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Four Things That Stifle Caregivers and Kill Their Dreams

March 28, 2011 in Community Wisdom, Featured by Michelle Howard

Oftentimes caregivers view their lives with tunnel vision. Questions like “Who are you?” is met with the common response of “I’m a caregiver of a special needs child.”

While that statement is true, it’s also incomplete. Just because you have the huge responsibility of meeting and supporting the special needs of another, does not mean that’s what defines you.

Caregivers have dreams too. Sometimes those dreams are related to being a caregiver. Many times, they are not.

Being a caregiver birthed a dream of me becoming a physical therapist. I wanted to help children like my child to become more mobile. That dream has since fizzled out. Not because I’m no longer interested but because I allowed situations and circumstances to stifle it.

What is it that you are allowing to kill your personal dreams? Are you allowing circumstances unique to care giving, stop you from fulfilling them?

There are four enemies to your dream becoming a reality. They will stifle hault, thwart or whatever you want to call it.

Lack of Self Confidence

Just because you are caregiver, doesn’t mean that’s the only thing you can or should do well. What were you passionate about before you became a caregiver? Reach back to that point in time and refocus on what it was that made you good enough back then to accomplish those goals.

Lack of Resources

Don’t allow money to be the determining factor for not pursuing a dream. There are a ton of resources at your disposal. You just may not be aware of them. It will take some research but you CAN find financial help. As a matter of fact, you may find help that others are not privy to BECAUSE you are a caregiver.

Allowing Other People’s Opinions to Matter

Sure, you don’t want to disregard others around you – especially those close to you. Yet, you don’t want to allow other people’s opinions to weigh in heavier than your own (unless their name is 3 letters, begins with G and ends with D :-)

Sometimes people can’t catch your vision. That’s OK. Just don’t allow their negativity or ignorance to stop you from doing what you know in your heart you were born to do.

Fear

This is a powerful word and can stop anybody cold in their tracks. If you find that you are not following your dreams because you fear the outcome or even fear success, you must find a way to push on – even in the face of fear. Otherwise, your dreams will die.
Being a caregiver doesn’t have to be the be all and end all of your existence. If you have dreams, don’t let these 4 things keep you from reaching them. Do what you are good at, have passion for and long to do. You just may change someone else’s life.

About Michelle: Michelle H Smith is a mom of a child with multiple special needs. She helps other caregivers find ways to balance their lives by sharing stress reduction tips and resources on her blog Stress Relief for Caregivers. She also offers a line of pain and stress management products in her online store, http://www.antistressandpain.com

Release The Guilt & Just…Rest

December 2, 2010 in Inspiration by Michelle Howard

Michelle Howard and her son

Michelle Howard and her son

His hands were clammy and sweaty. He was also a little jittery.

Otherwise, CJ seemed just fine. After all, he was always a bit shaky so off to school he went.

Later in the day, the school nurse called with her concerns of CJ’s physical demeanor.

Could it be his blood sugar? His thyroid? Was it neurological?

According to the nurse, he’d been quite jittery for the past two weeks. “TWO WEEKS?? Really? How could I not have seen this? “

Because of the cerebral palsy, he’s always shaky but I had not noticed an uptick.

Fast forward to that evening and CJ is not eating, not drinking, not playing nor sleeping. I rushed him to the ER and by that evening he was seizing something fierce.

What Kind of Mother Am I?

Moms are expected to know what’s going on with their children at all times. So, why didn’t I (super mom or so I thought) pick up on CJ’s increased jitteriness?

At first I felt really guilty but experiences like these have taught me. Sometimes I miss things. Does that make me a bad mom? No. It makes me human.

The reason the nurse picked up on CJ’s increased shakiness is because she doesn’t see him every day. She’s able to notice the slightest change much easier. I can accept that and thank God, there are others in our limited circle that has the ability to notice when something’s just not right.

Give Yourself a Break

There will be times when circumstances will flow out of your control. Your child may experience a health crisis and you’re not there. You may not receive the response you desired from a medical professional or educational authority.

The obvious reaction is to feel guilt or fear. You may even question if you could have done more. Sometimes you could have and sometimes not. That’s not the point.

Either way, allowing a negative emotion like guilt to rest within you does nothing to help the situation. It also doesn’t help you to prepare for future trials and challenges. So, give yourself a break for simply being human.

Rest is Good

After CJ’s grand mal seizure (apparently the increased jitteriness was paving the way), he was exhausted and so was I. We both slept.

Taking time out to rest after a health crisis is extremely helpful – physically and mentally.

So, the moral of the story is just because you’re a caregiver, doesn’t mean you will always make the best choices for your child. You are human so release the guilt, forgive yourself and just…Rest.

About the Author: Michelle Howard Smith helps other caregivers to find ways to prevent and relieve stress through her blog, Stress Relief for Caregivers. She’s also created the Stress Less Recipe, a compilation of tips and advice to help caregivers keep it all together.

This week around the community

October 15, 2010 in Around the Site by Admin Dawn

Welcome to Our Newest Members

We are so thrilled to have a lot of members that have recently joined. One of the special things about the site is that people are starting to make connections with each other. It’s what we envisioned when we started the site. Please stop by our newest members’ profiles and say howdy!

Patrick Blair, “Father of Maggi Blair – Trisomy 9 Mosaic Syndrome. Maggi is one of only 8 kids in the world with Trisomy 9 Mosaic.” He also joined The Man Cave, which made group owner Julian very happy.

Gayle, “Hi I’m Gayle a mother of two wonderful kids (Jon-Jon and Courtney). Jon-Jon turned 3 today and started Special Ed Preschool due to his speech delays. He’s very verbal but most isn’t understandable. Courtney is 20 months old and is only saying 5 words tops. She will start the birth-3 program soon. I’m very happy to find this group, it’s good to know that you are not alone.”

Shelley Freedman

Joseph Harris, “I have two kids, a neurotypical, precocious 5 year old girl, and a determined, pre-verbal, almost 4 year old with autism.”

Michelle Howard, “Michelle Howard is a wife, mom and business owner. She has a special needs little boy named CJ who has inspired her to start a blog, Stress Relief for Caregivers. Stress Relief for Caregivers is an extension of Michelle’s passion to reach as many people as possible to bring awareness to the fact that natural and alternative treatments for pain relief and stress are available.”

Mara Kaplan, “I am an educator, a parent of a child with profound disabilities and a seasoned advocate for inclusive play. I work with playground manufacturers to help them improve their equipment and design. I edit a website called http://www.accessibleplayground.net, where you can find accessible playgrounds near you as well as information about how to advocate for an accessible playground in your community. I also help parents find toys for their child–toys, not therapy equipment. High quality toys that you can purchase at typical toy stores, that last a long time, and can be played with by all the children in the family. You can visit my blog to read more about toys at http://letkidsplay.blogspot.com.”

Michelle Kay, “I am the mother of a almost 14 year old special needs child. He has a rare chromosomal abnormality and probably autism too.”

Debbie M, “I am a mother to two wonderful boys! My oldest has Down syndome and my youngest has ADHD/ODD.”

Shelley Mannell, “I am a registered Physical Therapist with over 20 years of experience in pediatrics who currently owns HeartSpace, a private practice in St. Catharines, Ontario where I offers a variety of services for children with motor dysfunction. I am certified in NDT (C/NDT) and has advanced clinical skills in Myofascial Release, Craniosacral Therapy and Sensory Processing Intervention. I was a clinical faculty member in the Faculty of Rehabilitation Science at McMaster University, teaching in the School of Physiotherapy for 10 years. I am a certified children’s yoga teacher and meditation facilitator as well as the creator of HeartSpace Yoga and Meditation for children with motor and sensory challenges. Recently I co-created Core Restoration for Kids, a new approach to treating core stability in children with motor challenges. I have always had a strong committment to continuing education. I teach workshops for parents, residential facilities, and early childhood development centres as well as continuing clinical education courses for therapists internationally. I enjoy the challenge of combining the science of movement, the theoretical basis of treatment and the art of clinical skills in a problem-solving approach to treatment, blending approaches to facilitate optimum functional skills for each child.” (Note: Shelley is writing for us! Check out her first article here!)

Diana, “I’m a mom to 3 great kids. Our daughter is a long awaited biological miracle baby. Our boys were adopted from Ukraine in July, 2007. Our lives will never again be the same. Just a few of the things we adopted along with our boys include RAD, PTSD, ADHD, FASD, CP, OCD and a whole bunch of other “alphabet soup” kinds of stuff.”

Heather Sebastian

Cheryl W., “I am a mother of 4 (one who has gone home to be with the Lord). Christ is first and foremost in my life and my family is such a gift. I love movies (especially animation), reading and animals. We have a micro chicken farm where we enjoy organic, cage free eggs and also watching chicken antics are fun.”

Member News On and Off-line

Julie is collecting Clutter-free Teacher Gifts in the Organizing … Specialized group. Got any ideas? Please share them!

New member Michelle wrote a great blog post, Handling Ignorant Stares, and shared it on our Community News page. Lots of people retweeted it when it went out on the SupportSN twitter account! (Did you know our Community News posts automatically get tweeted? Yup, they do!)

Sylvia‘s son was in the hospital this week with a fever but thankfully he is back at home!!

Jolene was chosen to speak at the CMX (Children’s Ministry Expo) Conference in Lexington! Congratulations Jolene!

Janet is looking for ways to keep all the service providers working with her family up to date on what’s happening. Do you have anything to share? Let her know!

Andy is very proud to announce that after four reading sessions with a tutor her son Liam has moved up a reading level! Way to go Liam!!

Jo-Ann had a really tough night recently. Please go give her some love!

Mindy was surprised to see her son’s rare disorder on ABC News the other night. Click here to see the segment.

Didder Broder’s Daddy has been pretty busy on the site. Check out his recent blog post. Breaking Through the Barriers of Infallibility at his blog! (He’s also figured out how to add images to forum posts so he’s way ahead of me!)

Siobhan came by my house recently with a bag of outgrown clothes from her daughter to mine. You gotta love those in-person connections, eh? (If you’re touching base with site members in-person we’d love to hear about it!)

We’re planning some great things for the community and we are so glad you are along for the ride. We hope you will make the connections so you can support and be supported.

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