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We Were In Real Life

March 9, 2011 in Featured, From Julia by Julia Roberts

Rody, Our Mascot!

One of the important things about this site is the connection. Connecting with others who can relate is by far one of the best things about coming here and sharing. Here, you can support and be supported. We love to see people talk in the groups and help each other.

One of our 2011 initiatives was to bring that connection to life by hosting small events. Atlanta seemed like the logical choice and so we set out to plan. We knew we wanted it to be educational. Casual. Affordable. We didn’t want it to start to early or end to late. We talked about future childcare options. Large locations, central to Atlanta. Again, affordability. We ended up settling on a 3 speaker format and the theme of Relationships. Personal, medical and educational relationships and navigating them better in a special needs world.

I’m proud and happy to say our inaugural IRL event in Atlanta was a huge success! Thank you to our sponsors that made it affordable for attendees ($15) and muffins and lunch were deliciously provided by Babette’s Cafe.

Presenting sponsor: Celebrate Calm

Additional sponsors: Hewlett-Packard, and Spin Master

How do we define success?

  • Everyone moved in from seats around to gather for lunch to talk.
  • Everyone loved the format of speakers then lunch then speaker then an hour before we left for the day.
  • Everyone asked when the next one was going to be held.
  • Everyone asked to be put on our mailing list.
  • Many people hugged when they left.

We hope to bring this type of event and others to other cities where we have members. If you think you’d like to have one in your city, let us know! With Dawn in Ohio and several community members there as well, it’s the next logical location…and of course, BlogHer! But that’s another type of event altogether.

Thanks for letting us create a different kind of community. One where we can grow and learn from each other and one where we can figure out what kind of community we want! Thanks Atlanta!

 

Why IRL, Why Now?

February 4, 2011 in Featured, From Julia by Julia Roberts

When Dawn and I had this grand plan of Support for Special Needs.com we talked about what we liked about communities online. We talked about how we loved to make connections, share information and resources and how we like to expand our friendship base.

We are certainly making that happen here. We’ve both been able to get to know people here, build friendships and give and get support and we hope that everyone here that is engaged feels the same! Our little Support for Special Needs is growing up. Way back when (a year ago) when we were brainstorming what we wanted to do to make the site unique we talked about turning what is happening online to offline. That was the day we dreamt up some kind of official function we could replicate in cities offline. At the time we didn’t really know what they would look like but we did know that we wanted people to meet, to learn, to connect. We wanted people to enjoy what we’ve enjoyed with people we’ve met online – to connect in real life.

The timing is right and we’re set.

The IRL Connect events were official. We had a logo, a timeline and we had a date! We’re thrilled to announce (again) that our very first IRL Connect event is March 5th in Atlanta. It’s focus is Navigating Relationships in the special needs world relating to personal, healthcare and educational needs. It’s a casual setting with lunch, time for connecting. Here’s specific information on the Atlanta, March 5 event. We welcome our Presenting Sponsor of the event and site contributor, Kirk Martin with Celebrate Calm.

We’re also in the throes of planning an IRL Connect event pre-BlogHer (for August 3) for the Comma Bloggers (my term because I introduce myself as a “Blogger, Special Needs.”). We hope that if you are going to BlogHer you will sign up on our list to make it easier to identify each other (we’ll provide a list electronically before BlogHer). We’re working on a couple of topics for that event with speakers just for us and we’ll let you know when we iron everything out.

I just wanted to thank all of you community members. Thank you for sharing here, for helping each other (and me) and for allowing us to serve the special needs community in a different way through our IRL Connect events.

Keeping Calm During the Holidays

December 15, 2010 in He Said/He Said by Celebrate Calm

How can we create calm in the midst of holiday chaos?

Calm Dad Says: This holiday season, practice self-care. Before throwing yourself into the myriad demands and expectations of the season, take time to settle yourself. When you are calm, you spread that to your family. Otherwise, you’ll feel frazzled and snap at those you love. Think simplicity. Make a list of what’s most meaningful and important. Say no to that which is extraneous. Your job is not to make everyone happy. You are not responsible for creating “the perfect Christmas.” When you focus on controlling yourself and creating calm inside, instead of trying to make everyone else happy, you will spread holiday cheer.

Calm Kid Says: When I am around lots of relatives, it feels suffocating and gets really loud. I get lost in it all and get overwhelmed.  So give your kids downtime and a place where they can be by themselves once in a while. Don’t worry about them being anti-social—we just need a break sometimes away from everyone else.

How do I stay calm when relatives judge me and my kids?

Calm Dad Says:  Instead of being defensive, let’s be proactive and point out all the advantages our kids have. Your sister says, “Wow, she’s quite a handful” which is her way of saying your daughter is hyper and out of control. You reply, “You know what I love about Sarah? She has so much energy and she’s so creative. You can’t believe the play she wrote last week and performed in front of her class. I really feel sorry for the kids who just wait to be told what to do, because Sarah is going to run circles around them in the job market one day!”

The grumpy grandpa smirks, “Does he have a hearing problem because he doesn’t listen?” Your reply? “You know what I love about Jacob? He has initiative, creative ideas and he’s a problem-solver. He’s not going to be some follower in life. Nope, he’s going to be a leader and that’s going to make him really successful.”

Calm Kid Says: I used to feel like such a bad kid compared to my “perfect” cousins. But when my parents started bragging about all my good qualities around family, I started to believe that maybe I did have a great future ahead of me. It felt good to hear my parents believing in me even when others were being negative.

What do kids really want for gifts?

Calm Dad Says: Don’t buy gifts out of guilt or because you think it will make them happy. Otherwise, we’re sending the wrong message and getting kids to equate happiness with presents. But you know thirty minutes after unwrapping the last gift, some kids feel disappointed and bored. Set very clear expectations about the kinds of presents they will and will not get. Focus on giving gifts that help cultivate your child’s natural strengths and passions. Your kids have huge hearts, so spend time serving the needy, buying and wrapping presents for Toys for Tots, and giving to others. That’s where real satisfaction comes.

Calm Kid Says: I think a lot of kids like me aren’t really into stuff; we really prefer experiences. I love doing things with my Dad and Mom, going places and experiencing different activities. Some of my favorite presents were gift certificates or gift cards for things like a ride in a sports car, special dinner with a parent, an hour of free game time, get out of a chore for a day, get out of school for a play day. I loved this time with my parents more than any gift.

Celebrate Calm Founder Kirk Martin and his son, Casey (17), have trained over 100,000 parents, teachers and kids how to control their emotions through their newsletter, radio show and workshops. Sign up for their newsletter, say hi and learn more about their family-friendly programs at www.CelebrateCalm.com.

This week around the community

October 29, 2010 in Around the Site by Admin Dawn

Our big news this week is that we changed servers! It was a HUGE move (this is a huge complicated installation) and we’re still squashing bugs but we did it because we are growing so quickly and we needed a stronger server to bolster us up. Our goal was to get the move done before November 1st since we are launching our first annual Great Big Wish List Giveaway on November 8th! On Monday we will have a schedule and a list of the toys we’re giving away. It’s going to be huge, people!

Meanwhile, if you do find bugs as you are getting around the site, please let me know.

Welcome to New Members

Jeff Stimpson: I speak and write about autism parenting (my son Alex, 12, is PDD-NOS). Twitter name is Jeffslife, and I have two books about my son: “Alex: The Fathering of a Preemie” (at Amazon and from academychicago.com) and “Alex the Boy: Episodes From A Family’s Life With Autism” (available at vervante.com).

Nick: I serve many parents of children with disabilities. I have cerebral palsy myself as well as my fiance. I have been an activist in Berkeley for many years. I have a degree in Social Welfare and a minor in education.

JerseyMilo9

Paula

Mireya Teran: i am a wife and mother of three blessings. i love god and love helping people!

Melanie Adams

Paul: Father of a special needs daughter born with a heart defect, caudal regression, and Pierre Robin, among other things.

James

Community Happenings

We want to thank member Janet Callahan for writing We Live This Life to Experience It about how her Paganism has impacted her experience as a mother to a child with special needs for our Faith series. Do you want to share your story of faith and special needs with us? We would love to hear it and share it with the community!

Nick is looking for feedback for his Dare to Dream project in the group Anything Goes. Check out the documents he uploaded and let him know what you think in this thread.

Andy has a challenge for you in Anything Goes — anyone know where she can get one of those nutcrackers like the one in the ballet that actually cracks nuts? She’s seen them for show but she wants one that works! If you know where she can find one, head over there and let her know.

Julia started the topic Celebrations in Behavior over in the Behavior Issues group. We really want to hear any bragging you want to do on your kid and on YOU!

Michelle Howard posted a terrific list she calls The Somewhat Humorous but Mostly Helpful Hospital Away from Home Checklist over in Organizing … Specialized. Check it out!

Beth started a new group, Down Syndrome Awareness and added her blog feed, Our Typical Life, to the group. Wondering how you can do that? Here are instructions.

Did you catch the Calm Mornings post over in Celebrate Calm? It’s a can’t miss post!

November is National Adoption Month and we have a Special Needs Adoption group. Andy wanted to let folks know about the Open Adoption Roundtable post, which is about Siblings in Adoption.

Our activity stream is a great way to stay up to date on what’s happening all around the site but it can be confusing especially with people’s Twitter posts keeping thing busy there. But you can filter posts by using the drop down menu on the right. It allows you to see only certain kinds of activity like blog posts, forum topics or group updates.

How do I deal with meltdowns in public?

October 1, 2010 in He Said/He Said by Celebrate Calm

Question: How do I deal with meltdowns in public? How do I deal with strangers making comments or judging me?

Calm Dad Says: Remember that as a parent, your primary responsibility is not how your child behaves, but how YOU behave. The truth is that no matter how great a parent you are, you cannot always control your child’s (or spouse’s!) behavior. But you can always control your emotions. The quickest way to change your child’s behavior is to first control your own.

If you react emotionally out of embarrassment or guilt, your tension will escalate the situation. How many times have we yelled, “I don’t have time for your tantrum right now!” as if our kids are going to glance at their watch and say, “Oh, do you want to reschedule, Mom?” Put out the emotional fire and be the calm, immovable rock they can count on.

If you allow another person’s comment or opinion to cause you to snap at your kids, you are giving some stranger power over your emotions and relationships. Do not give anyone that power. You don’t owe anyone an answer. In the end, the relationship with your child is most important. And when your child sees that you can remain calm and emotionally available to them, even when others are giving dismissive glances, they will feel safe and secure.

Calm Kid Says: When I’m upset and freaking out, it’s usually because I’m feeling out of control of the situation. I don’t need my parents freaking out. That just makes me more upset because now no one is in control of themselves, and it’s just a big scream-fest or threat-fest. When they are yelling or just glaring down at me, it’s not safe to even apologize. What I really need when I’m upset is for my parents to model calm and lead me into a calmer place.

I remember when I was little and I’d throw a tantrum at the playground in front of all the other kids and parents. My Dad would sit down, cross his legs and just say, “You can throw a tantrum if you want. If you do, do it with excellence. But if you want to figure out a better way to deal with feeling disappointed, I’ll go swing with you and we can talk about it.” That helped me to know there was a different way and he wasn’t going to go ballistic on me. And that’s why I trust him when I have teenage issues.

Celebrate Calm Founder Kirk Martin and his son, Casey (17), have trained over 100,000 parents, teachers and kids how to control their emotions through their newsletter, radio show and workshops. Sign up for their newsletter, say hi and learn more about their family-friendly programs at www.CelebrateCalm.com.

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