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Autism Awareness Month: If I only knew…

April 25, 2011 in Featured by Jennifer King

It’s April. Autism Awareness Month, and the month is almost over. As the mother of a seven (almost 8 year old son) on the spectrum, I felt like I should say something. In fact it’s been weighing on me greatly, just what I should say.

The truth is I have written and re-written this post what feels like a million times and was never happy with it. I wanted to say something, but I’m no expert of any kind. I’m just a mom, not even one of those Autism Warrior Moms you hear tell about. I’m just an ordinary mom of two regular type kids, one of whom happens to have autism.

So then I started over from scratch. I thought, if there was one thing I wish someone could have told me about autism before my son was diagnosed, what would it be?

So here goes…

There is a saying you may or may not have heard, ”If you’ve met one person with autism, you’ve met one person with autism.” It’s seems sort of obvious doesn’t it? Not all typical people are exactly the same, why would those with autism be. But it’s a truth that I think many people don’t fully grasp. Before my son was diagnosed, I didn’t get it. Not at all.

I thought I knew a fair amount about autism. I’d read a couple of books. I’d met a handful of people who’d been diagnosed with it. I knew about Temple Grandin from when I was taking animal husbandry courses in jr. high and high school.

But the truth is the image I had in my mind was a very stereotyped one, and it was an image that did not match up with my son. Even when family members suggested I look into it, I just couldn’t see it. I did mention it to the pediatrician who didn’t see it either. She saw some delays, as did I, but not autism. If I’d known, I mean really known? I don’t think I would have left it at that.

I’d wish I’d known that kids with autism can be goofy, and silly and giggly and cuddly. I wish I’d known just how smart and talented and loving and amazing children with autism can be.

I wish I’d known all that, I mean really known that, when Max was little and first showing the signs. Would an earlier diagnosis have made much of a difference for him? It’s hard to say, but at least I would have known I had done my best for him from the start.

I would have understood why he struggled with things that other children seemed to sail through. I like to think I would have been more patient with him. A lot more patient.

And maybe… just maybe… I wouldn’t have felt so alone.

Because there are so many of us. Not just parents of children with autism, but all of us parents of children with special needs, children who struggle to fit in a world not made for them. We are not alone.

We don’t have to be.

Community member Jenny who blogs as Jittery PlanetSingle mom to two boys, one with autism and one neurotypical, starting over again smack dab in the middle Minnesota.

Making videos instructional rather than mind numbing

January 17, 2011 in Ask the Occupational Therapist, Featured, Insider Insight by Dr. Tiffany Showalter

By: Dr. Tiffany G. Showalter, OTD, OTR/L

Have you ever noticed how many children with autism absolutely love watching videos? They can be heard reciting dialogue or even observed imitating behaviors long after the experience is over. This ability makes sense as it has been suggested that individuals with autism see things in “pictures”. I recently had a parent report that her child has motor planning issues when it comes to participation in gross and fine motor tasks, but has learned every dance that they do on Sesame Street. Wouldn’t it be a great idea if we could teach children using what they love the most?

Maybe we can! Video modeling is a teaching method used to develop and strengthen a variety of skills from communication to self-help. The targeted behaviors that the child is to learn are videotaped as a neuro-typical child performs them. Next, the child watches the video and is given the chance to memorize, imitate, and generalize those behaviors.

Some examples include computer animated learning or video instruction. I recently attended an Autism conference in my area where I participated in a session on this incredible method of instruction and was doubly excited to learn the incredible amount of research supporting it. My session described how researchers at a local state university were using IPODs to video tape and then show to children with difficulties in a variety of areas. Their success was remarkable and has inspired me to consider writing a mini grant proposal at the school where I work to try it out myself. I have also learned u-tube has a ton of videos already available for use.

I also attended a session on using video instruction to teach printing upper and lowercase letters. After watching the videos myself I have been hooked and using them since with great results for children regardless of disability.

So the next time your child demonstrates a problem with using good manners at the table, washing their hands, or tying their shoes, why not try video modeling?

Disclaimer: I hope you enjoyed reading this article. Please remember you are reading this information of your own free will and are taking the information at your own risk. The author is the legal copyright holder of this material it may not be used, reprinted, or published without my written consent. This information is for entertainment and informational purposes only and is not intended to provide or circumvent medical, legal or other professional advice.

7 Easy Ways to Help a Family Diagnosed With Autism

August 19, 2010 in Special Needs News by Admin Dawn

We’ve all heard the news: one in 91 children are now being diagnosed with autism in the United States alone. This is staggering. Today, almost everyone knows someone with autism. And yet, with all the talk about cures, causes and concerns, there is rarely any information on how we can support a family with this diagnosis. All too often, because folks don’t know what to do, they do nothing! Even to the extent of avoiding the family out of fear, or just out of not knowing what to do or say. In this post, I hope to show how simple acts of kindness can make a world of difference for families who have children with autism.

via Elaine Hall: 7 Easy Ways to Help a Family Diagnosed With Autism.

10 Revolutionary iPad Apps to Help Autistic Children

August 17, 2010 in Special Needs News by Admin Dawn

Teachers and doctors are using iPads as a tool to reach out to children with Autism or Asperger Syndrome and the results are remarkably great. Autistic children are showing tremendous improvement after playing fun-filled exercises on iPad which is less stressful and more fun for both the teachers and the students. [Click through to read] the list of 10 best iPad applications to give Autism a voice.

Those who don’t know, Autism is a lifelong disability that affects the way a person communicates and relates to other people and the world around them. Those affected typically display major impairments in three areas: social interaction, communication and behavior (restricted interests and repetitive behaviors). 1 in 160 children have autism in some form, making it twice as common as cystic fibrosis, cerebral palsy, childhood deafness or blindness and ten times more common than childhood leukemia.

via 10 Revolutionary iPad Apps to Help Autistic Children | Gadgets DNA.

Parents of children with autism: We struggle alone

August 17, 2010 in Special Needs News by Admin Dawn

Her day might begin at 2 or 3 in the morning, when her 9-year-old autistic daughter, Ashlyn, wakes up next to her. And from that moment on, Jackie Polvado’s life is a full-out sprint.

“Ashlyn still sleeps with me because it’s the only way we can get any sleep. But I’ve been up day and night, like when my daughter was up for 48 hours, screaming,” said Polvado of Keller.

“It’s exhausting, and there’s no end in sight.”

For families with children with autism spectrum disorders – a range of developmental disabilities that cause social, communication and behavioral problems – each day can be emotionally overwhelming, stress-filled and isolating.

Family and friends shy away. The child’s behavior can leave parents prisoners, trapped at home. If they venture out, passers-by stare, wondering why the child isn’t under control.

via Parents of children with autism: We struggle alone | News for Dallas, Texas | Dallas Morning News | Family | Health | Dallas Morning News.

Researchers Say Several Factors Contribute to Autism

August 11, 2010 in Special Needs News by Admin Dawn

A conference on autism is taking place in (the eastern state of) Pennsylvania. The aim is to help teachers and parents deal with challenges faced by children with autism. The disease affects a person’s ability to communicate and interact but symptoms vary. New studies are challenging formerly held beliefs that autism is passed down genetically. Now some experts say a child’s environment has to be taken into account.

via Researchers Say Several Factors Contribute to Autism | Health | English.

Southwest Michigan churches among those embracing children with special needs

August 9, 2010 in Special Needs News by Admin Dawn

Stephanie Willoughby of Kalamazoo, Michigan wanted her two boys to have a chance to enjoy vacation Bible school with other kids like them.

So she’s planning a VBS at her church for children with autism.

“I wanted to get them incorporated into church life a little more,” she said of her sons, Ben, 8, and Sam, 6.

For parents of autistic children, “going to church is a little scary because you never know how your kids are going to act,” said Willoughby, who also has a 17-month-old daughter. “This is a chance for them to come and be themselves and be in a surrounding that’s more comfortable for them and geared for their actual needs.”

via Welcoming kids with autism: Southwest Michigan churches among those embracing children with special needs | MLive.com.

Study focuses on whether robots relate better to some autistic kids than humans

August 9, 2010 in Special Needs News by Admin Dawn

Ela, a 2-foot-tall robot, seems to have a power over children, including those with autism, that humans lack.

When Ela dances, does karate chops or makes simple facial expressions, children pay attention. Many can be coaxed into repeating the movements.

Researchers at the University of Connecticut are among a growing number of scientists trying to figure out whether this attraction can help children with autism improve motor skills and their ability to communicate.

via Study focuses on whether robots relate better to some autistic kids than humans – Connecticut Post.

Study details autism’s heavy toll beyond childhood on marriages

August 5, 2010 in Special Needs News by Admin Dawn

The parents of grown children with autism are more likely to divorce than couples with typically developing children, according to new data from a large longitudinal study of families of adolescents and adults with autism.

“Few developmental disabilities appear to be more taxing on parents and there is a great need for support services for families when the child is an adolescent and adult.” ~ Sigan Hartley, assistant professor of human development and family studies

The study, published in the August issue of the Journal of Family Psychology by researchers from the University of Wisconsin-Madison’s Waisman Center, paints a new picture of the prospects of long-term marital success for parents raising a child with autism.

via Study details autism’s heavy toll beyond childhood on marriages (Aug. 3, 2010).

Very interesting study in light of Robert’s Eighty-Five post.

Finally, help for autistic kids

August 3, 2010 in Special Needs News by Admin Dawn

The lives of thousands of Colorado’s autistic children and their parents just got a little easier — and it’s about time. On July 1, Colorado became the 12th state in the nation to reform insurance coverage for children with Autism Spectrum Disorders (ASD). It is now state law that private group health insurance providers cover a range of treatments — including speech and physical therapy — for patients with ASD.

The law, known as HIMAT (Health Insurance Mandated Autism Treatment), prescribes applied behavioral analysis (ABA) as the legally mandated treatment approach.

ABA aims to teach socially acceptable behaviors, such as appropriate eye contact, to give autistic kids a better shot at developing into higher-functioning adults. These pragmatic therapies must be delivered by certified specialists, and parents can now appeal to the Division of Insurance if a company denies treatment.

via Finally, help for autistic kids – The Denver Post.