Robert Rummel-Hudson Archive
When parents look at the future for our kids with disabilities, there’s a lot that’s unknowable. For us, as I’ve said before, it’s the biggest unknowable in the world. We do everything we can to stack the
This isn’t going to be a long post. It’s not going to be filled with true wisdom or even my pretend wisdom. It’s not going to even have a story, because the narrative wouldn’t be mine but
Schuyler’s monster doesn’t have a proper birthday. Perhaps it could be said to share Schuyler’s. Even that doesn’t feel quite right, because it was there from very early on, probably the second trimester or so, a shadow
We visited some of our closest friends in San Antonio over the weekend. We celebrated the Fourth of July at the Alamo, which is about as much patriotism as a good Texan can reasonably hope to achieve.
It’s easy to conclude that raising a kid with special needs is hard. It’s hard work, certainly, but I’m not sure that’s exactly the same thing. It’s rewarding in a way that calling the whole experience “hard”
“And now here is my secret, a very simple secret: It is only with the heart that one can see rightly; what is essential is invisible to the eye.” ― Antoine de Saint-Exupéry, The Little Prince On
It’s not the same every year. Some semesters, Schuyler comes off a school year where she had more success than stumbles and more advocates than antagonists. Other years, like perhaps this one, we reach this point in