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Scouting Inclusion Policies & Special Needs

December 21, 2011 in Featured, From Julia by Julia Roberts

Being a part of scouts for my kids has turned out to be a process more than destination. My daughter has been in Scouts since Daisy’s in Kindergarten, then Brownies and last May she bridged over into Jr. Girl Scouts as she entered her 4th grade year. My son was a cute Tiger cub and also progressed up over the years in Cub Scouts and crossed over to Boy Scouts last Spring.

Her Story

Last February I attended an overnight Camporee Trip and it was really an eye opener. There is this swapping event the last day where all the girls swap little trinkets attached to pins (called “Swap Its”) and they run out to the middle of the lawn and swap them with other girls. Quinnlin did not have any to swap. She’d not been able to make them during the regular times they met to do Camporee functions, but I wasn’t informed she didn’t have any to swap. Well, that’s not exactly true. She’d made one and it’d fallen apart. I would have been able to make them with her, as I did the year before, if I had known. So she sat out and watched over 100 girls rush to the center of the lawn and excitedly swap little handmade trinkets with each other. She was a good sport, honestly. But she did have a twinge of watery eyes that spoke to the disappointment. The sad part about it is that she works very hard to keep up and this was something that was an easy thing to do to help her “belong.”

I don’t blame the troop leaders, really. They had a larger than average troop and if I’m being honest, I’d seen the warning signs before; knowing they were really aggressive with the achievements and activities to accomplish during the allotted time of a regular meeting. I didn’t realize until that weekend she was feeling so much pressure to keep up or I’d have attended meetings with her to be her personal assistant; which I did the rest of the year (and she didn’t necessarily want). She’d also experienced some “mean girl” incidents but had worked through those by avoiding those girls and sticking with the few girls with which she felt comfortable and to some degree protected her, often, and as Quinnlin says, those girls “don’t make me feel bad when I can’t do something.

Another warning was an internal voice that the troop wasn’t a good fit was the culture of the troop to be one of “Do it yourself.” On many occasions, parents were instructed to let our girls “do it by themselves;” from stuffing a sleeping bag into a bag, to carrying all their belongings of bags and suitcases and pillows to completing a task at a meeting. Because of that culture, Quinnlin felt nervous about asking for or getting help, but not being able to complete something just made her feel bad about herself. The “Do it yourself” culture in itself isn’t a bad thing, but when you have a girl who processes things slowly, or has low muscle tone and lacks the strength to do some things other girls her age can do, it’s a problem. It feeds into the already teetering self esteem issues.

Not long after Camporee and the non-existent swap its I asked Quinnlin if she’d like to look at other troops because she didn’t seem all that happy with the pressure and pace. She said yes, so at the beginning of summer Quinnlin attended an overnight event with her old Daisy troop, which is made up with girls with special needs and girls who are typical. The girls remembered her and welcomed her with gusto. In the morning she said, “I have more friends in this troop than I do in my whole school.” Which is beautiful and sad at the same time.

His story

In fact, recently, my son decided to drop out of Boy Scouts, much to my husband’s dismay. Way back before crossover from Cub to Boy Scouts I had a feeling this might happen so I wanted to talk with the troop leaders to let them know Gage would likely need modifications; leeway. We had high hopes, but then I started looking into the special needs policies for Boy Scouts (then Brownies) and I started asking around to other parents who knew more about the troop’s culture and nearly everyone said there wasn’t a set policy but they felt like boys with differences were welcomed. During a brief conversation with one of the scout leaders at one of Gage’s last cub scout events it was clear there was also a “they have to do it for themselves” attitude. In fact – I’m paraphrasing here – he said, “At some point we have to let our kids go and they have to step up. They will either do that, or they won’t.”  To me there was an implication parents hold their kids back and if we just gave him a chance to shine, he’d probably pull himself up by the bootstraps and flourish.

Now, I have to insert something about how my husband was very involved. He was at every meeting with Gage (unless he was out of town and Grandpa went) and he took Gage to every outing so this isn’t a case where we were looking for the leaders to completely run Gage’s scouting career.

When we walked out of that building I knew it wouldn’t work out and Gage would leave the troop. I had hope he wouldn’t because I think he enjoyed a lot of things about scouting but I knew it. I knew it within a couple of minutes of speaking with that leader that the culture would not mesh with Gage’s needs and personality.

In hindsight, I wished I would have searched for a troop that was smaller, more laid back with leaders that had a different view on inclusion, like the environment Quinnlin has found. But I didn’t, and I fear we can’t ever go backwards. If I had, he might have enjoyed it more and not felt the pressure and anxiety.

Scouting Inclusive Policies

The manuals on Scouting and their inclusion policies aren’t easily found on the Internet. I spent some time searching and ended up reaching out on Twitter, where Boy Scouts quickly provided me a link to their 162 page Scouting for Youth with Disabilities Manual. As for Girl Scouts, I did find this statement on diversity. I had to call the office in our state and within a couple of days I received an email and voicemail with a link to their manual, where they instructed me to page 74, where I could find a paragraph on inclusion. Basically, both organizations have strong policies of acceptance. I am sure they intended for every child to feel included and welcome.

The Space between Inclusion and Manuals

I think the people and committees at the two corporate offices of the Girl and Boy Scouts fully intend for their policies of inclusion of people with disabilities to be implemented. They’re forgetting one thing though; troop leaders are volunteers. The troop culture is going to be a reflection of their leaders and not all leaders have the drive to implement and sustain an inclusion troop.

While we were lucky to find a troop for Quinnlin that accepts her for her and makes accommodations for her differences, we weren’t lucky for Gage. I think his situation is probably more the norm. There are a lot of kids out there with special needs who could benefit from being in scouting (and where typical kids who could benefit from knowing kids with differences) but I know with all the time constraints and stress special needs families are under, scouting isn’t something necessarily fought for, given that it’s not easy to find troops with inclusion policies in practice. It is likely on many parents’ don’t have to list.

Scouting obviously isn’t for every child. In fact, I’d venture to say for a good majority of kids with special needs it isn’t possible in a truly inclusive setting. This means that kids with special needs miss out on the chance to be included in a group that could carry them throughout their young lives but it also means troop leaders and scouts miss out on knowing and learning from some amazing kids.

Fears and Raising Children with Special Needs

October 26, 2011 in Featured, From Julia by Julia Roberts

When we are sharing here on Support for Special Needs about the unique challenges of raising kids that have differences there’s always someone to offer a different perspective. In doing so they make you think about how grateful you are there is someone who truly understands.

We all have different perspectives (obviously) on what to focus on, what motivates us to keep going each day (when the day kicks us in the teeth) and in what way we present our stories (public or private, positive or negative). We all have fears. Some of us share our fears; some have them but are afraid to share them.

During my son’s battle with kidney failure, a botched surgery, kidney transplant, and subsequent frightening depression I had many fears for his safety, for his general well-being, for his life. I didn’t voice my fears about him dying very often and I tried to shut them away during the period of time he was suffering but it was an underlying tone for me. My husband wasn’t able to voice it, think about it, or hear me talk about it either. It was a hard time to have those fears.

Some fears that I and other community members have…

  • -          Financial security, for us now and our children in the future. Keeping insurance, hitting maximums before our kids are 5 or 10 and the many out-of-pocket costs of taking care of kids with special needs. Many of us are  discussing  special needs trusts before our kids are five.
    -          Independence into adulthood. We want our kids to have as much independence as they are able to gain. We worry for their safety and happiness.
    -          Bullying. We worry our kids that their developmental, physical or mental challenges will be the target of bullies. For me, this started at kindergarten and continues…
    -          Change. For some of our kids change can be extremely difficult to navigate. Early on we learn that they don’t like natural transitions in the world and we grow to fear it because adjustments are difficult. For parents, sometimes change means a progression in a disease symptom, medication, treatment, or arrangement. Sometimes we fear it. Greatly.
    -          Acceptance. Tied to bullying of course, but acceptance is huge worry for many of us. We want our kids to grow up being able to experience typical things everyone wants to enjoy…friendships, inclusion in social events, feeling welcome in new  groups of people, sleepovers. Acceptance.
    -          Education. We want what is our child’s right. Reasonable access to education. We want a compassionate education team, we want services that will help them, appropriate classroom settings and people to treat us parents/caregivers as part of the team. We want everyone to help our kids reach their potential. Period.
    -          Abandonment. Sadly, the acceptance item on this list extends even to people who love us. Our kids aren’t “perfect” and some come with a lot of management; behavior issues and plans, problems with eating, dressing, toileting and speaking. We want the people who love us to try to understand that we’re doing our best and we don’t want you to abandon us because it gets rough. It gets rough a lot.
    -          Relationships. Fearing change in relationships because of the relentless needs. Along with that I fear losing myself. Period.

Community member, Michelle Howard said, “I hate the word fear. It has too much power over people.” While fear can permeate my subconscious it doesn’t rule my life. For me and most of the parents of special needs kids I have contact with letting fear rule us would mean that we have to pull energy from the job of managing the special needs our kids have and our time is too precious.

I’ve learned to live with fear. It’s something the forces me to grasp my reality and it’s sometimes what propels me to seek out and appreciate the joys.

Originally published in January 2011

My Great Story Campaign for Mother’s Day

May 8, 2011 in Featured, Featured Group, From Julia by Julia Roberts

A Forum to Share Her Story

NDSS & The My Great Story Campaign join together to raise awareness for Down syndrome in celebration of Mother’s Day.

Today, Mother’s Day 2011, the National Down Syndrome Society (NDSS) will celebrate the accomplishments and achievements being made by people with Down syndrome by honoring their mothers. The My Great Story (MGS) public awareness campaign seeks to ignite a new way of thinking about people with Down syndrome by collecting inspirational stories told by people with Down syndrome and their family members, friends, colleagues, and many others. NDSS has added a new section in honor of Mother’s Day. Participants share a story about their mothers, grandmothers, sisters, aunts, cousins or friends who have a son or daughter with Down syndrome. Anyone can comment or vote on the stories already in the collection. NDSS invites you to cover the MGS campaign, post, tweet and blog about it, and promote reposting, retweeting and more sharing amongst your audience.

NDSS also invites you to watch the two MGS Celebrity PSAsthat star TV Hosts Meredith Vieira and Nancy O’Dell and post them to your media outlet’s website. Vieira’s dedication to the MGS campaign stems from her relationship with her son, who has worked as a camp counselor for people with Down syndrome, and O’Dell was drawn to campaign through her fond memories of her mother’s sister, who had Down syndrome. Both Vieira and O’Dell have also submitted stories to the campaign that speak to their experiences.

Down syndrome is the most commonly occurring genetic condition, in which the individual has a third copy of the twenty-first chromosome. One in every 691live births is a baby born with Down syndrome, and it is the most commonly occurring chromosomal condition. People with Down syndrome attend school, work, participate in decisions that affect them, and contribute to society in many wonderful ways.

People with Down syndrome are living longer than ever before. The life expectancy of individuals with Down syndrome has increased dramatically in recent decades – from 25 in 1983 to 60 today. Children with Down syndrome are often fully included in social and educational settings and increasingly go on to graduate high school and attend postsecondary education programs. While placement in the workforce remains a struggle, the situation has improved and adults with Down syndrome have attained a variety of positions, bringing enthusiasm, reliability and dedication to their jobs.

We encourage you to get involved and help NDSS and mothers of people with Down syndrome everywhere to raise awareness for people with Down syndrome.

About My Great Story

MGS was created pro-bono by NY based Ad Agency, Pedone. After 14 months of market analysis the Pedone team developed a campaign in an effort to shape the future for all people with Down syndrome. The online story book was developed by CT based Interactive Agency York and Chapel, who spent over 12 months developing the user friendly technology, sophisticated design and esthetics, and incorporation of the spectacular print ads shot by Zachary Scott. To date, over $5 million has been donated in national and regional ad space and services. The campaign has been seen by over 175 million people across the country and featured in media outlets such as Allure, Fortune, Golf Digest, The New Yorker, Newsweek, Time, Vogue and Wired, among other noteworthy outlets. To learn more, visit www.ndss.org/stories

About NDSS

The National Down Syndrome Society is a nonprofit organization representing the more than 400,000 Americans with Down syndrome. The mission of NDSS is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity enhance their quality of life, realize their life aspirations, and become valued members of welcoming community. NDSS has over 350 affiliates nationwide. To learn more, visit www.ndss.org.

Wading Through the Alphabet Soup: An Introduction to Federal Special Education Law

December 11, 2010 in Ask the Special Ed Lawyer by dianaglick

One of the first things I explain to clients during an initial intake appointment is the basic federal standard for educating students with disabilities. This is frequently referred to as the “alphabet soup” of special education: the IDEA mandates that schools provide FAPE in the LRE according to the child’s IEP. Keeping in mind that talking in acronyms is just job security for attorneys, let’s break it down:

IDEA = Individuals with Disabilities Education Act

This is the federal law ensuring that special education services are provided to children with one or more qualifying disabilities, whose disability interferes with their ability to receive an education. The IDEA originated in 1975 under President Ford and has been reauthorized and changed several times, most recently in 2004. While the IDEA is federal law and applies to all public school children in the country, each state also has its own education laws that may be slightly different than the federal requirements; states may provide more protections than those available under federal law, but may not provide fewer or less than the federal standard.

FAPE = Free Appropriate Public Education

The IDEA defines a free appropriate public education as special education and related services that are provided at no cost to parents and are in accordance with the child’s Individualized Education Plan (IEP), among other requirements. 20 U.S.C. 1401(9) (2009). The majority of legal disputes are about the meaning of “appropriate” for a child’s particular circumstances. In 1982, the Supreme Court issued a decision in Board of Education v. Rowley, which provides a working definition of FAPE as “a basic floor of opportunity” providing “some educational benefit.” Bd. of Education v. Rowley, 458 U.S. 176, 200 (1982).

What does “a basic floor of opportunity” mean in real terms? Because children who are eligible for special education have such a wide range of disabilities and needs, it cannot be defined as a specific set of services. However, most children who have passing grades or are making progress towards their IEP goals will be found to have received a basic floor of opportunity.

LRE = Least Restrictive Environment

This is one of the major improvements that the IDEA has made for students with disabilities. No longer does the law allow disabled children to be warehoused or educated exclusively in a special education setting, as long as their IEPs indicate some mainstream time during the school day. The LRE requirement has led to better outcomes, both academically and socially, for disabled students. It can also be a double-edged sword in some instances when parents are seeking a more restrictive environment for their child.

IEP = Individualized Education Plan

All students who are eligible for special education are to receive services in accordance with an IEP, which must be developed to meet the child’s individual needs. Those of you who already have some experience with special education have probably spent many hours at IEP meetings and have a sense of what they entail. We will talk more about IEPs in future columns.

I am excited to be included in this new community of families supporting children with special needs and look forward to sharing more of the legal perspective with you all. In future columns, I will address such topics as the difference between IEPs and 504 plans, discipline issues, assessments, the fair hearing process, private placements and knowing when to seek out legal help, among others.

We are also interested in hearing from you! Feel free to suggest topics for further discussion; just keep in mind that I cannot provide legal advice for your specific situation.

Author Diana B. Glick

Disclaimer:

This column reflects the views of Diana B. Glick in her individual capacity. It does not necessarily represent the views of her law firm or her clients, and is not sponsored or endorsed by them. The purpose of this column is to assist in dissemination of information about federal special education law, but no representation is made about the accuracy of the information. The information contained in this column is provided only as general information for education purposes, and topics may or may not be updated subsequent to their initial posting.

By using this column you understand that this information is not provided in the course of an attorney-client relationship and is not intended to constitute legal advice. This blog site should not be used as a substitute for competent legal advice from a licensed attorney in your state. This column is not intended to be advertising and Diana B. Glick does not seek to represent anyone desiring representation based upon viewing this blog site in a state where this blog site fails to comply with all laws and ethical rules of that state.

Without Answers, Special Needs Girl Banned from Basketball

August 20, 2010 in Special Needs News by Admin Dawn

Jenny Youngwith wants to play basketball just as she’s been doing safety for years. But a decision made by someone, somewhere is preventing the special needs student from hitting the court.

But as if that weren’t bad enough, her family says they’re not getting a good answer as to why she can’t play.

“We asked them why and they just say, ‘Because,” explained the 17-year-old senior’s father, Dick Youngwith.

Youngwith and her oxygen tank-carrying service dog, Simba, aren’t new to the sport. They’ve been playing it in gym class at Community High School in West Chicago for two years. But that all changed when the board of education last year partnered with Special Olympics Illinois.

via Without Answers, Special Needs Girl Banned from Basketball | NBC Chicago.

Students stand up for justice and inclusion – First Amendment Challenge

August 20, 2010 in Special Needs News by Admin Dawn

When kids begin the school day by reciting “with liberty and justice for all,” does all really mean all — including people with intellectual disabilities?

That was the question asked by 136 young people from across America — students with and without intellectual disabilities — who gathered in Omaha, Neb., in July to organize for school communities where no one is invisible and everyone has a voice.

via Students stand up for justice and inclusion – First Amendment Challenge

Three new laws to help people with disabilities

August 3, 2010 in Special Needs News by Admin Dawn

The 20th anniversary of the Americans with Disabilities Act was celebrated last week as we marked the progress we have made in two decades toward equal rights and full inclusion of people with disabilities in community life.

In New Hampshire, we not only looked back at our accomplishments but moved several steps forward, thanks to the work of the governor and Legislature, and of hundreds of tireless advocates.

Even as we celebrated the ADA’s anniversary, the governor signed into law three bills that protect the rights of people with disabilities. The new laws limit the use of restraint of children in schools and treatment centers, and they make hearing aids and treatment for autism more affordable.

via Three new laws to help people with disabilities – NashuaTelegraph.com.

Once-controversial special needs housing opens

July 27, 2010 in Special Needs News by Admin Dawn

What a difference three years makes.

A non-profit group that once divided the South Slope with a proposal to house formerly homeless and low-income adults with special needs in a Fifth Avenue building received a warm welcome to the neighborhood on Friday.

Even Borough President Markowitz, who opposed an early version of the proposal, was on hand at the formal ribbon cutting to cheer the Fifth Avenue Committee’s $14-million conversion of a parking lot into a five-story, 49-unit building.

Brooklyn Bridge Realty

In fact, Markowitz, whose objections resulted in the inclusion of more units for senior citizens, was eager to meet his new constituents.

read more at The Brooklyn Paper: Once-controversial special needs housing opens to cheers on Fifth Ave.

Fun Outings Hard to Come By

July 15, 2010 in Featured Organization by Julia Roberts

Since it’s Fun Week here at the ranch we thought we’d profile a company that was extra welcoming to the special needs community. I wanted to talk with someone that could share some tips with us about how to approach businesses in our own neighborhoods so that we could think about ways to get out kids out into the community in a safe, welcoming environment.

Sounds easy, right? Not so. For the past two weeks I’ve reached out to companies that already host special needs friendly events but have yet to hear back from one of them.

Sensory Friendly Films and the organization that arranged it was at the top of my list. The Autism Society (I didn’t leave a message for them because they were out for their national conference) has planned with a national chain of theaters, AMC, to host sensory friendly films. They offer a blocked out time period, usually a Saturday morning at a few theaters in the city strategically spaced apart where the sound is turned down a bit, (once a month maybe?) the lights turned up a bit, and you know everyone else in the theater is fine with more wiggles and standing and noises. Great, huh?

I called a Sensory Friendly Film locale AMC theater in our city and spoke with a manager. I told him I wanted to do a feel-good story about how they offer Sensory Friendly Films and he said he wasn’t “allowed” to give interviews and to call their media/press number. He said I’d need to leave a message and they’d call me within an hour. I called, left a detailed message with contact info, story idea, site name. Guess what? AMC media contact never called me back.

A few days later I reached out to Marcus Theaters because they also offer special needs friendly films. You know what? Nothing! I sent the contact an email and left a voicemail. Honestly, I was annoyed and confused.

I was thinking that maybe while outwardly these theaters want to appear like they are special needs friendly they aren’t completely special needs friendly because of lack of interest in helping us share how others can encourage businesses to embrace people with special needs.

I decided to take another route and reached out on a yahoo group in my home state in Georgia to see if people knew of any smaller businesses I could profile. I found out about a Simon Mall, (Mall of Georgia) that hosts gatherings for special needs groups. I called the office, told the person my story idea and she said I’d need the general manager but he wasn’t in so I left him a message. It was specific. I left my contact info and email address thinking he might want to do an email interview. I heard nothing.

We know there are people who don’t welcome people with disabilities. That is why there are laws to protect people with disabilities. In these three examples, I figure that they host their special needs friendly events and move on, but what it really tells me is there is a whole lot more work to be done for inclusion in our communities.

What I did find this week was a local business owner who hosts a lot of events for the community but I sensed she treats all the groups the same way, which I found great comfort in actually.

Meet Courtney Hensley, Stevi B’s/Northlake, in Georgia. She responded to me within an hour and she emailed me her answers to my questions the same day.

I understand that you have had events that are special needs friendly at Stevi B’s/Northlake…have they been private requests from families or from different organized groups (serving kids with special needs)?

When we first opened we were approached by a group–the KISS Foundation–to become involved in helping their families feel at ease at our restaurant.  Our staff went thru their training and we have held several fundraising nights for their organization.  We have received very positive feedback from the leaders of this group, along with parents that have attended.  At any given time there have been from 20-40 special needs families attending these nights.

Do you block off time specifically and close to others during this time and host it as a “private event”? If not, would you consider doing that?

For these events–we simply need to know at least a week prior to schedule a specific day/time so that we can staff accordingly and prepare for a group.  If there are special considerations you would like us to know—that would be helpful.  Unfortunately we cannot “close” the restaurant during regular operating hours, however, we can suggest certain times when the restaurant may not be as crowded.  There is also a “party room” in the back that can be reserved and will hold approximately 35 people.  This is nice for a smaller group that wants a bit more privacy than the large dining room area.

We are a business and have normal hours to sell our product and for financial reasons—we cannot close to our regular customers when we state we’re open.  We are very flexible with how we can arrange special groups. Also, depending on the time of day you were thinking—we could also consider opening the store an hour early for your group (10-11am) if you wanted the restaurant to yourself.

If a group or individual wanted to start a regular (once a month or once a quarter) event at a business, what would be the best way to approach the owners?

Monthly events are great—and encouraged.  They not only act as a regular place for people to meet and feel comfortable….but help the children look forward to something each month.  If this is something a group would be interested in, I recommend a call. No need for a written proposal–but I would need to know ahead of time (at least 1 week) and it helps if we set monthly dates to do so ahead of time so it’s set for several months going forward.

Do you offer group discounts?

Depending on the groups’ size—we can discuss a discount.  Normally for groups that book consistent nights—we suggest doing fundraising nights where your group will earn back $.50 on every paid buffet that evening.

Stevi Bs Pizza Facebook

Stevi Bs Pizza Twitter

For a group of families of kids with special needs approaching a business with some of the ideas of what an event could like like as presented by Courtney would be a good way to start a dialogue. There has to be more Courtneys out there, right?

As our site grows we hope that people in the same areas can arrange get togethers and we hope to find a place as welcoming as Stevi Bs Northlake! Please share information on successful events you’ve planned or attended so we can all learn how to approach our local businesses!

What comes around: Friendship Circle of Michigan

June 24, 2010 in Featured Organization, Latest Articles by Admin Dawn

One of the best things about being a part of this site is getting to meet people and organizations who are doing amazing things for kids with special needs and their families. Recently we became aware of The Friendship Circle in Michigan thanks to Facebook friends who linked us to their video, That Annoying Kid, which we shared here. We spoke with Bassie Shemtov, founder and director of the program via email. (By the way, you can follow her Twitter here and on Facebook here!)

The Friendship Circle offers several programs within their Ferber Kaufman LifeTown facility. The Friendship Circle has been operating since 1994 and has inspired other circles around the country. Funded primarily through private donations, The Friendship Circle recently received a $1,000,000 federal grant to create a play-therapy and anti-bullying program.

How many children are served through your program?

Overall, we have served 3,000 families with special needs. This past year, we have served over 155 schools from 42 school districts in Metro Detroit.

How are kids screened into the program?

Each family meets with our “family coordinator” to tour our facility and learn about the programs. All children are accepted into the program, so the only “screening” performed is which programs would address their particular needs the best. For example, we have children with severe Autism and we have children that are simply socially awkward. If they have any special need, we are here for them. We accept all families who feel they can benefit from our organization, no questions asked. All of our programs are infused with play therapy, social and physical therapy. So although the child is “having fun with their buddy,” they are also cultivating life skills to work on their particular needs.

Do they graduate from the program?

We have programs for young children all the way through adulthood. Therefore, most of our kids never graduate. They grow with us. Friendship Circle is more like a community, rather than a temporary institution.

How are volunteers recruited?

Most of volunteers arrive at our doors from word of mouth. They hear about their friend’s volunteer work and want to get involved. In our early years, we went straight to the local high schools for direct recruiting. Many teens need service hours fulfilled for graduation, Bar/Bat mitzvahs, etc. But as more and more requests for volunteering opportunities came in, we began to realize that these teens were gaining much more than just service hours. They were learning life lessons from their special friends such as non-judgment, unconditional love and patience. These morale-boosting lessons are what really keep our volunteers coming through the door. Their special friends don’t care what clothes their teen is wearing. They don’t care if their teen is popular or not. It’s a unique, deeply personal experience that changes their life for the better.

How do you help build other friendship circles around the country?

As the founding branch of now 80 locations worldwide, we are the test-pilot for many of the new programs. Basically, we brainstorm new programs, campaigns, events, etc. We try them out here, develop the tools needed to execute them and if it is a success…we share them with the other FC’s. Each year, we have a Friendship Circle International conference where the 80 locations gather for a 3 day round-table style retreat. We all bring new ideas to the table and distribute the information to all. (Note: To see if there is a Friendship Circle near you, check the web site here.)

What was your impetus for starting the program?

My husband and I moved to Michigan in 1994. We originally began Friendship Circle to serve individuals struggling with addiction, isolation and other family related crises. Our method was to take individuals who were already in active pursuit of recovery and help reintegrate them into society through life skill training such as job searching, spiritual guidance, counseling, 12 step meetings, etc.

During our first few months in the Metro Detroit community, we noticed an overwhelming need for community inclusion for individuals with special needs as well. Families with special needs were another group, pushed onto the fringes of society and excluded from many community events/programs. And although they had access to doctors and therapies, they were facing social segregation from a community lacking education about their neighbors with special needs. So we simply began coordinating teens to visit the homes of children with special needs for one hour per week. The child would receive a friend to play with and the family would receive much needed respite.

The idea caught on like wildfire and 16 years later, we have a 28,000 square foot facility. Inside our facility is a 5,000 square foot life-like village with eight storefronts, a park and working intersections. Inside “Weinberg Village” as it’s called, we teach 155 local schools various life-skills in a safe environment, tailored to their special needs. Eventually, our addiction support services thrived and branched out to form The Daniel B. Sobel Friendship House.

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