligibility category (such as autism, specific learning disability, or a speech/language impairment) will signal the main interventions to be provided, an IEP should include services necessary to address all of your child’s areas of need.

For example, if a child is eligible for special education as a student with Other Health Impairment because of a diagnosis of ADHD, he should receive services designed specifically to address the challenges arising from attention deficit. However, it is possible that in the scope of the assessment, the evaluator also identifies some problems with social/emotional functioning, such as withdrawal, anxiety or depression. These issues should be addressed as well, usually by an initial offer of school-based counseling, or a social skills groups for students.

When Assessments Steer You Wrong

Clearly, when an assessment is used to conclude that a child is not eligible for special education or not eligible under a certain category that you may be seeking, this can be a frustrating setback in your advocacy efforts. However, the worst assessments are the ones that provide absolutely no useful information about a child. Even if you disagree with a particular recommendation or conclusion that the district may have drawn from an assessment, the data itself can still be very helpful in understanding your child’s educational strengths and deficits.

Some of the more common issues that that arise with assessments are when the district fails to use an appropriate testing instrument, fails to properly score a test, or fails to administer or conduct any testing in an area that is a known issue with the child. To expand upon the example above with the child who suffers from ADHD, if that child’s teachers have noted troubling behaviors in the classroom that they believe could be emotionally-based, or if his parents are raising concerns about his mental health status, this would be considered an additional area of suspected disability. When his triennial re-evaluation rolls around, the district should absolutely include some kind of assessment to address these concerns.

Federal law sets forth several requirements for evaluations, including that they be conducted at least every three years, but not more than once per year unless agreed upon by the IEP team. A full assessment should include a variety of testing instruments and tools, so as not to rely on a single measurement of a child’s ability. In addition, standardized tests should be administered in accordance with the publisher’s instructions by knowledgeable and qualified personnel, should be given in the language of the student and should not be racially or culturally discriminatory. One key requirement is that the child must be assessed in all areas of suspected disability.

Getting Back on Track

A major part of my practice involves helping parents navigate a situation in which their child has not been appropriately assessed. The law allows parents to obtain an independent educational evaluation (IEE) at public expense when they disagree with a district assessment. A key point to note: there generally must be an assessment with which to disagree. While there are exceptions to every rule, if the district simply fails to assess and you take them to court, they will likely be given an opportunity to conduct an evaluation before having to pay for a private one.

If you request an independent educational evaluation, federal regulations provide the district with two choices: they can either agree to your request or they can file for due process to establish that their assessment was appropriate. In most cases, the district will determine that it is more cost-effective to pay for an independent assessment than to incur the expense of a due process hearing against the parents. However, it is important to know that the district may file for due process in response to a request for an IEE.

Many times, a district will deny the parents the requested IEE, but fail to bring due process. In this situation, parents often seek out a private assessment themselves and then request that the district reimburse them. They may have to file for due process against the district in order to obtain this reimbursement.

If the district agrees to fund an IEE, parents should be given the opportunity to negotiate with them regarding the independent professional who will conduct the evaluation. It is important to go with an assessor who is truly independent of both the parents and the district so that all sides feel they are getting an objective opinion. Ask other parents in your community for references in order to identify the good assessors in your area.

Once an independent assessment has been conducted, the district should convene an IEP meeting to consider the results of that assessment. If the independent assessor draws different conclusions than the district, this may strengthen the parents’ argument for a particular category of eligibility, a particular placement or additional or different services. Parents may use the independent assessment in a due process hearing against the district to establish that the district’s assessment was inappropriate or that the child has been denied services because of the district’s failure to identify his or her needs.

While trying to obtain an appropriate assessment of your child can be a frustrating experience, the law has built in a mechanism for a second opinion, which in most cases I recommend pursuing. Having more information about the student’s strengths and deficits leads to better team decision-making, better educational planning and better outcomes for the child.

More Intellectually Disabled Youths Go To College

October 25, 2010 in Special Needs News by Admin Dawn

Zach Neff is all high-fives as he walks through his college campus in western Missouri. The 27-year-old with Down syndrome hugs most everybody, repeatedly. He tells teachers he loves them.

“I told Zach we are putting him on a hug diet — one to say hello and one to say goodbye,” said Joyce Downing, who helped start a new program at the University of Central Missouri that serves students with disabilities.

The hope is that polishing up on social skills, like cutting back on the hugs, living in residence halls and going to classes with non-disabled classmates will help students like Neff be more independent and get better jobs.

In years past, college life was largely off-limits for students with such disabilities, but that’s no longer the case. Students with Down syndrome, autism and other conditions that can result in intellectual disabilities are leaving high school more academically prepared than ever and ready for the next step: college.

Read more here: More Intellectually Disabled Youths Go To College : NPR.

Special needs PTA stands up for the kids

September 23, 2010 in Special Needs News by Admin Dawn

Social worker Sebastian Oros has seen his students benefit from the efforts of the Indian Prairie Special Needs PTA.

Using video equipment he purchased with a grant from the PTA, he has been able to teach students through video self-modeling. Students who have a social concern are recording performing the task correctly. Later, the student will watch the video of himself or herself, and then actually repeat the action afterwards.

“There’s nothing more profound really than watching yourself do something appropriately and trying to emulate it afterwards,” Oros said.

If a student is having difficulty transitioning from the classroom to the gym, Oros could use the flip camera to record the student performing the task appropriately. Then, he can send an e-mail of the video to the classroom teacher, who can show it to the student before he or she leaves for the gym.

Oros can also create copies of the video to give parents a DVD with their child performing the social skills correctly so they can reinforce the skills at home, he said. If the student is going to a birthday party but has difficulty saying hello to peers, she or he can watch the DVD of himself or herself performing the task on the way there.

Read more here: Special needs PTA stands up for the kids :: Naperville Sun :: Local News.

Autistic Children Don’t Seem to Yawn ‘Contagiously’

September 21, 2010 in Special Needs News by Admin Dawn

Children with an autism spectrum disorder tend not to yawn “contagiously” — that is, yawn in response to seeing others yawn, a new study suggests.

Yawning is a type of “emotional contagion,” an unconscious response that reflects a recognition of how others are feeling. And unconsciously mimicking the behavior of parents and others is an important step in a child’s social and emotional development, said study lead author Molly Helt, a doctoral candidate at the University of Connecticut.

Autistic children’s lack of imitation puts them at a disadvantage when it comes to learning empathy and other social skills, Helt said. For example, prior research has shown that when people see others smile, they subtly smile as well. The movement of the facial muscles kicks a feedback mechanism into gear, lifting mood.

“‘Emotional contagion’ means I get to experience a little bit of the emotion you experience,” Helt said. “That gives rise to intuition, empathy and good social skills. The fact that autistic children are not yawning is a signal those basic social bonds that are forming in infants and children are not forming in children with autism.”

Read more here: Autistic Children Don’t Seem to Yawn ‘Contagiously’.

New Technology Brings Early Autism Diagnosis

September 10, 2010 in Special Needs News by Admin Dawn

Brian Willingham-McLain, an Oakland resident, is 12-years-old and enjoys Disney movies, swimming, and doing flips on his trampoline; all activities one would expect from a normal boy of his age. However, Brian’s life is far from, what people classify as, “normal.” When he was four years old, Brian was diagnosed with Autism and every day has become a challenge for him and his family.

Autism is one of three pervasive development disorders (PDD’s) that make up the Autism spectrum. Causing highly impaired social skills and delays in standard language, it is a neurological disorder that affects the behavior of nearly one in every hundred Americans. Due to its mysterious nature and unknown cause, diagnosis can usually not be determined until the afflicted child passes the age of five or six.

Read more here: The Globe – New Technology Brings Early Autism Diagnosis.

Autism Gives Woman An ‘Alien View’ Of Social Brains

August 25, 2010 in Special Needs News by Admin Dawn

It takes a smart brain to invent a spaceship. But putting one in orbit takes a brain with extraordinary social skills.

That’s because getting from concept to launchpad takes more than technology — it takes thousands of people agreeing on a common goal and working together to accomplish it.

Humans have succeeded in part because we evolved a brain with a remarkable capacity for this type of complex social interaction. We automatically respond to social cues and facial expressions. We can look at the world from another person’s point of view. We are predisposed to cooperate.

But all these things are so much a part of us, they’re easy to take for granted.

Unless you have autism, like Lisa Daxer.

via Autism Gives Woman An ‘Alien View’ Of Social Brains : NPR.

Definitely click through to listen to the story (or read the whole transcript) and be sure to check out Lisa’s blog, Reports from a Resident Alien, to read what she wants people to know about autism.

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