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Paralyzed man gives disabled kids hope through yoga

October 28, 2010 in Special Needs News by Admin Dawn

“My name is Matt. My legs are a little skinnier than many,” admits Matthew Sanford, a complete stranger to the wide-eyed youngsters in wheelchairs and hospital beds assembled in the auditorium of Chicago’s Shriners Hospitals for Children.

The young onlookers, all with disabilities, know nothing about the yoga this 45-year-old’s about to teach them. What they know — instantly — is that Sanford is one of them because he’s instructing from a wheelchair.

Affectionately calling his audience his “tribe,” Sanford guides his wheelchair to each patient to thoughtfully inquire about his or her disability (“What’s going on?” “What have you been told?”).

via Paralyzed man gives disabled kids hope through yoga :: CHICAGO SUN-TIMES :: Mind and Body.

Beauty Queen’s Focus: Ability, Not Disability

October 27, 2010 in Special Needs News by Admin Dawn

A daughter of a pig farmer, Abbey Curran has made the journey from farm girl to Miss Iowa 2008 with all the elements of a fairy tale.

Curran focused on a specific part of that storyline for students in District 204 on Wednesday morning. The St. Ambrose University senior, who was born with cerebral palsy, shared her story with about 75 Metea Valley High School special-needs students.

Curran told students she never expected to win the Miss Iowa pageant. The Kewanee, Ill., native entered the competition because she wanted “something awesome to tell my grandkids.”

But Curran almost didn’t compete. She feared she might fall during the competition because of her cerebral palsy. Even with an escort, she was concerned with the appearance of her walking.

“The point I’m trying to get to you is I almost didn’t get to live my dream because of the way I walk,” she said. “Anything is possible.”

Read more here: Beauty Queen’s Focus: Ability, Not Disability – Naperville, IL Patch.

Most special-needs children require lifelong support services

October 25, 2010 in Special Needs News by Admin Dawn

Each time the military reassigned Tom Connell — to California, Texas, New York, Ohio — he and wife Linda began anew the search for services for their special-needs son, Devon.

The couple made Washington Twp. their home after Connell’s retirement 15 years ago, because of the services available to the family through the Montgomery County Board of Developmental Disability Services.

“My career moves, to a great degree, were predicated by services that were available to Devon,” Tom Connell said. “It’s not like we only looked one place. We moved every three years.”

Montgomery County Developmental Disability Services, in 2009, served nearly 3,000 children and adults with mental retardation or other significant developmental disability. Most will require lifelong support services.

Read more here: Most special-needs children require lifelong support services.

This Week Around the Community

October 22, 2010 in Around the Site by Admin Dawn

Welcome to new members!

Becca: “Mom to incredible six year old triplets. One of whom happens to have PVL, mild cp, microcephaly, bilateral hearing loss, vision impairment, is nonverbal, and has an amazing ability to make you smile and laugh just when you need it the most. I am also an SLP in the schools and strive on a daily basis to provide the best programming possible for all students. I am so lucky to have had the opportunity to watch many students find “their voice” and it is amazing to hear all they have to say.”

Tzvi Schectman: “My Name is Tzvi Schectman. I work at an organization called Friendship Circle (Chapter located in Michigan. Friendship Circle provides assistance and support to the families of children with special needs as well as to individuals and families struggling with addiction, isolation, and other crises.” (We are so happy to have Tzvi here! Friendship Circle was the very first organization we wrote about on the site — we are such big fans!)

What’s happening around the site

Remember that our Book Club is reading Now I See the Moon! Barb will be scheduling the chat soon!

Speaking of Barb, she’s looking for book recommendations for more book club reads. Have a suggestion? Let her know here! And she’s collecting links to faith-related resources in the Faith & Disability Group. There’s an impressive list so far!

Please please please go give Andy some hugs. She needs to have a much better week next week!!!

While you’re at it, Jo-ann is struggling. Check out her new blog site here and offer your support on this tough entry.

Mental health meds and puberty? Julia is asking in the Mental Illness/Moods Disorder Group and wants to hear from parents who know about tweaking meds as kids hit their hormonal surge.

Thanks to the good folks at Dino Cave Kids who are lending a hand (and some much welcomed insight) over in the Speech and Hearing Delays forum!

Believe it or not calm mornings are not an oxymoron! Check out these tips on the Celebrate Calm group. Be sure to visit Kirk’s group at Celebrate Calm to check out his blog radio program and his speaking schedule. You want to see him in person if he’s coming to your town!

Jolene is sharing 7 Common Myths of child mental health over at her blog, please check it out!

Also Julia is putting together her Walk for PKD team at her blog. By the way, remember you can add events to group calendars — let us know about your local fundraisers and events!

We’re happy to announce all the companies that our making our wishes come true by helping us bring gifts to you, our community. Check out the companies partnering with us for our The Great Big Wish List Giveaway and start checking out our hints about the promotion for mid-November through the end of November…nearly two weeks telling you about wish list gifts then giving you a chance to win them! Thanks to all of our great partners!

Thanks to all of you that are in the community…we are absolutely thrilled you are here!

Eradicating use of the ‘R’ word is Fairfax woman’s top priority

October 20, 2010 in Special Needs News by Admin Dawn

Even though the organization’s mission is to assist and advocate for people with intellectual and developmental disabilities, some in The Arc of Northern Virginia were taken aback when Executive Director Nancy Mercer wanted to bring on Jill Egle as co-executive director.

“They weren’t used to thinking about someone with an intellectual disability in a leadership role,” Mercer said. But she recognized leadership abilities in Egle, who originally joined the Arc staff as an administrative assistant.

“It’s amazing what this nonprofit has done for me,” Egle said of The Arc, while dabbing tears away.

Read more here: Eradicating use of the ‘R’ word is Fairfax woman’s top priority.

Budget Shortfall Forces Big Cuts for Disabled

October 20, 2010 in Special Needs News by Admin Dawn

Barbara Cullison waited eight years and eight months to get community-based care for her profoundly autistic daughter Audrey through a popular Medicaid waiver program designed to keep people with disabilities out of institutions. Now, Audrey and thousands of other Texans with disabilities fear losing their services because of budget cuts demanded of state agencies.

Advocates say the Department of Aging and Disability Services’ baseline budget request eliminates financing for more than 13,000 people — the majority of them waiting to receive so-called Medicaid waiver services in private homes, group homes or other community settings. Agency officials say an “unknown number” of people already receiving the services could lose them.

Read more here: Budget Shortfall Forces Big Cuts for Disabled — Aging and Disability Services | The Texas Tribune.

Coping with Prader-Willi Syndrome

October 19, 2010 in Special Needs News by Admin Dawn

Lily Tippett’s mother, Julie Tippett, 40, knew something was wrong before her daughter Lily, now 13, stopped growing 32 weeks into Tippett’s pregnancy.

Lily never moved while in the womb.

When she was born, Lily was unresponsive to Apgar tests, the standard tests given to newborns to determine physical condition at birth.

“You’d pick up her arm, and it would fall dead,” said Julie Tippett.

For two weeks, while Lily lay in the neonatal intensive care unit, the doctors told Tippett they didn’t know what was wrong.

It took 18 months for doctors to find an answer.

Genetic testing finally revealed Lily had Prader-Willi syndrome (PWS), a genetic disorder that affects the “hypothalamus part of their brain, which normally registers feelings of hunger and satiety,” according to the Prader-Willi Syndrome Association (USA) website.

Read more here: Coping with ‘starving’ disability.

2010 Media Access Awards sees smallscreen leading way for actors with disabilities

October 18, 2010 in Special Needs News by Admin Dawn

On Friday, October 8, Monsters and Critics attended the 2010 Media Access Awards press breakfast, where notable actors, casting agents, producers and showrunners’ exemplary work was honored at The Peninsula Hotel in Beverly Hills.

The event was hosted by KCBS-TV news anchor Pat Harvey, and was concluded with AMC’s “Breaking Bad” star R.J. Mitte (Walt Jr.), who flew in from Portland, Oregon for the ceremony to present his special award to Atticus Shafer.

SAG National Performers with Disabilities (PWD) Committee and SAG Affirmative Action & Diversity, along with the Christopher and Dana Reeve Foundation, AFTRA, CSA, PGA, WGAW, Friends of Californians with Disabilities, the Governor’s Committee on Employment of People with Disabilities and the RJ Mitte Diversity Award, come together to honor industry professionals “for promoting awareness of the disability experience, accessibility for people with disabilities and the accurate depiction of characters with disabilities.”

Read more here: 2010 Media Access Awards sees smallscreen leading way for actors, list of honorees – Monsters and Critics.

Penn State embraces ‘Diversability’

October 13, 2010 in Special Needs News by Admin Dawn

An estimated 1,851,000 people in Pennsylvania — or 16.5 percent of the population age 5 and older — have a disability, according to the Center for Personal Assistance Services, individuals with disabilities come from every background, socio-economic status, gender and age.

October is the kickoff month for year-round programs across the country that highlight the abilities and skills of all Americans. In Centre County, the theme of the month is “Diversability,” which emphasizes the varying abilities and talents of people with disabilities.

Penn State faculty, staff and students as well as local school and community members from areas throughout the county are invited and encouraged to attend these events.

The intent of the “Diversability” events is to provide an opportunity for individuals to discuss and explore questions about accessibility, equality and inclusion for people with disabilities in their communities, including work, school, home and recreation.

Read more here: Penn State embraces ‘Diversability’ – Community | Centre Daily Times – State College, PA | Penn State, Nittany Lions, weather, news, jobs, homes, apartments, real estate.

Integrated care causes concern among disability advocates

October 12, 2010 in Special Needs News by Admin Dawn

llinois is moving forward with a new integrated care program that could save the state $200 million over five years, but disability rights activists say they are worried about the future of their health care.

Insurers Aetna Inc. and Centene-IlliniCare have received five-year contracts for $450 million annually to manage the care of nearly 40,000 Medicaid patients in a six-county program set to begin in January. All of the patients’ medical services will be handled by one HMO, limiting the redundancy and overhead of the current system, while focusing on prevention and improving overall patient health.

“You hire people to stay in touch with patients—to monitor their illnesses and try to catch things before they go to the hospital,” said Margie Schaps, executive director of the Health and Medicine Policy Research Group in Chicago. “It’s a whole different model of care.”

Read more here: Integrated care causes concern among disability advocates.

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