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Tips for Feeding Kids with Special Needs

May 24, 2012 in Featured, Insider Insight by Admin Dawn

By The Real Food Moms, Jeannette Bessinger, CHHC and Tracee Yablon-Brenner, RD, CHHC, www.realfoodmoms.com

For your child’s body and brain to function at their best, it is important to provide a diet high in amino acids, the building blocks of protein. But since the body is unable to store excess amino acids it’s smart to split up your child’s protein supply—ideally among the three main meals and two snacks. By feeding meals high in protein throughout the day, you help the neurotransmitters in the brain function better, and stabilize blood glucose levels—preventing hyperglycemia and reactive hypoglycemia—blood sugar “ups” and “downs” that can affect some children’s ability to focus and/or settle down.

One cardinal nutrition rule is to stay away from simple carbohydrates, which break down into glucose and release too quickly into the blood stream. Sugar and high fructose corn syrup are a few examples of simple carbohydrates to avoid. Children are affected differently by sugar, however many studies suggest that sugar negatively affects behavior, impacting aggression, attention, hyperactivity, mood and proper mental function. It is best to replace sugary drinks and snacks with healthy high protein snacks like veggies with hummus or nut or sunflower butter; smoothies with whey or rice protein or nut butter; nuts, seeds, sliced hard boiled eggs, fresh fruit with nut or sunflower butter, yogurt with granola or with nuts and seeds and a dash of honey. When serving foods with added sugar, it’s best to keep it below 15 grams per 100 grams. Cereals should have 3-5 grams of sugar per serving, max, and it’s best to include protein with breakfast, e.g., hardboiled eggs or yogurt with nuts and seeds and a dash of honey. Incidentally, organic honey has many beneficial nutrients—in addition to being a taste treat!

Another essential is to remove synthetic food additives from your child’s diet. For a food additive to be allowed in the diet, it must be certified as “generally recognized as safe” (GRAS), which means it will not have a significant negative effect on health. Unfortunately we don’t know the long-term effects of ingesting chemicals on our nervous, immune, respiratory and endocrine systems. There are 24 synthetic food additives, and we are going to address the four major categories: artificial colors, artificial flavors, artificial preservatives, and artificial sweeteners.

Artificial colors have been embroiled in controversy for some time. A November 2007 study published in The Lancet stated that artificial colors in children’s diets contributed to hyperactive behavior. The UK’s Food Safety Agency released this statement on July 20, 2010: “An EU-wide health warning must now be put on any food or drink that still contains the colours that are thought to cause hyperactivity in some children. This is following the Southampton Study, commissioned by the Agency, which suggested a possible link between consumption of six food colours and hyperactivity in children. The colours are Tartrazine (E102), Quinoline Yellow (E104), Sunset Yellow (E110), Carmoisine (E122), Ponceau 4R (E124) and Allura Red (E129).” There had been a voluntary ban on food coloring in foods in the UK. In the United States, Blue No.1, Blue No. 2, Green No.3, Red No. 40, Red No. 3, Yellow No. 5 and Yellow No. 6 are still permitted in our foods and medicines. Some of these chemicals trigger histamine release and create allergic reactions like hives (uticaria). In the September 2010 issue of the American Journal of Psychiatry, Stevenson, et al., found strong evidence that histamine release affects hyperactivity levels in animal models and also influences frontal cortex dopamine release. In this study, there was improved behavior when artificial color was removed from the diet. The research underscores the importance of avoiding food and medicine with artificial colors. Moreover, most artificial colors are made of a mixture of coal tar. The International Agency for Research on Cancer says that products with 5% crude coal tar are considered a Group 1 carcinogen. How’s that for a reason to remove artificial color from your child’s diet?

Artificial flavors are also a concern, especially (MSG) monosodium glutamate, an amino acid from glutamic acid. MSG is used in commercial cooking to enhance the flavors of many common processed foods including canned soups, frozen dinners, seasoning mixtures, and fast foods. Many fermented products have naturally occurring glutamate, like Worcestershire sauce, soy sauce and steak sauces. Glutamate is also in many other additives like soy extracts, protein isolate, hydrolyzed vegetable protein, hydrolyzed soy protein, hydrolyzed yeast, and autolyzed yeast. MSG is not always easy to identify on a label. Be on the lookout for words like “spices” and “natural flavorings” on a food label, which means it might contain MSG. Two food additives, “disodium guanylate” and “disodium inosinate” are only used with MSG, so if they’re on the label, there’s a high likelihood that MSG is in that product.

Glutamic acid, which MSG is made from, is classified as an excitotoxin. However, it is considered to be GRAS by the FDA. Many people are affected by MSG, and children who have special needs are especially vulnerable since they might not be able to communicate their discomfort, which may manifest as a headache or nausea. Removing artificial flavors from your child’s diet is the safe way to go, and could help to reduce behavioral problems.

Artificial preservatives, such as butylated hydroxytoluene (BHT) and butylated hydroxyanisole (BHA) are being investigated for provoking chemical sensitivities. These preservatives have been associated with causing broncho spasm, rhinitis and more particularly in triggering hives (uticaria). Many studies on mice have shown that these preservatives cause learning deficits, difficult sleeping, developmental delays, aggression, decreased orientation reflex. Key reasons in removing artificial preservatives from the diet because that could also relieve behavioral symptoms such as aggression, hyperactivity, developmental delays.

Artificial sweeteners are much sweeter than table sugar, “sucrose,” and can interrupt neurotransmitter balance, which could make behavioral symptoms worse.

The following sweeteners have been tested for their safety through the Center for Science in the public interest. Aspartame which goes by Nutra-sweet, Natra-taste and Equal, is one that people who have Phenylketonuria (PKU) have to avoid because they can’t break down phenylalanine which can accumulate to toxic levels. Sorbitol, xylitol, mannitol, maltitol, lactitol, isomalt, erythritol, and hydrogenated starch hydrolysates are sugar alcohols that can cause stomach discomfort and diarrhea. Acessulfame known as Sunnet, Sweet One, and acessulfame potassium, should have more testing and should be avoided because rat studies found that it caused tumors, mostly benign but some malignant. Saccharin, which is Sweet n Low, may cause cancer. Stevia can’t be metabolized in our bodies which is why it has zero calories. More testing should be done on its safety. Sucralose, which is Splenda, is actually sugar chemically combined with chlorine…Buyer beware! Tagatose, a very new type of sugar made from milk sugar lactose, can cause digestive issues such as gas, bloating and nausea because it’s not well absorbed. It can be found in Diet Pepsi, Slurpees from 7-11, etc.

These are a few examples of why package label reading is essential in today’s world. Many of the sugar substitutes mentioned are found in gum, yogurts, baked goods, and drinks, including iced tea, soda and juices. It is safest to use natural forms of sweeteners. Some of the best include organic honey and turbinado sugar, which is raw sugar crystals formed by spinning the sugar in a centrifuge. The juice released is crystallized to keep the rich molasses color and flavor, and it’s less processed than conventional table sugar. Sucanat is the trademark name for the turbinado process.

Trans-fat is the end result of hydrogenation, the process in which hydrogen is added to liquid vegetable oil. Partially hydrogenated fats contain Trans-fat, and are less expensive and have a longer shelf life than standard fats. Trans-fats interfere with an enzyme called delta 6 desaturase, which is important in converting essential fatty acids Omega-3 and Omega-6 fatty acids to the active form (ARA) arachidonic acid, (EPA) eicosapentaenoic acid, and (DHA) docosahexaenoic acid used by the brain. It is important to avoid Trans-fat and partially hydrogenated vegetable oils. A deficiency of 6 desaturase causes a deficiency of ARA, EPA and DHA, which are important for brain development, brain functioning, brain signaling and proper vision processing. Research has shown that children who have Autism, ADD, ADHD, dyslexia, and dyspraxia may have low levels of 6 desaturase so when they eat foods containing Trans-fat or partially hydrogenated vegetable oils, it can make these conditions worse (1). To increase the activity of the desaturase enzymes, it is important that the diet includes an adequate amount of vitamin B3, vitamin B6, vitamin C, magnesium and zinc which are available by eating local organic fruit, vegetables, whole grains, organic yogurt, and meat, nuts and seeds (2).

Including foods rich in Omega-3 fatty acids cannot be overemphasized. Some basic sources are wild Alaskan salmon, seaweed, eggs from hens fed a diet high in Omega-3’s, flaxseeds, pumpkin seeds, walnuts and algae. Caveat: To ensure food supplements are free of mercury, use either an algae-based or fish oil Omega-3 fatty acid supplement, which is third party-certified and molecularly distilled.

By purchasing organic-labeled products, you’re guaranteed that the foods you’re feeding your family are free of artificial color, flavor, preservatives, trans-fat and pesticides. Not all products have the USDA organic seal because certification is voluntary and expensive. So it’s important to read the labels carefully to know what you’re really buying. To have the USDA seal means a product is comprised of 95 percent organic ingredients. Foods that have at least 70 percent organic ingredients can use the phrase “made with organic ingredients” and list up to 3 ingredients. If the product has less than 70 percent organic ingredients the name of the organic ingredients can be included on the food label.

To get back to basics, incorporate the Real Food Moms three P’s: Plan, Purchase and Prepare real food! This takes a little organization, but you are ensuring delicious, unprocessed food for you and your family. You should definitely see some behavior and long-term health benefits for the entire family.

Get more from the Real Food Moms at their blog!

Stordy, B. Jacqueline. Dark adaptation, motor skills, docosahexaenoic acid, and dyslexia. American Journal of Clinical Nutrition, Vol. 71 (suppl), January 2000, pp. 323S-26S

Osmundsen H, Clouet P. Metabolic effects of omega-3 fatty acids. Biofactors 2000;13(1-4):5-8 2000. PMID:15800.

Republished from January 2011

My Great Story Campaign for Mother’s Day

May 8, 2011 in Featured, Featured Group, From Julia by Julia Roberts

A Forum to Share Her Story

NDSS & The My Great Story Campaign join together to raise awareness for Down syndrome in celebration of Mother’s Day.

Today, Mother’s Day 2011, the National Down Syndrome Society (NDSS) will celebrate the accomplishments and achievements being made by people with Down syndrome by honoring their mothers. The My Great Story (MGS) public awareness campaign seeks to ignite a new way of thinking about people with Down syndrome by collecting inspirational stories told by people with Down syndrome and their family members, friends, colleagues, and many others. NDSS has added a new section in honor of Mother’s Day. Participants share a story about their mothers, grandmothers, sisters, aunts, cousins or friends who have a son or daughter with Down syndrome. Anyone can comment or vote on the stories already in the collection. NDSS invites you to cover the MGS campaign, post, tweet and blog about it, and promote reposting, retweeting and more sharing amongst your audience.

NDSS also invites you to watch the two MGS Celebrity PSAsthat star TV Hosts Meredith Vieira and Nancy O’Dell and post them to your media outlet’s website. Vieira’s dedication to the MGS campaign stems from her relationship with her son, who has worked as a camp counselor for people with Down syndrome, and O’Dell was drawn to campaign through her fond memories of her mother’s sister, who had Down syndrome. Both Vieira and O’Dell have also submitted stories to the campaign that speak to their experiences.

Down syndrome is the most commonly occurring genetic condition, in which the individual has a third copy of the twenty-first chromosome. One in every 691live births is a baby born with Down syndrome, and it is the most commonly occurring chromosomal condition. People with Down syndrome attend school, work, participate in decisions that affect them, and contribute to society in many wonderful ways.

People with Down syndrome are living longer than ever before. The life expectancy of individuals with Down syndrome has increased dramatically in recent decades – from 25 in 1983 to 60 today. Children with Down syndrome are often fully included in social and educational settings and increasingly go on to graduate high school and attend postsecondary education programs. While placement in the workforce remains a struggle, the situation has improved and adults with Down syndrome have attained a variety of positions, bringing enthusiasm, reliability and dedication to their jobs.

We encourage you to get involved and help NDSS and mothers of people with Down syndrome everywhere to raise awareness for people with Down syndrome.

About My Great Story

MGS was created pro-bono by NY based Ad Agency, Pedone. After 14 months of market analysis the Pedone team developed a campaign in an effort to shape the future for all people with Down syndrome. The online story book was developed by CT based Interactive Agency York and Chapel, who spent over 12 months developing the user friendly technology, sophisticated design and esthetics, and incorporation of the spectacular print ads shot by Zachary Scott. To date, over $5 million has been donated in national and regional ad space and services. The campaign has been seen by over 175 million people across the country and featured in media outlets such as Allure, Fortune, Golf Digest, The New Yorker, Newsweek, Time, Vogue and Wired, among other noteworthy outlets. To learn more, visit www.ndss.org/stories

About NDSS

The National Down Syndrome Society is a nonprofit organization representing the more than 400,000 Americans with Down syndrome. The mission of NDSS is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity enhance their quality of life, realize their life aspirations, and become valued members of welcoming community. NDSS has over 350 affiliates nationwide. To learn more, visit www.ndss.org.

Welcome to New Members

March 11, 2011 in Around the Site, Featured by Admin Dawn

Gail Curran: Gail works at the Arizona Centers for Comprehensive Education and Life-Skills. Are you in Arizona? Look Gail up!

Achieve Beyond: Achieve Beyond specializes in nationwide pediatric therapy and autism services for children ages 5 and under including states like California, Illinois, New York, Virginia and Conencticut. Achieve Beyond uses a family focused approach in providing early intervention speech therapy, occupational therapy, physical therapy, ABA/autism therapy and psychological counseling. We strive to serve our patients and their families by providing services and evaluations support in their predominant language, at both the home and community settings. We also offer private pay / insurance services, educational workshops for parents and therapists as well as translation / interpretation services at several of our branches.

Denise Moberg: Retired from 30 years as an SLP in the public schools. Currently have a part time private practice.

Kyra: I am a stay at home mother of 4 kids. 2 are Special Needs. My 7 yr old has ADHD, Auditory Processing Disorder, Sensory Modulation Disorder, and Dyspraxia (the last 3 are very new to us). My 2 yr old has Apraxia and Sensory Modulation Disorder. My other 2 kids are just in special need of special attention. I am on a leave of absence from school right now so that I can get a better handle on my family and concentrate more on them than me.

Julie Fick: I am a full time mom to my son who has DiGeorge Syndrome. We live in Woodstock, GA.

Alisa Ricketts: I have been married for almost 20 years and I am a SAHM of two teenagers, one of whom is a special needs child.

Patricia: I have a 7 yr old with odd severe, conduct disorder, ocd tendencies, generalized anxiety disorder, separation anxiety disorder severe

Ayoca Freeman: I have two beautiful daughters; their ages are 8 and l year old. My oldest was blessed with an extra chromosome better known as Trisomy 21, one of the types of Down syndrome.

Jennifer McMahan: Mom to 2 beautiful daughters. The youngest one has Dravet Syndrome. I am actively involved as a volunteer in the IDEA League, the only organization that provides advocacy, support, education and research for Dravet Syndrome. Their website is http://www.Idea-League.org. It is my goal to help raise money for research as well as educate the public on this very rare syndrome.

Amanda L.: Mommylebron is the slightly diabolical leader of Lefam (just don’t tell LeDaddy, he thinks he’s the leader, riiight). She is a snarky & sweet mom on a mission! Once she attains her goal of world domination she will educate all its poeple on pediatric mental illness and erradicate stigma. All while wearing a really cute apron. This domestic diva, kitchen queen, laundress extraordinaire also enjoys writing, reading, movies, scrap booking, word puzzles, kiddie cuddles, wet kisses, big brown eyes……Oh, and, during her “on time” she molds the only-slightly-less-diabolical-minds of 4 year old’s (aka preschool teacher).

Stephanie LeMieux: I have a boy with HFA and Tourette’s

Aroma Ridge Coffee Giveaway

November 24, 2010 in Giveaways by Admin Dawn

One of our very first supporters were the good people at Aroma Ridge coffee roasters. They offer an array of the finest mountain-grown gourmet coffees to homes, coffee shops and retailers across the country and each month they sponsor our Coffee Break, when we send a pound of coffee to a community member who deserves a special, gourmet break.

When you enter, you would win:

  • Surprise Surprise: Back by popular demand! Includes 5 items…could be coffee, teas, biscotti, chai, chocolates, candles or anything else listed on our site! A fun way to try different things we offer or just a cute gift! We’ve even gift boxed it for you, just in case!
  • Winter Variety Pack: Containing 8 different flavors in 2oz bags (each makes a perfect pot of 8-10 cups): Sleigh Bell Vanilla, Mistletoe Mocha, Peppermint, Java Jingle, Bourbon Pecan Torte, Winter Wonderland, Raspberry White Chocolate and Christmas Holly. Available in ground only
  • Wicked Jack Tavern 33oz Large butter Rum Cake Moist. Buttery vanilla soaked in the finest Jamaican rum. Serves 16.
  • Everything Coffee and Tea: Perfect gift for any one and any occassion. Includes a pound of our famous Roastmaster’s Blend coffee, a box of 15 pouches of Chamomile Citrus Mighty Leaf Teas and a 4oz Wicked Jack Tavern Butter Rum Cake, presented in an Aroma Ridge Gift Box
  • 1 pound of Bolivia Carnavari Peaberry The Bolivia Colonial Carnavari coffee is organically grown and Fair Trade, meaning it was purchased from small-holding farmers at a fair or economically sustainable price. It is produced from trees of the classic typica variety of arabica at very high altitudes. This coffee is famous for its soft, sweet-toned aroma with very pronounced sweet cocoa tones. Superb finish: sweet, long and cocoa-laced.

Good CoffeeWhat’s great about this giveaway is that you can keep it for your own special holiday coffee break, save it to serve to special guests or gift it to a truly deserving teacher, therapist or party host.

And note if your organization is looking for a great, effective fundraiser, Aroma Ridge has you covered there, too. They brand their coffee with your organization’s logo. You choose from our many products and they create your order form specific for you and then you start selling. Once your fundraiser ends, forward them your totals and they’ll start roasting. Your order will be ready within 7 business days. Then they will assign your organization a promo code and any order placed on their site using that promo code during the next three months. Pretty good, eh?

Here’s how to win

This is my favorite of our planned contests! For this one you just have to go and share your favorite holiday recipe over at Recipe Swap right here. It can be the one you bring to the cookie exchange every year or your best casserole for holiday potlucks or your grandma’s sure-fire kugel recipe. I’m happy about this particular contest because I feel like I’m in a cookie-making rut so BRING IT ON!

Mental health clinic to test new way of treating schizophrenia

November 10, 2010 in Special Needs News by Admin Dawn

A local mental health agency has been selected as one of 10 groups in the country to launch a new pilot program that would bring a more “patient-oriented” approach to the treatment of schizophrenia.

On Monday, Hill Country Community MHMR Center announced that it was selected along with nine other community behavioral health organizations across the nation to engage in an eight-month pilot program to improve the daily functioning of people living with schizophrenia.

“The approach is really centered on helping patients determine their goals, desires and dreams and developing an action plan for them to make those aspirations a reality,” said Linda Werlein, CEO of the center.

via Mental health clinic to test new way of treating schizophrenia [Kerrville Daily Times, Texas] | Clinical News.

Arc and Seacorp agencies in CT to join forces

November 5, 2010 in Special Needs News by Admin Dawn

The Arc of New London County and Seacorp Inc. said Friday they will merge their operations to better serve the needs of those with intellectual and related disabilities in southeastern Connecticut.

The merger of the Norwich-based Arc with Seacorp of Uncasville will create a combined agency with an annual operating budget of more than $9 million and 265 full- and part-time associates.

“Nonprofits have to work as aggressively as possible to deliver quality services as efficiently as possible,” said Kathleen Stauffer, who will serve as chief executive of the newly merged organization. “Our shared vision and similar genesis make this a natural partnership, both in terms of continuing service quality and expanding targeted services for our participants,” she said.

via The Day – Arc and Seacorp agencies to join forces | News from southeastern Connecticut.

Special needs met in a special place

November 4, 2010 in Special Needs News by Admin Dawn

Several decades ago, five lots of city land on McKercher Drive were donated to the Presbyterian Church in Canada by the McKercher family, long-time members of St. Andrew’s Presbyterian Church. A plan was eventually put together to develop a ministry in the College Park area and McKercher Drive Presbyterian Church was established. The congregation grew to several hundred with a thriving Sunday School and three Sunday services.

However, the dynamics changed over the years. People moved away; members aged. Last year the decision was made to amalgamate with St. Andrew’s Presbyterian and sell the building on McKercher Drive.

The church facility was sold to Light of the Prairies, an organization that works with mentally challenged individuals and provides specific programming for those with complex needs.

via Special needs met in a special place.

A sister’s love for a brother with Down Syndrome

November 3, 2010 in Special Needs News by Admin Dawn

Heidi Schlicher was 8 years old when her brother Matt was born on Christmas Eve 1991. She returned home from her grandparents’ excited to meet the new baby and was puzzled to see looks of concern on her parents’ faces.

Her mother said that the nurses who had aided in the delivery suspected her brother had Down Syndrome, and explained that it meant that Matt would take longer to learn than other children.

Over time, fueled by her brother’s unconditional love, Schlicher became a passionate advocate for a variety of organizations that serve special-needs people.

That passion led her and more than 60 others to the rooftop of the SunTrust building in downtown Richmond last Saturday. As part of a fund-raising event called “Over the Edge,” each earned the right to rappel the 25-story office building by collecting a minimum of $1,000 for Special Olympics Virginia.

via Midlothian Exchange – Sports: A sister’s love.

Treatment of special needs kids in NY draws ire

November 1, 2010 in Special Needs News by Admin Dawn

A handful of parents – and one teaching consultant – turned out at last week’s Board of Education meeting for the Coxsackie-Athens Central School District to complain about the district’s treatment of families with special needs children.

Of particular concern were those students with autism spectrum disorder.

“I counted my files this morning, and I have advocated for over fifty students in Greene County, with 23 of them coming from this district alone. That should tell you something – there are issues going on,” said CarolAnn Luccio, founder of The Autism Connection of Greene County.

Luccio, through her organization, has been a tireless advocate for children with the disorder. She does much of her outreach in Cairo, but she finds the most problems are right here in her home district.

via The Daily Mail > Archives > News > Treatment of special needs kids draws ire.

Disability Group Comes Out Against Restraint, Seclusion Bill

October 28, 2010 in Special Needs News by Admin Dawn

At least one disability advocacy group is now opposing a bill in Congress that they once championed after changes would allow restraint and seclusion to be included in students’ individualized education plans, or IEPs.

In an e-mail to members on Monday, the head of the Council of Parent Attorneys and Advocates, or COPAA – a 1,200 member organization of special education attorneys, advocates and parents — said the group opposes the legislation in its current form because of the IEP provision and would like members of Congress to reconsider.

“COPAA cannot support the current legislation because S.3895 permits restraint and locked seclusion as planned interventions in students’ education plans, including behavior plans and individualized education programs,” wrote the group’s executive director Denise Marshall. “By allowing restraint and locked seclusion as planned interventions, S.3895 weakens protections under the Individuals with Disabilities Education Act (IDEA) and legitimizes practices that the bill seeks to prevent.”

via Disability Group Comes Out Against Restraint, Seclusion Bill – Disability Scoop.

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