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Happy new year everyone!

January 7, 2011 in Around the Site by Admin Dawn

Here’s what’s been happening around our community since we last updated:

Are you in Atlanta?

Join us on March 5th for our first (but definitely not last) In Real Life Connect event! We will be adding details over the next month as we finalize speakers but you can get a head start on registration here! Keep an eye out for our updates!

On the Forums

Julia is looking for tips on helping her son with his confidence issues. Have ideas for her? Please share them here.

Andy asked for (and got!) some tips on getting a new digital camera. (Did you know you can share pictures in your profile? Get more info on that here!)

Siobhan is offering a New Year’s discount on Creative Memories scrapbooking supplies! Go here for details — offer ends January 31st!

Melanie would like to hear from community members with experience changing a child’s behavior meds over here.

We have lots of new members! Welcome!

Vicky: “I am a mom to two dtrs who are my world. I am a nurse who currently works in a childcare center.”

Karen Yaughn: “I am a 48 year old single mom of a 7 year old daughter diagnosed with Freeman Sheldon Syndrome with Arthrogryposis, glenoid hypoplasia, midline cleft in the soft palate (repaired).”

The Domestic Goddess: “I am a Domestic Engineer, Total Babe and SAHM to two boys with autism, ADHD, OCD and a variety of other acronyms. I was a band geek in high school, live vicariously through computers and prefer dogs to people, which means I have STELLAR social skills.”

Renee Pratt: “I am a 29 yr old single mom. I have little boys who are my world. My 6 yr old has several disabilities. We currently live in Gwinett & are trying to build a support network with other social need families. My son attends Kanoheda. He is in 1st grade. He has trouble being social but does well doing one on one with a similar diagnosed child.”

Cheneespeaks

Julie Tutwiler: “mom of 2 kids – son has Down syndrome, ADHD and AV Canal defect; daughter has some ADHD and mostly LOTS of attitude”

Sadie

Laura LaPlante: “My name is Laura and I have 3 wonderful kids! My oldest who is 10, has Lyme’s disease, my middle who is 4 has moderate Sensory Integration Disorder along with Lyme’s which was passed through via pregnancy and my youngest who is now 18mths has severe “intolerances” to all Dairy and Soy products (both food and non food items). We remain active to the best of our ability. I have a wonderful, supportive Husband who tries his best. My jobs as both Mother, Wife and Employee to Sprint make my life non-stop.”

Jennifer: “Mother to 4. 2 That are differently-abled. My oldest is nearly 20, my 2nd(ASD-PDD-Nos) 15, my 3rd (severe verbal childhood apraxia, global) is 7 and my 4th is almost 4!”

Jennifer Giroux: “Mom and advocate of 3 children, the oldest of whom has hydrocephalus/strabismus/amblyopia and all the LDs that go with it: NVLD, apraxia, cognitive delay.”

Dana Sears: “I am a Blog designer and a Mom of three boys under five. My second son Mason has been diagnosed with Smith-Magenis Syndrome and PDD-NOS.”

Rachela

Carolyn Dagliesh: “My husband and I are the parents of two wonderful children. I have a home organizing business – Simple Organizing Strategies and I offer in home organizing support for general organizing, paperwork management and closet design. The larger part of my business is my Systems for Sensory Kids business – http://www.systemsforsensorykids.com. As the parent of a “sensory” child, I have learned the importance of organizing supports for “Sensory” Kids in the home. Sensory kids—like those with anxiety disorder, sensory integration dysfunction, learning challenges, ADD/ADHD, obsessive/compulsive disorder, high-functioning autism, Asperger’s syndrome, or other sensory challenges—often look at the world through a different lens. It can be challenging to connect with them, and little things can often turn into major stress points. Learning simple ways to create structure and routines as well as ways to connect and communicate can be life changing in your day-to-day living experience – something that can make the whole family more successful!”

Nicole

Mary

Stacy

Nicole Gutrich

Meagan Watts: “I am the mother of a 3 yr old with Childhood Apraxia of Speech and Sensory Processing Disorder. He’s making tremendous strides and working hard, but we have longer to go before he’s actually able to communicate with others.”

Christie Roberts: “I have two special needs grandchildren. I am a grandmother to ten children.”

Charity

I know we’ve missed a lot of new members since our Great Big Wish List giveaway derailed our community updates! If you would like a special shout-out for your intro, please contact me so I can add you to our list for our next update.

Meanwhile, did you know you can search member profiles? Just go to our members page and put your search term in the search box at the top of the list. You can also list members by new registrations, too, to see who has joined us recently.

We’re looking for your input!

What do you want to see on the site in 2011? So far we’re hearing you’d like more livechats! Michelle Howard has stepped up to volunteer to host a Rant Chat Thursdays at 8pm EST. Just drop in! You can check out Michelle’s blog including her Ranting Sessions for Stress Relief here!

Struggling with feeding

September 2, 2010 in Ask the Feeding Specialist, Insider Insight by Katja Rowell MD

CookingAs a behavioral childhood feeding specialist, I work with lots of families struggling with feeding. From picky eating to weight and nutrition concerns, parents are working hard, frustrated and scared. While I have worked mostly with typically developing children, Ellyn Satter’s Division of Responsibility in feeding is appropriate for almost all children, including those with special needs, from Type I Diabetes, to autism. Families with children who are extremely selective have called in despair- months of therapy and the problems seem to be getting worse. I’ve had families say they “tried” family meals for a few weeks and they “didn’t work.” I am pleased that Satter’s latest newsletter specifically addresses children with ASD and SI issues and look forward to more of her work addressing the concerns of special needs families.
Check out her latest newsletter and then comment here or come by the Feeding our Families support group to share what you think!

From: July 2010 • Family Meals Focus #47 • Pressured on All Sides

The Feeding with Love and Good Sense Video and Teacher’s Guide, published in 1987, is being revised! The Childhood Feeding Collaborative of the Santa Clara County Public Health Department in San Jose, CA funded the videography and recruited parent volunteers. I produced 30 hours of footage with as many families and am well on my way to turning the footage into about an 80-minute video that addresses feeding the (infant, transition, toddler, preschooler). I have lots of plans for making further use of this footage, but enough of that. Let’s talk about what I saw.

To put a positive spin on it, parents work way too hard! To put a not-so-positive spin on it, parents are interfering. They sit down to a lovely meal and spoil it right away by telling the child, “you know the rules-you have to eat your vegetables.” Often the “eat your vegetables” admonition reverberates, with one parent picking up the words of the other and the first amplifying the second and back again. Parents peer and arrange and wipe-wipe-wipe and scrape together the child’s food. They tap the child’s plate and interrupt her conversation to remind her to finish whatever-it-is. They insist on one bite of everything and reason and praise and feed children who are old enough to feed themselves and explain about nutritional superiority and make bargains about “first this and then that.” They keep up a rat-tat litany: Use your fork, use your spoon, use your napkin. For their part, children do not easily give up their rights with eating. They argue, whine, cry, resist and evade, become defiantly messy, throw anything within reach, and press their parents to make increasingly ridiculous food bargains.

As a result of all this static, children are so stressed that they lose touch with themselves: their internal cues of hunger and satiety, their enjoyment and curiosity about food, and their pride in learning to do well with eating. But parents are stressed as well. They do not enjoy making their child miserable, but they do it anyway because they think it is good parenting with food. Why all the fuss? If children get the support they need – enjoyable family meals – they push themselves along to learn to eat the food their parents eat. Eventually they even do it neatly. Where do parents get the idea that they have to micromanage children’s eating? This pattern is not confined to San Jose, CA, nor is it new. Thirty years ago, an experienced Pediatric Nurse Practitioner observed to me, “If a child eats, parents think it is all their idea.”

Given this pressure on their eating, little wonder that children who are at all cautious and limited in with respect to eating develop extreme food selectivity or bizarre food behaviors. If fed according to a division of responsibility and allowed to move along according to their own tempo, slow-to-warm-up children learn to enjoy a variety of food. Really cautious kids, such as those with sensory integration disorders and autism spectrum disorders, still push themselves ever-so-slowly along to learn to eat. To do that they need structure, opportunities to learn and no pressure. Children with neuromuscular limitations struggle to manage the nipple or the spoon and eat until they run out of energy and it stops being enjoyable. Then they need nutritional support delivered in some other way so they and they and their parents don’t have to wear themselves out satisfying their nutritional requirements.

The take-home message is that we have work to do. We must let these poor parents – and these poor children – off the hook by teaching parents the division of responsibility in feeding. Along with that, we must help parents identify when they are putting pressure on feeding, and give them the good news about how much happier they and they child will be if they stop it.

Copyright © 2010 by Ellyn Satter. Published at www.EllynSatter.com.

The (Magic) Weighted Blanket Giveaway

May 1, 2010 in Giveaways, Product Reviews by Julia Roberts

Gage says, "I like it how I like it!"

For our first contest we’re giving away The Magic Blanket™

A couple of years ago when my son was having his first bout of acute depression it manifested in numerous ways, including interrupted sleep, another blogger told me about the weighted blanket. I can’t believe that in all the years working with multiple therapists I’d never heard about it (weighted collars for PT therapy, yes) so I started doing some research and found The Magic Blanket™ through google searches. I searched around and from the sites I found, The Magic Blanket prices were most competitive.

What I liked about the site? They told me what weight blanket I needed for Gage’s weight (under 70 lbs) and we could choose the fabric and pattern. They custom make a lot of them and so I ordered a camouflage, 10 pound blanket for Gage and he loved it (we’ve since purchased at second at 15lbs). Gage is somewhat complicated…sensory issues, hyper, depressed, delayed. If a weighted blanket could at least help him rest, well, then I was willing to try it.

They call it magic, we call it a miracle!

I had no idea that weighted blankets could help with some of the issues that Gage has but it does. To this day where Gage sleeps, the blanket goes (Honestly, camping? Yes.). All 15 lbs. of it. It’s one of the seven things he needs to sleep! Hey! I said he had issues. (items include two pillows, fan, two stuffed animals and a completely dark room.)

Their website says,

Weighted blankets, like The Magic Blanket™, have shown to generate proprioceptive input on our bodies. For many people, this input causes the brain to release neurotransmitters like serotonin, dopamine, among others. These neurotransmitters released by the brain have naturally calming effects, which have proven to be beneficial for people experiencing sensory integration disorder, anxiety, stress, Asperger’s Syndrome, ADHD, and Rett Syndrome. It’s important to note that The Magic Blanket is not a substitute for care from an occupational therapist or mental health professional.

Here’s how you can win a Magic Weighted Blanket!

First register as a user and we’ll enter your name into a random drawing. We’ll include every single person who (is and) becomes a registered user before Friday, May 7, 2010 5PM, PST! The winner will get to pick the weight – an 8, 10, 12 or 15 lbs blanket in any pattern in a fleece style and they will ship it for FREE. Blanket value $75-115. (Just a note — we’re going to be running lots of giveaways and only registered community members will be eligible so go ahead and register today to be eligible for future giveaways!)

Want another entry? Here are two more ways to win:

  1. Tweet the contest! Just click the cute little Twitter bird peeking out in the first “Sharing is Caring” button below. Then comment back here with a link to your Twitter status so we can check it out.
  2. Blog about the contest. Let your readers know about Support for Special Needs and our terrific community resources. Then comment here to let us know you did it.

Keith, at The Magic Blanket™ jumped at the chance to bring a weighted blanket to one of our community members. Want to talk to him about one for your kid (or yourself) if you don’t win? Call Keith at (877) 711-2020.

Good luck!

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