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The puzzle of learning disabilities

December 10, 2010 in Insider Insight by Admin Dawn

by Jill Lauren

To be learning disabled – meaning that a person is of average to above average intelligence with a processing deficit that makes learning challenging – is tremendously puzzling. How can one be smart, yet have trouble learning in school? This conundrum has perplexed many, including myself when I began to study various aspects of learning. In fact, I sat in a class about learning disabilities at Northwestern University for almost an entire semester without truly understanding the syndrome until a classmate explained it to me. I remember that moment clearly because I found the paradoxical nature of learning disabilities fascinating and decided to pursue a career as a special education teacher.

Kids want answers, too

When I started teaching, it was no surprise to me when my learning disabled students explained that they were completely confused by why they needed extra academic support; after all, their parents and teachers were often telling them how smart they were. Soon I realized that not only did I need to teach specific skills, but I also needed to educate my students as to what a learning disability actually was. Typically, I found that my students started questioning their academic capabilities around third grade. Prior to that time, coming to the resource room and getting stickers was reason enough to be there! By third grade, kids are more aware of who they are, in relation to their peers, and want answers.

One afternoon, I took a student named Margaret out for ice cream because though she was typically a happy child, she was becoming increasingly concerned and saddened about her academic challenges. When I asked her, “Why do you think school is hard?” she responded, “Because my parents said I have a learning disability.” I was completely surprised that she knew this term. Then I asked, “What’s a learning disability?” Her answer, “I don’t know, my parents didn’t tell me that,” helped me to fully recognize my responsibility to find a way to make the mystery of LD understandable to a third grader. I reached for the one aspect I felt could make the concept real: role models. Back in the 1980s, Tom Cruise, Cher and Bruce Jenner topped the list of success stories of people with learning disabilities. As I explained what I knew of each person, Margaret’s eyes lit up. There were other people out there like her – and they were not only successful, but also famous. My explanation completely legitimized her experience and gave her a sense of hope. She also felt proud to be just like Tom, Cher and Bruce such that she suggested to me, “There should be a book for kids like me about people with learning disabilities.” I promised Margaret I’d find that book. When I couldn’t find it, I decided to write it.

Sharing our stories is a gift to our kids

My first book, Succeeding with LD, was written in 1997, and it was dedicated to Margaret. It contained twenty-two profiles of regular folks, children and adults, with learning disabilities. I was uncomfortable profiling famous people, as I was concerned that most kids would not believe that they could really be like them. Years later, Rick Lavoie confirmed that suspicion when he shared an anecdote about a teenager who told him, “I have pimples and a big nose. What do I have in common with Tom Cruise?” Of course, when public figures share their learning challenges, it is a gift to kids. For the purposes of a book, however, I wanted students to be able to hold a book in their hands that contained at least one person with whom they could truly relate. Succeeding with LD was recently reprinted in a third edition that contains updated profiles of twenty-one of the original stories.

Last year, my publisher asked me to write a new book for younger children with learning disabilities that also profiled success stories. That’s Like Me! contains fifteen new profiles and includes a foreword by Caldecott winner Jerry Pinkney, who is also dyslexic. It is a full-colored picture book and was honored by the New York Branch of the International Dyslexia Association with the Margot Marek Award for the “most outstanding book written for adults or children with dyslexia or related learning disabilities.” I shared this award with the thirty-seven people who so courageously told their stories in both of my books in order to comfort and inspire others. I am completely honored and humbled to have been given the opportunity to bring such honest and heart-warming stories to people with learning disabilities. Many of the people in the books have become dear friends. They join me on panels to discuss various ways that people with LD can pursue their own dreams, like they did.

And where is Margaret these days? After being told by an advisor that she should not go to college, but should instead pursue a career in retail, she obtained a Masters in Social Work from Columbia University after years of grueling study. Margaret also joins me on panels, as she is now a role model herself. We often reflect on the conversation we had when Margaret was in third grade, the impact of which led to the creation of two books and have comforted so many people with learning disabilities.

Jill Lauren has a B.S. and M.A. in Learning Disabilities from Northwestern University. She has been teaching LD students of all ages for over twenty-five years. Known as an expert in the area of reading and writing, Jill has trained teachers around the country to utilize a variety of structured, multi-sensory approaches to the instruction of reading and written language. Jill has also worked with various schools to implement successful reading programs.

Special needs met in a special place

November 4, 2010 in Special Needs News by Admin Dawn

Several decades ago, five lots of city land on McKercher Drive were donated to the Presbyterian Church in Canada by the McKercher family, long-time members of St. Andrew’s Presbyterian Church. A plan was eventually put together to develop a ministry in the College Park area and McKercher Drive Presbyterian Church was established. The congregation grew to several hundred with a thriving Sunday School and three Sunday services.

However, the dynamics changed over the years. People moved away; members aged. Last year the decision was made to amalgamate with St. Andrew’s Presbyterian and sell the building on McKercher Drive.

The church facility was sold to Light of the Prairies, an organization that works with mentally challenged individuals and provides specific programming for those with complex needs.

via Special needs met in a special place.

Down syndrome aside, he’s ‘just a typical student’

November 3, 2010 in Special Needs News by Admin Dawn

Christopher Hunnicutt slowly made his way across the Kennesaw State University campus from his music appreciation class to the student center, waving and smiling to everyone he encountered.

“Hey, I’m Chris,” he said with a raspy voice and big grin to a taller but younger student also going his way. Christopher extended his hand for a solid handshake. “Glad to know you, Chris,” the other student replied. They chatted along the way as Chris exchanged more waves and smiles to dozens of students walking past.

Some engaged the stocky young man in pleasant conversation: “Hey man, how’re ya doin’? How’re your classes?” Others simply responded with an encouraging smile. Students or staff, it made no difference. Christopher wanted to meet everyone as he basked in his college experience. He was beyond ecstatic just to be on campus; thrilled to be, in his words, “just a typical student.”

It’s impossible not to smile when meeting Christopher Hunnicutt. The other students might not know who he is unless they shared a class, but they know at first glance that there’s something different about him.

via Baptist Press – Down syndrome aside, he’s ‘just a typical student’ – News with a Christian Perspective.

It’s Time To End Insurance Discrimination Against People With Autism

October 29, 2010 in Special Needs News by Admin Dawn

I think a lot of us assume that “regular” people can’t really make an impact anymore. The idea of “grassroots movements” can sometimes be written off as idealistic, impotent or inconsequential. That’s why I want to shine a light on an incredible effort going on right now – led by some remarkable, passionate parents — to end a terrible form of discrimination against people with autism. It’s something we can all be a part of, without much effort.

I’ve blogged before about how insanely expensive it is to treat a child with autism — intensive, one-on-one therapies can cost tens of thousands of dollars every year. That’s obviously beyond the means of most families affected by the fastest growing disorder in America, which is why there are a lot of moms and dads out there — as well as siblings — making incredible sacrifices so that their loved ones can get the therapies they desperately need. Families are taking out second mortgages and emptying out savings accounts and college funds. They’re going broke.

Read more here: Holly Robinson Peete: It’s Time… To End Insurance Discrimination Against People With Autism.

Autism awareness still lacking at universities

October 26, 2010 in Special Needs News by Admin Dawn

If you ask people what autism is, chances are you will get a different response every time. The Autism Society of America states that it is a developmental disorder that appears within the first three years of life and affects the brain’s normal development of social and communication skills. No two people exhibit the same characteristics, which explains why it is called autism spectrum disorder.

The prevalence of autism spectrum disorder is on the rise, reaching one in 110 births according to the Autism Society. This shows that the problem increasingly needs to be addressed at all levels of society and especially in schools and colleges.

Many universities are already beginning to rethink their current support programs. The vast majority of the students on the spectrum admitted to universities have been diagnosed with Asperger’s Syndrome (AS), the highest-functioning form of autism. Typically, these students have average to above average IQs with deficits in three main areas: communication, social relationships and behavioral/emotional intelligence. They are exceedingly literal people, have difficulty understanding facial expressions and usually have trouble maintaining eye contact. Initiating conversations is generally a scary prospect for them.

The few autism support programs that exist at TU today still require these students to use what little self-advocacy they possess to inform their professors of their diagnosis. Students with AS can often dread holding this conversation and, not surprisingly, most never follow through.

Read more here: The Collegian Online: Autism awareness still lacking at schools.

More Intellectually Disabled Youths Go To College

October 25, 2010 in Special Needs News by Admin Dawn

Zach Neff is all high-fives as he walks through his college campus in western Missouri. The 27-year-old with Down syndrome hugs most everybody, repeatedly. He tells teachers he loves them.

“I told Zach we are putting him on a hug diet — one to say hello and one to say goodbye,” said Joyce Downing, who helped start a new program at the University of Central Missouri that serves students with disabilities.

The hope is that polishing up on social skills, like cutting back on the hugs, living in residence halls and going to classes with non-disabled classmates will help students like Neff be more independent and get better jobs.

In years past, college life was largely off-limits for students with such disabilities, but that’s no longer the case. Students with Down syndrome, autism and other conditions that can result in intellectual disabilities are leaving high school more academically prepared than ever and ready for the next step: college.

Read more here: More Intellectually Disabled Youths Go To College : NPR.

Penn State embraces ‘Diversability’

October 13, 2010 in Special Needs News by Admin Dawn

An estimated 1,851,000 people in Pennsylvania — or 16.5 percent of the population age 5 and older — have a disability, according to the Center for Personal Assistance Services, individuals with disabilities come from every background, socio-economic status, gender and age.

October is the kickoff month for year-round programs across the country that highlight the abilities and skills of all Americans. In Centre County, the theme of the month is “Diversability,” which emphasizes the varying abilities and talents of people with disabilities.

Penn State faculty, staff and students as well as local school and community members from areas throughout the county are invited and encouraged to attend these events.

The intent of the “Diversability” events is to provide an opportunity for individuals to discuss and explore questions about accessibility, equality and inclusion for people with disabilities in their communities, including work, school, home and recreation.

Read more here: Penn State embraces ‘Diversability’ – Community | Centre Daily Times – State College, PA | Penn State, Nittany Lions, weather, news, jobs, homes, apartments, real estate.

First Autistic Presidential Appointee Speaks Out

October 12, 2010 in Special Needs News by Admin Dawn

When Ari Ne’eman walked onstage at a college campus in Pennsylvania in June, he looked like a handsome young rabbi presiding over the bar mitzvah of a young Talmudic scholar.

In truth, Ne’eman was facilitating a different kind of coming-of-age ceremony. Beckoning a group of teenagers to walk through a gateway symbolizing their transition into adult life, he said, “I welcome you as members of the autistic community.” The setting was an annual gathering called Autreat, organized by an autistic self-help group called Autism Network International.

Ne’eman’s deliberate use of the phrase “the autistic community” was more subversive than it sounds. The notion that autistic people — often portrayed in the media as pitiable loners — would not only wear their diagnosis proudly, but want to make common cause with other autistic people, is still a radical one. Imagine a world in which most public discussion of homosexuality was devoted to finding a cure for it, rather than on the need to address the social injustices that prevent gay people from living happier lives. Though the metaphor is far from exact (for example, gay people obviously don’t face the impairments that many autistic people do), that’s the kind of world that autistic people live in.

Now, as the first openly autistic White House appointee in history — and one of the youngest at age 22 — Ne’eman is determined to change that.

Read more here: Exclusive: First Autistic Presidential Appointee Speaks Out | Wired Science | Wired.com.

Child Mental Health Rally in Richmond

October 11, 2010 in Special Needs News by Admin Dawn

Parents, caregivers and doctors are pushing for sweeping reforms to Virginia’s mental health system – changes, they say, that could save lives.

Tuesday, members of a coalition of non-profits rallied outside the Capitol Building in Richmond. During the event, Alex Slusher held up a picture of her son, Stuart.

“This is what depression looks like,” she said.

Last year, as he was beginning to fill out college applications, Stuart committed suicide. His mother had tried to get him help, but they were told the waiting list to see a counselor was months long. Now, she’s among those pushing for more services to help children with mental illness.

“We need to do something about it before it’s beyond our control,” she said.

One out of every five children in the United States suffers from a mental illness. Folks at the rally claim services in Virginia are woefully inadequate.

Read more here: Child Mental Health Rally – NBC29.

The Real Story Behind Autism Patient ‘Donald T.’

October 1, 2010 in Special Needs News by Admin Dawn

John Donvan and Caren Zucker have written a beautiful article for The Atlantic, entitled, “Autism’s First Child”, accompanied by a video packet that ran on Good Morning America and followed by a lengthy interview on NPR, about the first patient ever diagnosed with autism, Donald Triplett. These reporters share how they searched and found this man who had been lost to history, and share with the world what a successful life he turned out to have.

Donald was raised in a small town, by parents who stuck by him despite the recommendation of professionals to institutionalize him, and alongside neighbors who loved, accepted and supported him. He went to college, joined a fraternity, worked at a bank, drives a car and plays golf. It is a story that, as a mother of an eight-year-old boy with autism, gives me hope.

But the problem is that it wasn’t the whole story, or the most newsworthy part of the story.

Read more here: The Real Story Behind Autism Patient ‘Donald T.’ – Big Journalism.

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