web analytics

Ten Coping Strategies for Crisis

April 11, 2011 in Book Reviews, Featured by Admin Dawn

By Linda Cole, author of Resurrecting Anthony: A True Story of Courage and Destination

1.      Recruit and accept help and emotional support through family and friends.  Do not try to weather the crisis alone.

2.      Confide in your primary physician.

3.      Be positive.  Be proactive.  Your attitude will contribute greatly to the outcome.  Educate yourself and be involved as much as possible.

4.      Recognize that “This too shall pass.”  You will have a “normal” life again, although it may never be as it was.

5.      Find your mental “get-away” for particularly traumatic moments.  Example: Envision yourself floating on calm water.  Block out all distractions and center yourself.

6.      Focus on others.  Do not internalize.  Who else needs your help during this crisis?  How can you help those around you?

7.      Stay busy.  This is a bad time to be idle.  Don’t sit home alone.

8.      Exercise regularly.  Walk, run, bicycle thirty minutes every other day.  The endorphins released will help you mentally and emotionally.  Your sleep will improve.  Your body will be stronger and you will feel more in control.

9.      Sleep.  Get a good night’s sleep.  Your body and brain need the recuperation times.  If you are exhausted, you will be less effective at a critical time.

10.  Eat well.  Eat well-balanced meals, lots of fruits and vegetables, good proteins and complex carbohydrates.  Your body and mind are in a state of hyper-stress.  They need useful nutrients, not chemicals, processes and additives that sap your strength.

Finally, you will have moments that you can’t avoid.  Find a place; mine was in the closet, where you can really cry.  Let it come.  But set a limit, perhaps 4-5 minutes.  Afterward move on.  Do not dwell.

Linda co-authored her first book, Resurrecting Anthony: A True Story of Courage & Destination, which tells the story of her 12-year-old son’s heart attack and brain injury. A look back over the decade since the event helps the reader see how her once perfect family survived the devastating loss of a child and how a new family has come to be. Linda is also CFO of Anthony Cole Training Group, a successful company that builds sales cultures within organizations nationwide.

Tony graduated from the University of Connecticut with a degree in Education. A scholarship athlete, upon graduation Tony leveraged his experience to coach Iowa State University and University of Cincinnati athletic teams. He then spent more than 15 years in sales and sales management positions in the exercise equipment and insurance industries.

This unique combination of coaching and selling led Tony and Linda to launch Anthony Cole Training in 1991. An immediate success, by the end of 1998, the little company of two grossed half a million dollars. However, when their twelve-year-old son became severely brain injured the company down shifted for several years. In 2003, having adjusted to a new life and family, the company began to grow once again. Tony is CEO and President of Anthony Cole Training Group, which serves companies nationwide, bringing new life to sales organizations.

No Pain with Buzzy Giveaway

August 23, 2010 in Giveaways, Resources by Julia Roberts

We are giving away a Buzzy® for boo-boos!

This review is from Community Member Sylvia

A couple of weeks ago, Julia sent me a message asking if we would like to test and review a new product that might help with the blood tests and IV meds the kids both have to have on a frequent basis. His name is Buzzy, and he is a cute little bumble bee that helps with what we call “pokes”! I jumped at the chance! Jennifer, 3, was the first to test it. She needed to have blood drawn for allergy testing, and knowing that she loves getting mail and would be more interested in trying him out if he was “hers”, I asked Julia to have the package addressed to Jennifer. When it arrived 2 days later, Jennifer was thrilled. At first, I didn’t tell her what he was for, just let her check him out. Then I introduced his cold wings. He comes with two kinds. A reusable, gel filled one that you freeze and then wipe with a disinfectant wipe (or soap and water wash) after use or single-patient disposable wings that you add a bit of water to and then freeze. The disposable ones can be refrozen, but since they have an absorbent side, should only be used for a single patient. It came with two pair, so I marked each one with a kid’s initials so I know which one is which.

The way Buzzy works is twofold. The cold wings help to numb the area and he vibrates, which helps block the sharp pain of a needle stick. He comes with an elastic and velcro band that holds him in place just above the site of the intended needle stick. You do need a small cooler bag and two ice packs to keep his wings frozen for more than 10-15 minutes, we used her lunch bag and frozen juice boxes.

We do a lot of medical role play before any procedure so that Jennifer is more comfortable with what’s going to happen. So we did it with Buzzy too. We discovered that she prefers the disposable wings because they’re not quite as cold, so I knew which set to take with us to the lab. She also likes to turn him on herself. Being a typical 3.5 year old, she did NOT want to have her blood drawn, and still panicked when it was actually time for the test, but she was able to calm down enough to turn Buzzy on and it did a good job distracting her during the blood draw. He also came with a kazoo, which would have been a great distracting tool if I’d remembered to bring it with us! I will definitely use him again when she has to have an IV for her MRI next week, and we’ll be using him with Micah (17 months old) for his routine blood work in two weeks. Both kids like the feeling he makes when he vibrates on their arm, it doesn’t scare them at all now that we’ve done it a few times. It spooked Micah the first time but then he liked it the next time we tried it.

Overall, I’d say Buzzy definitely helped, and I’m very happy Julia asked me to review this product for her! Jennifer gives him two thumbs up! She said it was the first time her poke didn’t really hurt (although she did complain about the band-aid afterward LOL).

——————————-

Thanks Sylvia! I also tested it out on my kids (enthusiastically) because they get a lot of labs. I think I added it up once (because I’m crazy) and they’ve had labs over 200 times? More? So we’re always looking for ways to help with the pain. The kids go in an out of being compliant. They go in and out of compliance and needing encouragement to need full-mama restraints and Buzzy did work! It worked for my girl  (“It really didn’t hurt! That is weird!” weird that it worked) and not completely for my boy. But he’s 11 and he was extra grumpy and he knew I wanted him to test it so he was being a tad difficult. We’re also 2 thumbs up here! Anything that helps!

~ Julia

Our community members can take advantage of a $5-off coupon for Buzzy by entering the coupon code “SFSNBUZZY5” at checkout. The code is effective immediately and expires September 30, 2010.

——————————-

What to win a Buzzy?  If you’re a community member leave tip you’ve found helpful or tell us why you want one!

Tips on using Buzzy

from the inventor of Buzzy, Amy Baxter, M.D.

Buzzy was developed with input from nurses and doctors to ensure that medical procedures wouldn’t be compromised, and feedback from healthcare workers has been overwhelmingly positive. When it’s time for shots or any other prickly procedure, let the nurse or technician know you’ll be using Buzzy. Explain that Buzzy will be turned on during the needle stick, but will be placed above the place where the needle goes, and won’t get in the way. Most importantly, at least from the standpoint of the person administering the shot, it won’t cause any delay: turn it on, and 10 seconds later the nurse can give the shot.

Be sure to watch one of our instructional videos on our website and familiarize yourself with Buzzy’s instructions so you’ll know exactly where to place Buzzy for optimal pain relief, depending on the type of procedure. Always remember that Buzzy is placed between the brain and the pain. You can find Buzzy instructional videos on YouTube or Vimeo.

Let your child have as many choices as possible, including choosing whether they press the switch or you do and whether to watch the shot or not (believe it or not, up to 25% of kids prefer to watch!). Buzzy stops sharp pain, but light touch sensations are transmitted on different nerves. If your child is scared and focuses intently on the shot, they will be able to feel the touching sensation of the needle, and may translate this as distress and fear even though the sharp pain is controlled.

Use distraction cards or other distraction techniques during the shot while Buzzy is still on or in place. You can use any of the distractions listed on www.buzzy4shots.com (blow out a puff of air, add numbers, do a task) or have them use the optional Bee-Stractors™ distraction cards (find a color, watch it move, answer an age-appropriate question).

For best results, let the child feel how the combination changes sensations beforehand by scratching the arm under the ice pack/vibration source. “See how cold this is, and see how now you can’t feel so much any more?” Seeing for themselves and agreeing with you helps the child feel in control.

One recent study even found a vibration source on the opposite arm from the shots along with the suggestion, “This may make your arm confused about what [is] sharp and what [is] not” effective as part of a multi-sensory distraction.

PT Tips on Task this Summer

July 8, 2010 in Insider Insight by Admin Dawn

Erin McFarlingWith summer upon us some of us have lighter PT schedules because of camps and vacations but that doesn’t mean we can’t help our kids reach their PT goals. We spoke with Physical Therapist Erin McFarling to get some tips on helping while still having fun this summer.

Can you provide us a few ideas how we can turn a normal activity into a (secret) therapy session?

At the park – Use the slide for dynamic sitting balance and once at the bottom have your child practice sit to stand rather than helping pull them up. Getting on the swings can help with the vestibular system. Use the monkey bars for upper extremity strength and coordination. Play tag to work on endurance and running activities. If there is a bridge that moves between structures practice jumping for higher level balance on a dynamic surface. Use the steps to the structures to practice walking on steps. If there is a sand box or woodchips practice walking on these alternate surfaces. If there is a steering wheel or tic tac toe game or something of the sort set up play these games to work on hand eye coordination and balance.

In the back yard (balls, riding, etc) – Practice kicking soccer ball in sitting and/or standing, batting beach ball back and forth, shooting basketball into goal or target – all of this can work on coordination, balance, motor planning and motor control. Ride bicycle around for reciprocal leg movement, range of motion and endurance. Draw a hopscotch course to practice jumping and balance.

Sprinkler (bubbles) – Go through the sprinkler in various positions such as walking forward, backward, sideways, or crawl over it. Bubbles can be used sitting or standing to pop work on leaning to right, left, forward and backwards for weight shifts and getting out of base of support. Popping bubbles can work for reaching as well.

Could you give us a couple of ideas of activities for each range of ability?

Learning to sit up – Practice first from lying on side and pushing up off of forearm while bringing legs down and in front. Then can progress to lying flat and learning to press up on both forearms and then up onto hands as bring trunk up. It is good to give some support/cuing initially and slowly give less and less support as child starts to succeed at this skill. You may hold a ball up in air and have them sit up to get it or another toy they may like

Learning to stand – Sit behind child with a surface in front of them they can enjoy, maybe a low table to do arts and crafts while you assist at their posterior hip and anterior knees to keep good hip and knee extension – making sure their knees are not locking out. May start initially on their knees to get hips into extension and once good at that move into full standing. It is always best to have good supportive shoes on during this. May also start with a surface they can lean against some such as the couch or a large stability ball. If you have a large drum or instrument to play this can make it fun as well.

Learning to walk – Place fun stickers or designs on the ground to step on to give good visual cuing for foot placement. Sometimes owning a small rolling stool is helpful so one parent can be in front helping child advance legs and second person can be behind patient helping them stand. Riding a bike followed by walking is sometimes successful due to getting legs working in a reciprocal pattern.

Learning to run – Start this activity in a safe environment that the child would feel okay if they fell or stumbled. Starting on concrete and getting a skinned knee may cause them to become scared of the activity. Sometimes it helps to have a person on each side holding childs forearm to help them start up the run so they feel secure. Mats that you can jump/run/walk on and hear noises always makes this activity more fun.

Learning to safely navigate the world (steps, curbs, playgrounds) – If being introduced to a new area always provide a little extra assistance to child to make it a positive experience. This is the best way to navigate new areas and to allow the child to continue to succeed and explore. Show the child how you would go up/down the curb or steps. And when helping child always stand slightly behind on way up and slightly in front on way down. Kids may also be good at bumping up and down stairs on bottom which may be a good technique as well.

Continuing PT for kids that have “graduated” their first goals of being ambulatory – Just continue to work on walking and staying busy. Getting the child off the couch or out of their chair and continuing to stand, walk, sit on balls, stand on uneven surfaces, kick the ball, throw the ball to keep working on overall balance, strength and endurance. If the child has tight muscles make sure to continue to stretch to keep them functioning. Keep using activities they like or fun games to stay involved.

Any ideas you can share to help us get through the hurdles of our kids wanting to do PT – either in home or with a therapist? Do reward systems work?

Making the activity feel like play rather than work is always very important. We like to use sticker systems, make a little chart of activities to work on daily just as you may do for chores and maybe have a larger reward at the end of the week if they get a certain number of stickers/stars. It is always good to have something to look forwards to, so maybe each sunday make a list of activities to work on each day and then an event on saturday if all activities are met like go to a movie, or go get ice cream etc. Some activities can be done with distractions like sitting on a stability ball while watching a cartoon or standing during TV show and sitting rest breaks during commercials. Music is always a great way to get motivated so find their favorite songs and make a “workout” CD to listen to while practicing standing, walking etc. Play dress up! This is a great way to work on ADL skils and fine motor mixed with gross motor. Try to incorporate therapy into play time, say lets play rather than lets do our therapy. Have child practice walking to something they really want for an immediate reward as well. While walking sing a song or make a beat to the steps.

Are there any toys you like that you’ve been using that you’d like to share with our readers?

Stability balls, toys that make noise or vibrate, stacking toys, puzzles, beach ball, soccer ball, balance disc, piano mat that makes noise when walking over it, mini trampoline, removable large stickers to place on floor, or the window ones, can decorate window and work on reaching! Therapy Shoppe has a lot of great ideas and maybe Sammons Preston as well.

BIOGRAPHY
Erin McFarling is a native of Atlanta, Georgia and went to The Paideia School. She left to attend college at the University of Pittsburgh and Graduate school at the University of Miami to become a Doctor of Physical Therapy. Erin has recently returned to Atlanta to be close to her family and works as a Pediatric Physical Therapist of Children’s Healthcare of Atlanta-Scottish Rite in the Comprehensive Inpatient Rehabilitation Unit. Erin works with children from 0-21 with a wide array of injuries and/or diseases both acute and chronic including brain injuries, spinal cord injuries, cerebral palsy, multi complex traumas, developmental disabilities, neurological disorders and orthaepdics/amputations to name a few. Erin is also a Certified Pilates Instructor through Polestar Pilates and teaches clients at About Movement Pilates in Decatur. In her free time Erin enjoys spending time with her family, friends and her two dogs Miller and Molli.

Stuck with feeding? Strategies for breaking free

May 28, 2010 in Ask the Feeding Specialist, Insider Insight, Latest Articles by Katja Rowell MD

Abby and her speech therapist were making major gains. She had mastered feeding herself, clapping and grinning, clearly proud of her accomplishments. Problem is, it all fell apart when Abby left her therapy center. Her parents tried bribes, rewards and begging, but Abby would simply refuse to eat unless she was nestled in Mom’s lap and spoon-fed.

Six-year-old Abby had been medically fragile, overcoming heart surgery and oral motor concerns. Mom had done a great job supporting and feeding her daughter over the years, but now at age six, the feeding practices that served them well were holding Abby back.

What can you do if you suspect you are stuck with feeding?

  • •  Utilize the team, bring in the latest information you are working from. Perhaps the advice from two months ago is no longer appropriate.
  • •  Find out if your child has adequate nutritional reserves to handle changes in feeding.
  • •  When appropriate, optimize feeding on a schedule, work on family meals. This will be the framework that will help Abby’s parents feel secure moving forward.
  • •  Explore your fears. Is it hard to let go of your notion of your child as medically fragile or incapable of feeding herself? Are you worried about a feeding tube? Voice your fears to the team. Believe them if they reassure you. (This assumes you have a good working relationship.)
  • •  Do you believe that if you pressure or push your child to eat more that they will grow better? Has this worked? Ask your feeding team to explain why pressure with feeding often backfires. (Studies show that overall, children who are pressured to eat do less well with eating and grow more slowly.)
  • •  Make sure that all care-givers involved are on the same page with any upcoming feeding changes. If Dad refuses to feed Abby, but Mom caves in, things won’t change.
  • •  Find a behaviorist or feeding specialist to work with. Get specific about how you are feeding. Are you eating with your child? Are you minimizing distractions? What kind of chair are you using? Is there a footrest, or soft belts to help center and focus your child? Bring in your utensils and plates. Sometimes having the right fork can make a huge difference.
  • •  What are you getting from feeding? Perhaps Abby and her mom get special cuddle time during meals? Explore, find other ways to connect, maybe keep the rituals if there is no harm, but be honest about your motivation. (My own daughter was not cuddly, so I held on to that last nighttime bottle longer than I “should” have, but there was no harm to her eating or health, and I needed that cuddle time! Eventually it became clear that it was time to give up the bottle and we did.)
  • •  Use your discipline techniques that work to enforce and teach behavior at the table. Be calm. Discipline behavior and not what or how much the child is eating. Ask the team or other parents for some ideas on this.
  • •  Center yourself before a meal. Food, nourishment, the “threat” of a “failure to thrive diagnosis,” and behavior challenges can all combine to make mealtime a high-stress, high-anxiety experience. Your child will pick up on this. Sit down, take a few deep breaths. Try to be pleasant and calm.
  • •  Have a game plan for making changes. Some thoughts for Abby who has the understanding and skills to work on change:
  • •  Start with breakfast (you know more snacks and meals are coming.) Be calm but firm with expectations. Do not feed Abby.
  • •  Be very reliable about offering balanced foods, with a mix of finger foods and spoon foods every 3-4 hours.
  • •  Get support. Check in with your team. If intake truly is a concern and she eats well for others in the care team, consider sharing duties during the transition.
  • •  Watch for small victories, but celebrate them in your head. Some kids view any praise or reward as pressure and will back off. Tailor your approach to what works with your child.
  • •  If positive reward works well, go for it. For Abby, all the offers of stickers and cheering may have slowed things down. Having the calm expectation of mastery might help.
  • •  Don’t focus on who is eating what. Talk to Dad or Big Sis. Abby might just pick up that spoon when no one is looking.
  • •  Give the new plan at least three days and longer if Abby has the nutritional reserve! Many parents lose their nerve about twenty minutes into a meal…
  • •  Understand normal growth and development (See chapter 2 of Child of Mine online at www.ellynsatter.com) so that you know it’s normal to eat small amounts some meals, and larger amounts at others. Allow children the time and space to learn to tune in to hungry and full if they are able. (Children with pain, or other underlying medical issues may have a harder time with this.)

Foster Good Behavior

May 21, 2010 in Ask the Behaviorist, Featured, Insider Insight, Latest Articles by Dr. Tiffany Showalter

When you teach a child how to modify their own behavior you are fostering self-respect and respect for others. You are also instilling in them a sense of responsibility and teaching them the importance of rules and consequences.

“What are some ways to prevent behaviors before they occur?”

Reduce distractions: Ever heard of the “out of sight, out of mind” idea. If you don’t want to deal with a tantrum or fight with other children, put things away. Great ways to do this are using curtains, cupboards, and even bins to put toys in or behind when not in use.

Use a schedule: Many children have difficulty understanding the difference between work and play. A visual schedule can designate the work activities are required before receiving a reward or play activity. I like to use “first/then” visual schedules. You can make one on the computer or create a simple one on a dry erase board. The key is to consistently use it and reinforce the appropriate behavior immediately. Draw a line down the center and label one side First and the other Then. Next, draw or make a picture to show what it is you want the child to do and what they will receive for doing it. For example, On the “first” side, I might have a picture of a child brushing her teeth. On the “then” side, I would have the child reading a book with the parent. First you brush your teeth, then we can read a book. The child would not get the book until they brush his/her teeth.

Hand over hand help: If a child can not complete an activity after you give him/her an opportunity to do so, try taking the child’s hand in yours and help him/her successfully complete the task. Always provide your child with the opportunity before offering help and if help is needed still give your child praise for completing the task.

Model appropriate behavior: Children are always watching others and modeling their behavior. If you don’t believe me, ask your child’s teacher about all the funny things your child has repeated from home. When you play a game, with your child take turns. Create opportunities for you to share with your child. Teach your child to count, sing a quiet song, or say the alphabet when they are angry, and try to remember to do this yourself in front of your child. If you are screaming in traffic when your child is in the car with you, how do you think he/she are going to react the next time he/she is frustrated.

Use a behavioral chart: Create a reward system and let your child track his/her progress. I have a stop light on my fridge at home. Each new day my daughter starts on green. She gets one warning before I make her move her name to yellow. She gets one more warning before going to red. Red means she goes straight to time out and loses a preferential toy for the rest of the day. However, if she is on green at bed time, she chooses a toy from her toy chest. The chest may have stickers, candy, small toys, etc. The dollar section at discount stores works great. She can also earn her way back up to green should she falter for going above good behavior. For example, clearing her plate and placing it in the sink without being asked. Rewards do not always have to be tangible either. The treasure chest also holds a ticket for me to play a game of her choice, read an extra night time book, or a trip to the park.

Give choices: When you give a child a choice, you make them feel like they have more control. You provide the choices, but let them make the decision. For example, you need to change into your pajamas, brush your teeth, and kiss Daddy “goodnight”. Which would you like to do first.

Rules: Establish simple clear rules. Provide a visual reminder if needed.

“I tried these Tiffany, and they aren’t working!”

Be firm: Children can be so cute when they are being naughty. It’s hard, but do not smile or laugh as this can send a mixed message. Use a stern voice when saying “no” and do not keep repeating it. If you have said “no” three times, it is time to follow through with the consequence. It is important for children to understand the difference between acceptable and unacceptable behavior.

Be clear: Before saying “no”, remind the child of the consequence if the behavior continues. For example, “If you do not clean up your toys when you are finished, then the toys are going to be put away.”

Be consistent: Consistency is key! Let me say that again…consistency is key and do not think for a minute that your child won’t test you o this one. If we tell a child we are going to do something, and do not follow through, then we haven’t given that child a good reason to stop the behavior. You can be sure, it will continue! It may take a little time for change to be evident when working on behavior, but keep in mind that we may be changing behaviors that have previously been reinforced by ourselves or others.

Withhold contact: Have you ever heard of, “there is no such thing as bad press”. The same goes for attention. Children will sometimes act up just for the attention they receive from adults. They will take cues from the physical, emotional, and physical reactions of adults and then determine whether they will continue or cease the behavior. Make eye contact when telling the child “no”. However during a tantrum, ignoring the behavior often works the best if they are not being injurious. You may re-establish eye contact, hugging, and tickling when appropriate behavior is shown.

Time-out: establish somewhere in your home where the child will stay once the tantrum is over. A timer is great for giving a visual reminder and audio cue. If the child leaves the area, re-start to timer. Be aware that some children try to make a game out of this. I have even had to establish time out zones in the homes of family and friends. This goes back to consistency. Behavior is unacceptable in a variety of environments and time out doesn’t go away because we are somewhere else.
In a perfect world, you want to teach your child haw to control his/her own behavior. Every child is different, though, so certain techniques work better with some children than others. This can even be different between siblings. If you think your child’s behaviors are abnormal, self-injurious, or injurious to others, you should consult your physician or therapist. You need to find what works for you and your child. Just reminder to keep cool and be consistent!

Disclaimer: I hope you enjoyed reading this article. Please remember you are reading this information of your own free will and are taking the information at your own risk. The author is the legal copyright holder of this material it may not be used, reprinted, or published without my written consent. This information is for entertainment and informational purposes only and is not intended to provide or circumvent medical, legal or other professional advice.

%d bloggers like this: