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Tips for Feeding Kids with Special Needs

May 24, 2012 in Featured, Insider Insight by Admin Dawn

By The Real Food Moms, Jeannette Bessinger, CHHC and Tracee Yablon-Brenner, RD, CHHC, www.realfoodmoms.com

For your child’s body and brain to function at their best, it is important to provide a diet high in amino acids, the building blocks of protein. But since the body is unable to store excess amino acids it’s smart to split up your child’s protein supply—ideally among the three main meals and two snacks. By feeding meals high in protein throughout the day, you help the neurotransmitters in the brain function better, and stabilize blood glucose levels—preventing hyperglycemia and reactive hypoglycemia—blood sugar “ups” and “downs” that can affect some children’s ability to focus and/or settle down.

One cardinal nutrition rule is to stay away from simple carbohydrates, which break down into glucose and release too quickly into the blood stream. Sugar and high fructose corn syrup are a few examples of simple carbohydrates to avoid. Children are affected differently by sugar, however many studies suggest that sugar negatively affects behavior, impacting aggression, attention, hyperactivity, mood and proper mental function. It is best to replace sugary drinks and snacks with healthy high protein snacks like veggies with hummus or nut or sunflower butter; smoothies with whey or rice protein or nut butter; nuts, seeds, sliced hard boiled eggs, fresh fruit with nut or sunflower butter, yogurt with granola or with nuts and seeds and a dash of honey. When serving foods with added sugar, it’s best to keep it below 15 grams per 100 grams. Cereals should have 3-5 grams of sugar per serving, max, and it’s best to include protein with breakfast, e.g., hardboiled eggs or yogurt with nuts and seeds and a dash of honey. Incidentally, organic honey has many beneficial nutrients—in addition to being a taste treat!

Another essential is to remove synthetic food additives from your child’s diet. For a food additive to be allowed in the diet, it must be certified as “generally recognized as safe” (GRAS), which means it will not have a significant negative effect on health. Unfortunately we don’t know the long-term effects of ingesting chemicals on our nervous, immune, respiratory and endocrine systems. There are 24 synthetic food additives, and we are going to address the four major categories: artificial colors, artificial flavors, artificial preservatives, and artificial sweeteners.

Artificial colors have been embroiled in controversy for some time. A November 2007 study published in The Lancet stated that artificial colors in children’s diets contributed to hyperactive behavior. The UK’s Food Safety Agency released this statement on July 20, 2010: “An EU-wide health warning must now be put on any food or drink that still contains the colours that are thought to cause hyperactivity in some children. This is following the Southampton Study, commissioned by the Agency, which suggested a possible link between consumption of six food colours and hyperactivity in children. The colours are Tartrazine (E102), Quinoline Yellow (E104), Sunset Yellow (E110), Carmoisine (E122), Ponceau 4R (E124) and Allura Red (E129).” There had been a voluntary ban on food coloring in foods in the UK. In the United States, Blue No.1, Blue No. 2, Green No.3, Red No. 40, Red No. 3, Yellow No. 5 and Yellow No. 6 are still permitted in our foods and medicines. Some of these chemicals trigger histamine release and create allergic reactions like hives (uticaria). In the September 2010 issue of the American Journal of Psychiatry, Stevenson, et al., found strong evidence that histamine release affects hyperactivity levels in animal models and also influences frontal cortex dopamine release. In this study, there was improved behavior when artificial color was removed from the diet. The research underscores the importance of avoiding food and medicine with artificial colors. Moreover, most artificial colors are made of a mixture of coal tar. The International Agency for Research on Cancer says that products with 5% crude coal tar are considered a Group 1 carcinogen. How’s that for a reason to remove artificial color from your child’s diet?

Artificial flavors are also a concern, especially (MSG) monosodium glutamate, an amino acid from glutamic acid. MSG is used in commercial cooking to enhance the flavors of many common processed foods including canned soups, frozen dinners, seasoning mixtures, and fast foods. Many fermented products have naturally occurring glutamate, like Worcestershire sauce, soy sauce and steak sauces. Glutamate is also in many other additives like soy extracts, protein isolate, hydrolyzed vegetable protein, hydrolyzed soy protein, hydrolyzed yeast, and autolyzed yeast. MSG is not always easy to identify on a label. Be on the lookout for words like “spices” and “natural flavorings” on a food label, which means it might contain MSG. Two food additives, “disodium guanylate” and “disodium inosinate” are only used with MSG, so if they’re on the label, there’s a high likelihood that MSG is in that product.

Glutamic acid, which MSG is made from, is classified as an excitotoxin. However, it is considered to be GRAS by the FDA. Many people are affected by MSG, and children who have special needs are especially vulnerable since they might not be able to communicate their discomfort, which may manifest as a headache or nausea. Removing artificial flavors from your child’s diet is the safe way to go, and could help to reduce behavioral problems.

Artificial preservatives, such as butylated hydroxytoluene (BHT) and butylated hydroxyanisole (BHA) are being investigated for provoking chemical sensitivities. These preservatives have been associated with causing broncho spasm, rhinitis and more particularly in triggering hives (uticaria). Many studies on mice have shown that these preservatives cause learning deficits, difficult sleeping, developmental delays, aggression, decreased orientation reflex. Key reasons in removing artificial preservatives from the diet because that could also relieve behavioral symptoms such as aggression, hyperactivity, developmental delays.

Artificial sweeteners are much sweeter than table sugar, “sucrose,” and can interrupt neurotransmitter balance, which could make behavioral symptoms worse.

The following sweeteners have been tested for their safety through the Center for Science in the public interest. Aspartame which goes by Nutra-sweet, Natra-taste and Equal, is one that people who have Phenylketonuria (PKU) have to avoid because they can’t break down phenylalanine which can accumulate to toxic levels. Sorbitol, xylitol, mannitol, maltitol, lactitol, isomalt, erythritol, and hydrogenated starch hydrolysates are sugar alcohols that can cause stomach discomfort and diarrhea. Acessulfame known as Sunnet, Sweet One, and acessulfame potassium, should have more testing and should be avoided because rat studies found that it caused tumors, mostly benign but some malignant. Saccharin, which is Sweet n Low, may cause cancer. Stevia can’t be metabolized in our bodies which is why it has zero calories. More testing should be done on its safety. Sucralose, which is Splenda, is actually sugar chemically combined with chlorine…Buyer beware! Tagatose, a very new type of sugar made from milk sugar lactose, can cause digestive issues such as gas, bloating and nausea because it’s not well absorbed. It can be found in Diet Pepsi, Slurpees from 7-11, etc.

These are a few examples of why package label reading is essential in today’s world. Many of the sugar substitutes mentioned are found in gum, yogurts, baked goods, and drinks, including iced tea, soda and juices. It is safest to use natural forms of sweeteners. Some of the best include organic honey and turbinado sugar, which is raw sugar crystals formed by spinning the sugar in a centrifuge. The juice released is crystallized to keep the rich molasses color and flavor, and it’s less processed than conventional table sugar. Sucanat is the trademark name for the turbinado process.

Trans-fat is the end result of hydrogenation, the process in which hydrogen is added to liquid vegetable oil. Partially hydrogenated fats contain Trans-fat, and are less expensive and have a longer shelf life than standard fats. Trans-fats interfere with an enzyme called delta 6 desaturase, which is important in converting essential fatty acids Omega-3 and Omega-6 fatty acids to the active form (ARA) arachidonic acid, (EPA) eicosapentaenoic acid, and (DHA) docosahexaenoic acid used by the brain. It is important to avoid Trans-fat and partially hydrogenated vegetable oils. A deficiency of 6 desaturase causes a deficiency of ARA, EPA and DHA, which are important for brain development, brain functioning, brain signaling and proper vision processing. Research has shown that children who have Autism, ADD, ADHD, dyslexia, and dyspraxia may have low levels of 6 desaturase so when they eat foods containing Trans-fat or partially hydrogenated vegetable oils, it can make these conditions worse (1). To increase the activity of the desaturase enzymes, it is important that the diet includes an adequate amount of vitamin B3, vitamin B6, vitamin C, magnesium and zinc which are available by eating local organic fruit, vegetables, whole grains, organic yogurt, and meat, nuts and seeds (2).

Including foods rich in Omega-3 fatty acids cannot be overemphasized. Some basic sources are wild Alaskan salmon, seaweed, eggs from hens fed a diet high in Omega-3’s, flaxseeds, pumpkin seeds, walnuts and algae. Caveat: To ensure food supplements are free of mercury, use either an algae-based or fish oil Omega-3 fatty acid supplement, which is third party-certified and molecularly distilled.

By purchasing organic-labeled products, you’re guaranteed that the foods you’re feeding your family are free of artificial color, flavor, preservatives, trans-fat and pesticides. Not all products have the USDA organic seal because certification is voluntary and expensive. So it’s important to read the labels carefully to know what you’re really buying. To have the USDA seal means a product is comprised of 95 percent organic ingredients. Foods that have at least 70 percent organic ingredients can use the phrase “made with organic ingredients” and list up to 3 ingredients. If the product has less than 70 percent organic ingredients the name of the organic ingredients can be included on the food label.

To get back to basics, incorporate the Real Food Moms three P’s: Plan, Purchase and Prepare real food! This takes a little organization, but you are ensuring delicious, unprocessed food for you and your family. You should definitely see some behavior and long-term health benefits for the entire family.

Get more from the Real Food Moms at their blog!

Stordy, B. Jacqueline. Dark adaptation, motor skills, docosahexaenoic acid, and dyslexia. American Journal of Clinical Nutrition, Vol. 71 (suppl), January 2000, pp. 323S-26S

Osmundsen H, Clouet P. Metabolic effects of omega-3 fatty acids. Biofactors 2000;13(1-4):5-8 2000. PMID:15800.

Republished from January 2011

Holidays in the Hospital

November 16, 2011 in From the Hospital, Insider Insight by Children's Healthcare of Atlanta

By Ginger Tuminello

Child Life Specialist for Heart, Kidney and Liver Transplant Patients at Children’s Healthcare of Atlanta

The holidays can be stressful, especially if your child is in the hospital. Here are some tips on making the holidays in the hospital a little more bearable.

Acknowledge your feelings and the feelings of your child.

Being in the hospital, especially over the holidays, stinks. Recognize those feelings and say them out loud to your child. Once you’ve established that you’re both sad/upset/frustrated, focus on the things that can make being in the hospital over the holidays better. Just think, one day you may be telling stories that start, “Remember that Thanksgiving we spent in the hospital and had to eat turkey from the cafeteria…”

Continue established family traditions, or some variation of them.

As a family, identify what family traditions are most important to you and find ways to continue them. If your family always goes to church on Christmas morning, find out if the hospital chapel is having a service. If you always make holiday cookies, try making holiday ornaments instead. If your child’s favorite Thanksgiving treat is pumpkin pie, have someone make and bring it to her (if dietary restrictions allow). Or simply postpone Thanksgiving dinner until your child is feeling better and out of the hospital. There are no rules that say you must eat Thanksgiving dinner on Thanksgiving.

Create new family traditions.

Talk to your family about starting new holiday traditions. Make holiday ornaments to put on the hospital tree. Plan a holiday game night using either board games you love or finding new holiday games to play (check out http://www.coolest-christmas-holidays.com for some ideas). Make small gifts for the nursing staff. Organize a toy drive or fundraiser for hospital or organization. Your hospitalized child could always help design a flyer and plan other details.

Find out about special events and visitors offered by the hospital.

During the holidays, lots of folks enjoy volunteering and putting on special events for the hospital. Even though the local nursing home group playing hand bells may not sound very exciting, you might be surprised. Think of these events as opportunities to get out of the room, socialize, and make new holiday memories.

Start a special project with your child.

Take pictures and create a holiday scrapbook. Make holiday cards for other patients. Make gifts for family members. There are lots of inexpensive craft projects that you could do with your child that would provide hours of entertainment and bring a smile to many faces. Check out www.familyfun.com or www.craftbits.com for some great ideas.

Decorate.

Nothing says holidays like decorations. Bring a holiday blanket and pillowcases from home. Create holiday pictures and hang them on the walls. Get a small fake tree, decorate it, and put it on display. Get washable window paint and paint your windows. Wear festive clothing. If the room looks festive, you may find yourself in the holiday spirit. Just be sure to check with the hospital staff about policies regarding lights, hanging pictures, live plants/flowers, and window painting. And don’t forget to bring pictures of your loved ones at home.

Plan one small thing to look forward to each day.

The trouble with being in the hospital is that it gets boring and redundant. Plan something each day that you and your child can look forward to. Pick out an interesting location (i.e., gift shop, outdoor garden area) and plan for an afternoon walk there. Rent or borrow a new movie and plan for a movie night. Borrow a game you’ve never played and have a game night.

Create a schedule for visitors.

Hospital rooms can be tight quarters and too many visitors at once can be overwhelming. Creating a schedule for visitors can help limit the number of visitors and also allow you to schedule some quiet/alone time, which is important.

Find out the visitor policies.

During cold and flu season, some hospitals don’t allow siblings to visit. Find out these policies and ways to work around them. Is there a common area that the siblings can come to, like the cafeteria, so that you have time as a family? Could you use technology like Skype to communicate when you can’t be together? Try playing a game using Skype, making sure there’s a board on each end. Have your children at home and your hospitalized child write letters, send pictures, or record messages/stories often. Getting mail or email can really light up someone’s day.

Make time for yourself.

If someone offers to play with your child so that you can take a break, let them! Go for a walk, get a cup of coffee, or take a shower. Make sure that you are taking time to decompress and focus on yourself.

Use your team.

Your child life specialist, social worker, and chaplain are all great resources to help you and your family cope with hospitalized holidays. Be sure to let them know when you need something or just need to talk. They can be a great source of comfort and support.

Fears and Raising Children with Special Needs

October 26, 2011 in Featured, From Julia by Julia Roberts

When we are sharing here on Support for Special Needs about the unique challenges of raising kids that have differences there’s always someone to offer a different perspective. In doing so they make you think about how grateful you are there is someone who truly understands.

We all have different perspectives (obviously) on what to focus on, what motivates us to keep going each day (when the day kicks us in the teeth) and in what way we present our stories (public or private, positive or negative). We all have fears. Some of us share our fears; some have them but are afraid to share them.

During my son’s battle with kidney failure, a botched surgery, kidney transplant, and subsequent frightening depression I had many fears for his safety, for his general well-being, for his life. I didn’t voice my fears about him dying very often and I tried to shut them away during the period of time he was suffering but it was an underlying tone for me. My husband wasn’t able to voice it, think about it, or hear me talk about it either. It was a hard time to have those fears.

Some fears that I and other community members have…

  • -          Financial security, for us now and our children in the future. Keeping insurance, hitting maximums before our kids are 5 or 10 and the many out-of-pocket costs of taking care of kids with special needs. Many of us are  discussing  special needs trusts before our kids are five.
    -          Independence into adulthood. We want our kids to have as much independence as they are able to gain. We worry for their safety and happiness.
    -          Bullying. We worry our kids that their developmental, physical or mental challenges will be the target of bullies. For me, this started at kindergarten and continues…
    -          Change. For some of our kids change can be extremely difficult to navigate. Early on we learn that they don’t like natural transitions in the world and we grow to fear it because adjustments are difficult. For parents, sometimes change means a progression in a disease symptom, medication, treatment, or arrangement. Sometimes we fear it. Greatly.
    -          Acceptance. Tied to bullying of course, but acceptance is huge worry for many of us. We want our kids to grow up being able to experience typical things everyone wants to enjoy…friendships, inclusion in social events, feeling welcome in new  groups of people, sleepovers. Acceptance.
    -          Education. We want what is our child’s right. Reasonable access to education. We want a compassionate education team, we want services that will help them, appropriate classroom settings and people to treat us parents/caregivers as part of the team. We want everyone to help our kids reach their potential. Period.
    -          Abandonment. Sadly, the acceptance item on this list extends even to people who love us. Our kids aren’t “perfect” and some come with a lot of management; behavior issues and plans, problems with eating, dressing, toileting and speaking. We want the people who love us to try to understand that we’re doing our best and we don’t want you to abandon us because it gets rough. It gets rough a lot.
    -          Relationships. Fearing change in relationships because of the relentless needs. Along with that I fear losing myself. Period.

Community member, Michelle Howard said, “I hate the word fear. It has too much power over people.” While fear can permeate my subconscious it doesn’t rule my life. For me and most of the parents of special needs kids I have contact with letting fear rule us would mean that we have to pull energy from the job of managing the special needs our kids have and our time is too precious.

I’ve learned to live with fear. It’s something the forces me to grasp my reality and it’s sometimes what propels me to seek out and appreciate the joys.

Originally published in January 2011

Sometimes Funny is All We’ve Got

August 3, 2011 in Featured, From Julia by Julia Roberts

When our first child was diagnosed with  developmental delays we didn’t know what hit us. We’d gone from having a perfectly healthy 8 month only child to one that was in 7 therapy appointments and “at risk” as defined by the state’s early intervention program.

Those were not fun times. While we were still acting as a regular family, we were focusing on getting used to our new normal. Which turned out to be not very easy. It did happen eventually and we were happy again.

But we didn’t know what we didn’t know.

A little over a year later we were faced with our new baby’s diagnosis of a life-threatening kidney disease and 3 months later our son’s diagnosis came. It was not a happy time in our house. In fact, I clearly remember doing anything but laughing or having fun…for a very long time.

That was the year I refer to as “The Fog” and I remember it well. Back then, before I was blogging at Kidneys and Eyes to release some of the pain and hurt and experience, I would send out batch emails to close family and friends to give them updates. Those emails were excruciating to send because I didn’t want to sound too depressing, but honestly? Things were depressing around our house. We were still getting our special needs parents legs firmly planted on the ground. So while I was kind of pretending to be okay, things became okay. It was a “fake it til you make it” kind of thing.

During that time my beloved and I would test out our funny bone on each other. We’d say something totally inappropriate outside the walls of our brick ranch home and slowly but surely we started to believe. We started to believe in humor again. It didn’t happen all at once; it slowly crept back into our lives.

Over the years as we cried about the progressing symptoms of kidney failure, developmental delays and bad reports all around us, we learned that we could laugh. I remember the night when I got a call on my cellphone telling me it was time to get our son in to talk about a kidney transplant; his lab numbers had taken a turn for the worse and stayed there. When I got home my husband took one look at me and he knew something was wrong.

The kids were eating dinner at the kitchen counter and while I was crying they were screaming for milk (or goldfish or yogurt) and we were both trying to hid our tears. I am fairly certain I sighed heavily and rolled my eyes because the kids have the audacity to ask for more to eat or drink and I said something like, “Ugh! We can’t even talk for one minute about dialysis and kidney failure!” My husband looked up at me and said, “What, don’t you think mortality and milk mix well?”

I agree, it’s not THAT funny, but it did come at a good time. We talked about how life just keeps moving on; the kids still have to eat. So, we just moved on through two kidney transplants (mixed in with dialysis, depression, mental health issues and trauma) and here we are, trying to get ready for the next crisis (which we know will always come).

Sometimes we make fun of our life and our kids to left off steam. Sometimes it’s because we need a laugh. Sometimes it is because some of the things they do because of their disabilities are really funny. Sometimes it is because if we didn’t we would cry.

I like to make fun of what we say and I chronicle it on my blog by titling certain posts with “Spoken in the Mutant Family Household” because it’s my way of embracing our inner (inappropriate) funniness (Sometimes about the kids! And their disease!) and our outward mutantness.

There’s hardly a better way to live this life than to laugh at it and that includes laughing with (and at) my mutant children. I have to admit some days it is the only way we can live this life.

Does humor get your through the day sometimes?

What NOT to Say to Special Need Parents

July 27, 2011 in Featured, From Julia by Julia Roberts

While we’re preparing for the BlogHer Special Needs Mini-Con, we’re dipping back and running posts from our archives. This one in particular got a lot of play around the internet when it when live, but recently was brought back into the forefront because a person in the comments. Read those comments. It is true people will always sit in judgment for parents of kids with special needs as well as parents of typical kids. But bullying? Attacking? It seems, well, that sometimes we have to do more than protect our kids; we even have to protect what we think and feel to be our experience.

————————–

Recently a thread started on Support for Special Needs about what we wish people didn’t say to us. Given that we’re all different I’m sure not everyone will agree with each mention on this list but many of the items that people wrote in about resonated with other community members. A lot of the items resonated with me.

While we all agree we have the one or few that really bug us, most of us agree that most people who say these things aren’t mean spirited people. They simply don’t understand what they are saying is hurtful, annoying or bothersome. Maybe if we share this post with people in  each of our lives, we’ll educate people on what we’d find helpful NOT to say to us…

- God only gives us what we can handle; He must think you two are special parents

- Using the word “Austistics” to describe people on the spectrum.

- Remember, you have to take care of yourself, so you can take care of them.

- He’ll speak when he’s ready to.

- When looking at my son using a reverse walker, “Wow, we need to get one of those for my (typical) 10 mo old so he/she can walk better!”

- They’ll EAT when they’re ready. They’re not going to starve to death.

- You are so much stronger than me… I don’t know how you do it

- Pointing out that my non-walker shouldn’t be in a stroller, not knowing he can’t walk.

- That my child is just playing us.

- They just need discipline.

- You two are amazing for adopting two special-needs children. They are SO LUCKY.”

- Family and friends that downplay a diagnosis.

- For a child that has tics, saying, “Do you think she is doing it for attention?”

- Anything that implies that sensory issues are not real or that we’re playing into their “fear.”

- When people say they are sorry or offer condolences for a child with disabilities.

- Any comment that starts with “If you would just…”

- What’s wrong with her?

- Don’t worry she’ll catch up.

- She’ll grow out of it.

- Is your other son/daughter “normal”? or “Are your other kids ok? (As if to imply the child with the disability is not?)

- You are so much stronger than me and/or I don’t know how you do it.

I thought I would end this with a paragraph about the well-intentioned people and go into something about the people who talk without thinking, obviously, we think to ourselves. But I decided to open up a thread on what we’d like to hear from people. So here is the YES! SAY THIS! Instead list…

- I’ll be over on Saturday to help do laundry/wash dishes/scrub floors!

- I don’t know what to say to you, but I love you.

- How are you doing? (and actually listen to the answer)

- Quote from Elaine Hall: “How Can I Help?”

- Just wanted you to know I was thinking about you.

- I just made an extra dinner when I was cooking for us, can I drop it by now?

-  I know you had an appointment yesterday, how did it go?

- Want to drop your kids off with us for an hour or so?  (Because people are afraid to take care of my kids, when this happens, it feels like acceptance and support.)

- I’m on my way to the store, want me to grab you some milk or bread?

- Need any help at bedtime with the kids?

- I’m coming over to watch the kids right now for an hour so you can take a nap.

- We’re on our way to take care of the yard work.

- Sounds like you’re doing a great job.

- Here’s some things that worked for us. (preferably from people who “get it.”)

These are just a sampling of what some Support for Special Needs community members preferred…obviously, we’re all different and some on either list may or may not resonate with a particular parent of kids with special needs. Again, for me, I never got mad about kids asking questions or parents helping their child ask a respectful question. I always minded rude adults who encouraged rudeness in their kids. I never minded any of the items on the NOT list from people who cared about me because I knew their intentions were good. As the years go on I am better about saying why something bothers to the person so they understand.

One thing seems to be across the board though; special needs parents would like people to think before they speak, especially in front of their children. We’d like people to see our kids as people, with feelings. I’d like people to know that when they see what they perceive as a negative is not necessarily a negative. A woman once said to me, “She’s just walking? How old is she?” On a strong parenting day, as I like to call them, I excitedly said, “Yes! She’s young! I think it’s absolutely fabulous she’s walking!” Not sure when my daughter would take her first steps we were thrilled she was walking independently by age three.

Get Your Kid Active

July 20, 2011 in Ask the Gym Teacher, Insider Insight by Tammy Cowan

Greetings!  Summer…freedom…play and fun!   Here are some ideas from your resident PE teacher to keep your child active and ready for school when it starts.  Some of the ideas are specific to students with special needs…but most of them can be modified for any/all kids (and adults!). Quickest note….your kids want to be active with YOU!

Kids with ADD or ADHD do better when they are active in the morning.  I have suggested to parents of younger students when their child is diagnosed with ADD or ADHD  that they start their day with some activity.  One great idea is to give your child some quick fuel with a banana, apple or some juice and head outside for a 20-30 minute walk, run or bike ride.  This burns off some steam that will help them concentrate the rest of the day.  This is a great habit to get into during the summer…and I strongly suggest that you do it during the school year so that your student has the focus that they need early in their school day.

If they had PE over the school year ask THEM to show YOU their warm-up routine.  Most school PE programs start with some kind of warm-up routine.  Let them come up with one for your time together at home and let them actively teach you what they did and know.  Do the exercises with them.  Come up with some of your own….do them every day.  Instead of TV!

If they are able to do cardio…walking, biking, running. It’s easy to start a chart to track how far they run or how many minutes.  Have a reward at the end of a certain milestone. Maybe a family goal? Time together for a special activity or a medal or certificate.

Turn the local park/playground and park equipment into an obstacle course.  Bring some flags/cones/ribbons and let your child mark a route to take. You’ll probably attract other kids so it can be good social time, too. Time them…kids love to be timed and try to beat their times.

Invite other kids over for game day.  Tag can be adapted for any ability.  Kids love LOVE relay races.  Come up with goofy things for them to do/carry/walk with.  Hop on one foot.  Have them go down and back around a marker backwards.  Bouncing a balloon.  Speaking of which; balloons are a great way to get a kid out and active.  Blow one up…tie to a string (or don’t) and watch them play!

KITES!  Go fly one. Good for any child with every ability.

Have all kinds of stuff around that they might need to be active.  Balls, jump ropes.  Make sure that the bike tires are pumped up, or have the push trikes ready to go. Getting your kid active could be as simple as letting them pull a wagon around…collect sticks, rocks or leaves along the way (great for gross motor fun!) or be brave and let them pull you!

Too tight, too fast, too loud, too yucky, what is sensory defensiveness?

July 18, 2011 in Ask the Occupational Therapist, Featured, Insider Insight by Dr. Tiffany Showalter

Does your child get upset by tags in clothing, the sound of flushing toilets, or certain smells in the environment? If so, your child could be having difficulties with sensory defensiveness. Sensory defensiveness is a negative reaction to one or more types of sensations which require you as the parent to control his/her daily routine to avoid such things or deal with the fall out. These may include touch, movement, sound, taste/texture, or smell.

Tactile Defensiveness

Our touch defense keeps us from danger and helps us identify objects around us.

A child who is having difficulty with tactile defensiveness may overreact o ordinary touch, avoid washing hands and feet or brushing hair, and avoid light touch. In contrast, the child may look for deep touch like a bear hug or bump into furniture or other people frequently.

Vestibular Insecurity

Our vestibular system is our sense of balance and movement. It helps us know where our head and body are in relation to gravity and is highly connected to vision, posture, emotions, and coordination. A child who is having difficulty with gravitational insecurity may overreact to ordinary movement or be excessively fearful of common movements including riding a bike, swinging at the playground, or climbing a tree. He/she may tantrum when held upside-down. The child may avoid being in groups from fear of the unpredictability of movement by the others around him/her. These children often prefer sedentary activities.

Auditory Defensiveness

The auditory system is our sense of hearing and listening. This system helps us respond appropriately to the sounds we hear. A child who is having difficulty with auditory sensitivity may cry when a toilet if flushed or you are running the vacuum cleaner. This child may be seen covering his/her ears to block out “loud” noises or become extremely anxious in noisy environments.

Oral Defensiveness

Oral defensiveness interferes with our olfactory system, gustatory system, or tactile system. The olfactory system is our sense of smell while the gustatory is our sense of taste. These systems are closely related and impact our emotions and memory. The tactile system is involved in oral defensiveness via texture and temperature. A child who is having difficulty with taste, smell, and texture may be a “picky” eater. He/she may gag when presented with certain tastes, textures, or smells. This child may appear messy and resist brushing his/her teeth or washing his/her face.

The environment can be an overwhelming and confusing place for children whose sensory systems overreact to sensations they receive from the environment. So if this sounds like your child, you might want to consider contacting an occupational therapist for help.

Disclaimer: I hope you enjoyed reading this article. Please remember you are reading this information of your own free will and are taking the information at your own risk. The author is the legal copyright holder of this material it may not be used, reprinted, or published without my written consent. This information is for entertainment and informational purposes only and is not intended to provide or circumvent medical, legal or other professional advice.

Cowabunga! It’s for the Mommas!

April 27, 2011 in Featured, Giveaways by Julia Roberts

We Celebrate You!

We at Cowabunga Ice Cream celebrate you for your dedication, hard work and loving support that you show your children day in and day out. We admire your hearts, your strength and your stamina. With Mother’s Day being just around the corner, we are honored to offer one of you with a little gift of luxury because you deserve an indulgence.

You are all deserving of a little pampering. We wish we could send each one of you a heaping portion of you favorite flavor of ice cream. Unfortunately, that’s just not feasible. To that end, we have teamed up with the supportive staff here at SupportForSpecialNeeds.com to run a fun little contest. The winner of this contest will receive either 4 pints or 2 quarts (flavors of your choice) of Cowabunga Ice Cream, the world’s first Designer Ice Cream.

Contest Details – In a clever 25 word or less synopsis, tell us about your favorite little luxury that you turn to when you need a bit of indulging. Leave your entries in the comments on this post. We’ll select a random winner from among the entries and they will either 2 quarts or 4 pints of Cowabunga ice cream flavors of their choice.

  • Deadline for entries: May 1, 2011
  • Winner selected/announced by Julia Roberts: May 2, 2011

There is one caveat since this contest involves shipping of frozen food. For this giveaway, we can only ship to a winner in one of the following states:

  • Maine
  • New Hampshire
  • Vermont
  • Massachusetts
  • Rhode Island
  • Connecticut
  • New York
  • New Jersey
  • Deleware
  • Maryland
  • Washington D.C.
  • Pennsylvania
  • Virginia
  • West Virginia
  • North Carolina
  • South Carolina
  • Tennessee
  • Kentucky
  • Ohio
  • Indiana
  • Michigan

Thank you to all of you for the hard work and loving devotion that you display each day. We celebrate you!

We can’t wait to read all of your entries!

ABOUT COWABUNGA ICE CREAM:
At Cowabunga Ice Cream we serve up designer ice creams and frozen yogurt that will bathe your taste buds in luxury. Our small batch (just 5 gallons at a time), handmade production methods ensure a blissful experience each time you indulge.

“This is the Louis Vuitton of ice cream.”~ NY Times Best-selling author Omar Tyree

If you’re in the area, stop in at our shop in Forked River, NJ. For those not in the area, we are pleased to announce that you can now order our high-end ice cream online and have it shipped right to your door. Please visit our website (http://cowabungaicecream.com) for more information.

“It’s easy to be skeptical of ice creamery Cowabunga’s foodie cred…but they pass the taste test.” ~ Wall Street Journal

Ten Therapy Tips For Parents in the Fast Lane

April 18, 2011 in Ask the Occupational Therapist, Featured, Insider Insight by Dr. Tiffany Showalter

Do you ever feel like you live in your car? Are you dashing to soccer practice, ballet classes, and the baseball field while trying to fit in your home program for your child’s fine motor skills?  Well, keeping a few simple items in your car or in your home, you can work with your child on hand strengthening, using both hands together, hand-eye coordination, grasp, and in-hand manipulation. These skills are important building blocks for handwriting, cutting, and other school related fine motor tasks. Try using a large Rubbermaid container with a lid to hold the items to make them easily transportable.
Materials:

  • Large piece of felt
  • Felt letters or shapes
  • Plastic containers with lid, Kool Whip or margarine
  • Plastic jar with screw top lid
  • Jumbo pop beads
  • Bubble wrap
  • Large uncooked macaroni noodles
  • Shoelace
  • 10 pennies
  • 10 clothespins
  • Old magazine

Activities:

  1. Place felt on vertical; for example, back of car seat or attached to wall. Let child make pictures, designs, or words using the felt letters and shapes. Good designs to try include making houses, people, the child’s name, or spell the signs that you pass along the way.
  2. Remove the lids of the plastic containers. Have your child pour macaroni noodles between the two containers, trying not to spill.
  3. Child removes and then replaces clothespins around the edge of the plastic container by pinching/squeezing the pins with their index finger and thumb.
  4. Pull apart and then assemble pop beads.
  5. Pinch bubble wrap between index finger and thumb to make popping sound.
  6. String the macaroni on a shoelace.
  7. Place lid on plastic container. Child picks up pennies on at a time and slides them into slit cut into lid one at a time. Next, have child use only one hand to pick up approximately three pennies, one at a time, while continuing to hold each of them in that one hand. Next, have child place them into the bank one at a time without dropping.
  8. Tear pages out of an old magazine. To make it more difficult, tear out pictures of blue things or things that start with the letter “A”.
  9. Place pennies and macaroni in jar. Remove screw top lid. Have child fish out the pennies or macaroni and place it into the other plastic container, leaving one in the container. If this is too difficult, only place macaroni in the jar and do not sort the items.
  10. Tear strips out of the magazine, scrunch up using one hand, and then toss at the open plastic container to make a basket.

Disclaimer:  I hope you enjoyed reading this article.  Please remember you are reading this information of your own free will and are taking the information at your own risk.  The author is the legal copyright holder of this material it may not be used, reprinted, or published without my written consent.  This information is for entertainment and informational purposes only and is not intended to provide or circumvent medical, legal or other professional advice.

How to make it through Spring Break without tearing your hair out

April 4, 2011 in Ask the Behaviorist, Featured, Insider Insight by Holly M. Adams M.Ed.

If spring break is bearing down on you, you might be thinking 5 more days of school and…THEN WHAT. Perhaps you are worried about the vacation to the beach you have planned with your family, or about the “staycation” you are planning. You and your child might even be using the week off to try some new therapies, or have a medical procedure that requires too much time off from school. Well I am here to tell you all of the above scenarios can be completed seamlessly, yes seamlessly, without meltdowns and tantrums using only a few simple tricks.

Trick number 1

Start talking to them about it NOW. Waiting until the weekend of the big trip does not allow your child enough time to process the information you are giving them.

Trick number 2

Peace comes in the details. If you are prepared, they will be prepared. Make sure you have thought through all of the activities you have planned and that you are taking or have access to all the necessary equipment. You have the ability to stop most anxiety outbursts by planning ahead and sharing the details with your child.

Trick number 3

A calendar can be your best friend. Use a weekly calendar with pictures to show your child what to expect each day. A calendar can also help them count down the days until they can return to school and see their friends.

Trick number 4

A stopwatch or a visual timer will help to make foreign transitions easier. There are a variety of timers that a can be downloaded onto almost any smart phone to help with transitions. ( I recommend Time Timer) Often on vacation, you are doing things that highly preferred and are followed by a non preferred activity. i.e. play in the ocean, then shower. A portable timer will help your child anticipate transitions and cut down on meltdowns.

A vacation is meant to be just that, a break from all the stresses of daily routines and structure. You only need to take a few tools from your daily life to make your vacation life fun and relaxing for everyone.

I have provided a social story to read with your child to prepare them. You can download it in PDF format by clicking here.

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