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A Day Without Lawyers

June 18, 2012 in Featured, Yes, I Am a Special Needs Parent… by Robert Rummel-Hudson

A few months ago, I wrote about the legal fight going on between the innovators of Speak for Yourself, a augmentative speech app for the iPad, and the Prentke Romich Company and Semantic (“The Iceman Cometh, with his Legal Team”). I quickly described the situation at the time like this:

Okay, let’s wander into the weeds for just a moment. Last year an AAC app called Speak for Yourself was released that got the attention of a lot of us because of its use of the LAMP (language acquisition motor planning) concept. This focuses on a core vocabulary using consistent motor patterns that do not change. It is the basis of successful language systems like MinSpeak, licensed by the intellectual property company Semantic Compaction Systems for use in devices produced by the Prentke Romich Company, under the brand name Unity. It is these two affiliated companies, Semantic Compaction and PRC, that are attempting to sue the aforementioned pants off the developers of Speak for Yourself.

Well, things have changed a bit. Despite the fact that the parties have yet to have their day in court, Apple has pulled Speak for Yourself from the iTunes App Store. (PRC released a statement that begins with “Last week Prentke Romich Company (PRC) learned that Apple removed a language assistance app from its iTunes® store pending the outcome of a patent infringement lawsuit filed against the company that developed the iPad® app…”, but a careful read of the legal documents shows that Apple made this move at their request. Weasel words. Gotta love ‘em.) If you don’t already have Speak for Yourself on your iPad, you are out of luck, at least for the time being. If you do, you won’t be able to receive updates or remote fixes, and when Apple upgrades the operating system for the iPad later this year, there’s no guarantee the app will still work at all.

This is obviously a concern for users who are using the iPad and Speak for Yourself as their primary mode of verbal communication. Including, as of this summer, my daughter Schuyler.

There has been a great deal written about this situation. If you’re interested, the first, best place to go is this blog post by Dana Nieder, “The Silencing of Maya”. Dana has been the go-to person on this story, and she’s compiled a comprehensive list of links to the story as well. If you want to know more about this, that’s where you should go.

Now for my take on this, for whatever it might be worth.

There has been a great deal of discussion as to the validity of PRC’s claims against Speak for Yourself, and in a sense, it makes sense for everyone, particularly PRC and Apple, to let a court of law settle those claims. In a very real sense, however, that outcome is ultimately of limited relevance. As things stand right now, everyone loses.

Speak for Yourself loses because their product and their company dies if no one can buy it. Their clients obviously lose a tool that works, and that is very much not a small thing. Apple probably doesn’t lose, to be honest. We tend to think of the iPad as a major component in the disability world, but it’s easy to forget that the opposite probably doesn’t hold true. Apple probably sells more iPads in countries that don’t even have electricity than they do to users with disabilities. Our poor opinion of their business practices isn’t keeping Apple executives up late at night.

But most of all, PRC loses. They can win this court case, they can squash Speak for Yourself and get everything they seek in this situation, but the fact remains that with every story that runs in Time and on CNN and the Huffington Post, they are introduced to thousands of people who know nothing about their good work or their mission statement or their hundreds of dedicated professional employees. No, PRC is being introduced to thousands of people who will now and forever more know them only as “the big corporation that screwed over that poor cute little disabled girl”. That’s the kind of thing that leaves a mark. We can (and will) continue to argue about how accurate that public perception may be, but it’s irrelevant.

It’s irrelevant, and I suspect PRC knows it. I think they might have painted themselves into a corner, trapped by their own poor PR decisions, and they don’t know how to get out of it.

There is a way out, for everyone. The parties involved can take a step back and consider how they might come together and join forces. Under the auspices of PRC and the community of Unity users, Speak for Yourself and its developers would discover a credibility and a world of users that they would be unlikely to achieve on their own. PRC would finally be able to repair some of the public relations damage they’ve sustained and would grow their family. They would solve the very real technical problems involved with breaking into the consumer electronics market without a great deal of development skill. That’s no small consideration for PRC; frankly, their early efforts with iPad app programming has bordered on embarrassing. On their own, I don’t think PRC could release a solid MinSpeak app any time soon even if they wanted to. And perhaps most of all, PRC would benefit from a kind of evolution of their language system. One of the things I’ve been hearing expressed quietly here and there, and it’s something I agree with, is that in its use of a single representative symbol configuration, Speak for Yourself probably represents an improvement on Unity. PRC has a chance to benefit here, if they can work out a collaboration or even a merger with Speak for Yourself.

Will this happen? Frankly, I doubt it. Speak for Yourself’s team seems committed to fighting this fight, and rightly so, and PRC is showing no sign of backing down. But if all the parties involved could just get together in the same room for a Day Without Lawyers, this whole horrible state of affairs might just have an ending that doesn’t leave anyone feeling taken advantage of. Kids like Maya and Schuyler least of all.

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Be sure to check out Quinnlin’s journey with special needs and a special friend at Build-A-Bear Workshop‘s blog!

5 Practical Motor Planning Tips

December 7, 2011 in Ask the Physical Therapist, Community Wisdom, Featured, Featured Member by Shelley Mannell

We used to believe that motor skills developed in a very linear fashion and that most movements were pre-programmed in the brain.  Now we know that the brain constantly shapes our movements, before, during and after they occur, so that we can be successful in all our tasks. We also know that motor skills are based on processing of sensory information:  muscles, vision, hearing, vestibular and proprioception all combine to inform the brain about movement.  In some children with motor challenges however, the brain may not process this information as efficiently and this leads to difficulties with posture, balance and motor skills.  But there are ways to help.  Here are some practical suggestions:

1.  CALM THE NERVOUS SYSTEM

Increased stress/anxiety interferes with the “just right state” for learning motor skills. Strategies to calm the nervous system include:

Umbrella breathing: have the child sit or lay in a comfortable position.  Encourage them to take a deep breathe, expanding the sides of their lower rib cage (more than their upper chest or belly).  Let them breathe in and out easily, relaxing with the breath.  The iPod/iPad apps iBreatheFire and Balloonimals are fun for helping kids with a bigger breath out (that means they had to take a better breath in!).

Imagery:  Develop a very short story using an image that is calming for the child.  Make the story multi-sensory; feel the warmth of the sun on your face, the squish of the sand under your feet etc.  Re-tell the same story periodically and pair it with umbrella breathing for a calming effect.

2.  SUPPORT THE VESTIBULAR SYSTEM

The vestibular system is a powerhouse of the brain.  It assists in emotional self-regulation, anti-gravity muscle tone, central stability of the body, visual tracking and balance.  Difficulties with the vestibular system are common in children with motor challenges.  We can help to prepare for balance and motor skills by providing input to the vestibular system prior to movement.

Linear movements: large and small movements forward/back, side to side or up/down stimulate part of the vestibular system that is associated with muscle tone.  Running, swaying, or even head nodding/shaking can prepare the body for movement.

3. OPTIMIZE VISUAL INPUT

We’ve just talked about vestibular input but also visual input has a huge impact on balance and movement.  We use vision as our primary sense for balance until age 6 and many children with motor difficulties continue to use this sense as a primary source of information.  However they may also have difficulty using their eyes together and may also not be able to process visual information well.  Colour changes what information reaches the brain from the eyes.  Some children can benefit from using colour to enhance the visual information available during balance and movement tasks.

Coloured glasses: these are available in a rainbow of colours.  You can find them on the internet (www.colorglasses.com gives you a range of options) but you can also often find some colours at your local dollar store.  Experiment with what colour your child likes.  Children who are sensitive to bright light tend to prefer the blue/purple end of the colour spectrum and children who are sensitive to visual input in general tend to prefer the red spectrum.  The child can use these glasses when learning a task to assist with processing visual information for balance and when dealing with moving objects (throwing and catching balls).

4. INCREASE CORE STRATEGY

Many people talk about core muscles however our understanding of core stability has progressed a great deal in the past few years.  We now understand that 4 inner core muscles are wired to work as a team before movement begins; they prepare a stable trunk for all movements.  One of these muscles is the breathing/respiratory diaphragm.  When children don’t have a stable center they substitute breath holding to create stability.

“Blow before you go”: using the breath to support central stability is key.  Cue the child to take a breath in and then begin to blow out before they start to move. In this way, they are helping the body to use the inner core muscles for central stability rather than compensating with breath holding.

5. PROBLEM SOLVING PROMOTES LEARNING

Engaging more areas of the brain in the learning of a motor task assists with processing of more information.  Asking questions rather than giving solutions promotes this process.

Ask open-ended questions when learning motor skills: rather than providing solutions (“let’s try it this way”), ask questions that help the child think through the skill and consider the pieces that can be changed (“did the ball go where you wanted it to?”, “how did standing on one foot feel?”, “what could we change to see if that could work better for you?”).

Multi-sensory input movement usually works best, because this is how the brain is meant to function.  The key to success is finding the combination of inputs that works for each child as they learn about their posture, balance and movement.

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For more information about Shelley, Physical Therapy for children with motor challenges or workshops for professionals, visit Shelley at www.heartspacept.com

 

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