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Wish List Giveaway: Rody Gets Meds

November 9, 2010 in Giveaways by Admin Dawn

As part of our Week Before The Week of the Great Big Wish List Giveaway we’re giving away two Rodys EVERY SINGLE DAY THIS WEEK!

This week’s giveaways are the only giveaways open to non-members!

Each day this week we’re giving TWO Rody Hop-A-Long toys from Gymnic! We want to get the word out about some of our great forums and so we’re letting Rody (and his friend, our site mascot Quinn) introduce you.

Medical Special Needs

Rody needs his medicine

Today we want to let you all know about our Medical Special Needs group!

The front page of all our groups is a place for quick updates and to see what’s going on. It’s a little like a Facebook wall. Someone can post an announcement and other people can reply. But it’s not as handy for in-depth discussion as a messageboard, which is why all of our groups also host a forum. Here’s a direct link to the Medical and Special Needs Forum

You can also see the event calendar, which is a great place to post workshops, webinars or livechats you want your fellow Medical and Special Needs members to know about.

Want to meet the other members? Here’s the roster!

You can upload documents to the group, too, like a great hand-out a teacher has shared with you or a flyer you think might interest others in the group.

Finally, like every group, the Medical and Special Needs group has its own livechat! You are welcome to use this anytime. You can schedule a chat (remember to post it to the event calendar!) or spontaneously check in if you realize other people are around.

Now here’s how to win a Gymnic Rody!

Rody is a fantastic Italian toy that a lot of therapists use for trunk work, balance, strength and fun. Rody isn’t just for kids with special needs — he’s fun for all, and well, he’s cute, too! Made of sturdy latex-free vinyl, Rody can hold up to 300 lbs, which means big brothers or sisters and even moms and dads can play with him, too. You’ll need a bike pump (or heck — the free air pump at the gas station) to inflate him but once you do he is ready to bounce!

The Rodys we’re giving away are all the pretty peach with red spots you see in the picture at the top of the entry and here’s how YOU can win him!

  • • First of all, have you already commented on a previous post? Then lucky you! Anyone who has already commented on a post from earlier in the week gets an automatic RE-ENTRY in every single subsequent Rody giveaway this week! That’s right, we’re rolling your entries over! (We decided to do this after consulting with some of our members and they said YES! DO THAT!)
  • Comment on this post! Commenting on this post lets us know that you want in on today’s Rody drawing!
  • Tweet this tweet (we’ll be tracking them so you can just copy and paste this):
  • I want to win a Rody! http://bit.ly/wish-list-giveaway #wishlistgiveaway
  • Blog it! If you have a blog, write a post about our Great Big Wish List Giveaway and link is up
  • Be a member! Members get an additional entry!
  • Answer this question at the forum!

After this week the giveaways are only open to members. That means if you want to enter to win an American Girl Doll, a light up Ferris Wheel from K’Nex, a set of six adorable Audubon birds beanies from Wild Republic or one of the other 70+ toys and gifts we’re giving away, you’ll need to be a member! Why not become one today and get ahead of the curve?

National Adoption Month: Sticks and Stones

November 4, 2010 in Inspiration by lorithiel

In honor of National Adoption Month, we celebrate the families on our site created through adoption. Special thanks to Lori Thiel for sharing this moving essay with us.

Last week my mom and I were laughing with my kids about a documentary we’d seen about “monkey mamas,” women who adopt Capuchin monkeys to raise as children. Of course, these monkeys aren’t domesticated and so — dressed up in their cute little human clothes — they scream, bite, pull hair and are eternally in diapers. As one mom put it, “They are forever-toddlers.” Toddlerhood is characterized by tantrums and hissy fits. Why, we chuckled, would anyone want to live with a toddler for forty years, the average lifespan of these monkeys.

At this point my mom innocently posed the question, “Well, can you just give them back to the place you adopted them from if they get to be too difficult?”

I quickly glanced across the table to gauge the reaction of my daughter, adopted at birth six years ago. And just as quickly I steered the subject to something less sensitive, still calculating in my mind what effect, if any, that comment might have on her. The next day, I believe I witnessed that comment’s effect: my daughter became a Capuchin monkey.

Exposed to drugs in utero and born premature, Madeline has always been a little behind the curve emotionally, but her behavior that day would’ve made any self-respecting three-year-old blush. She rolled on the floor and kicked; she whined and cried; she went to her room and screamed; she broke her toys and smashed her mirror. Around 4 p.m. I took her to the doctor to find out what horrible physical ailment she must be suffering to bring about this appalling behavior. No help. She got a clean bill of health.

We finally managed to get her in bed without losing our sanity or allowing her to destroy any more treasured possessions, but we were raw, shaken and — let’s be honest — a bit disturbed. What had happened to our admittedly rambunctious but generally happy child?

We all went to bed early that night, emotionally and physically wrought. It wasn’t until the next morning when the had fog cleared and I revisited the previous day’s events that it occurred to me there might be a correlation between Madeline’s behavior and my mom’s adoption comment from the day before. That’s right. I can be a bit dull-witted at times.

Madeline understands, as much as a six-year-old can, that she’s adopted. We prominently feature a photo in our home of her brother, dad and me in the judge’s chambers, right hands raised, during her adoption proceeding. But it’s not a regular topic of conversation. Her drug-addicted birthmom is in and out of jail and is not a part of her life. Her supposed birthdad lives across the country and eagerly gave up all parental rights and contact. So it’s just been us her whole life. And we don’t make a concerted effort to remind her that she came into our family differently than her brother, who is our biological child.

So suspecting that Madeline might need reminding of our collective and abiding love for her I went into her room that morning with a cautious “hello” and tentatively hugged her to me. She was pliant, receptive and so I whispered to her: “Come with me. I want to show you something.”

Holding her hand I brought her to the framed picture of us all standing before the judge. “Do you remember what that’s a picture of?” I asked. She groggily nodded. “I’m not sure I ever explained why your dad and brother and I all have our hands raised,” I said. “That picture was taken while we made a special promise to always love you and be happy that you are in our family,” I explained. “It’s an oath. It means forever.” “Like a pinky promise?” she asked. “Yes,” I agreed, “just like a pinky promise.”

Madeline smiled and reached up for a hug. We embraced and I sent her off to get dressed for school.

Lori lives in Laguna Niguel, CA with her husband, two kids and beagle.

A sister’s love for a brother with Down Syndrome

November 3, 2010 in Special Needs News by Admin Dawn

Heidi Schlicher was 8 years old when her brother Matt was born on Christmas Eve 1991. She returned home from her grandparents’ excited to meet the new baby and was puzzled to see looks of concern on her parents’ faces.

Her mother said that the nurses who had aided in the delivery suspected her brother had Down Syndrome, and explained that it meant that Matt would take longer to learn than other children.

Over time, fueled by her brother’s unconditional love, Schlicher became a passionate advocate for a variety of organizations that serve special-needs people.

That passion led her and more than 60 others to the rooftop of the SunTrust building in downtown Richmond last Saturday. As part of a fund-raising event called “Over the Edge,” each earned the right to rappel the 25-story office building by collecting a minimum of $1,000 for Special Olympics Virginia.

via Midlothian Exchange – Sports: A sister’s love.

1 in 5 Kids With an Autistic Sibling Show Subtle Symptoms Too

October 22, 2010 in Special Needs News by Admin Dawn

It’s not easy being the brother or sister of an autistic child. “Typical” siblings sometimes feel embarrassed by or responsible for their autistic sib, or may feel jealous of all the attention he gets. Now researchers have found that the siblings of autistic children are affected in another way: up to 20% of these brothers and sisters may have subtler autism-related symptoms of their own. (More on Time.com: Autistic Kids: The Sibling Problem).

The new study involved nearly 3,000 children in 1,235 families with at least one autistic child. All the families had participated in a larger online registry of 35,000 autism-affected families called the Interactive Autism Network.

Of the families included in the current study, 10.9% had more than one child diagnosed with an autism spectrum disorder (ASD). This is consistent with previous research showing that siblings of autistic children are at much higher risk of having an ASD than other children — 22 times higher than children without affected siblings.

But what surprised the researchers was that an additional 20% of the siblings of autistic children showed language delays, and half of these kids had subtle speech problems that are characteristic of autism, such as reversing pronouns or using invented words.

Read more here: 1 in 5 Kids With an Autistic Sibling Show Subtle Symptoms Too – TIME Healthland.

Siblings of A Child With Autism Often Have Subtler Problems

October 8, 2010 in Special Needs News by Admin Dawn

Children with autism tend to have brothers and sisters with language delays and other, less obvious characteristics of the disorder.

Siblings of children diagnosed with autism may benefit for a checkup for related symptoms.

That’s the conclusion of a study of more than 1,200 families in the Interactive Autism Network, a national online research registry.

The finding suggests that the genes behind autism in one child may contribute to less serious problems in that child’s siblings, says Dr. John N. Constantino, of Washington University School of Medicine in St. Louis, lead author of the study, which appears in the American Journal of Psychiatry.

Read more here: Siblings of A Child With Autism Often Have Subtler Problems : Shots – Health News Blog : NPR.

Fibrous dysplasia: a disease very few people know about

October 7, 2010 in Special Needs News by Admin Dawn

Camryn Berry is a sixth-grader dealing with a disease few people have encountered. The tall, thin girl with long dark hair is recovering from her fourth surgery for fibrous dysplasia — a disease that causes a facial tumor that can disfigure her face and disrupt her breathing.

She sits on the on the soccer sidelines watching her brother Caleb, 14, instead of playing.

According to information posted on the Children’s Cranial Facial Association’s website, fibrous dysplasia is a noncancerous skeletal condition in which bone is replaced by structurally weaker tissue. The process continues until bones stop growing.

“The disease, truthfully, isn’t much fun,” 11-year-old Camryn wrote in an e-mail. “I like to play basketball as well as soccer. I am restricted from physical activity for three months. I really hope that I don’t have to miss out on basketball, too.”

She’s a talented writer, but shy about speaking on the phone about the disease that affects her life.

“I definitely don’t like the surprising wakeups in the middle of the night with throbbing teeth pain,” she said. “But, on the other hand, I am so glad that I am getting this experience because, before I was diagnosed, we didn’t even know, let alone think about, all the people and children with these facial differences.

Read more here: Fibrous dysplasia a diseasevery few people know about | The Kennebec Journal, Augusta, ME.

Everyone can relax during mass for kids with special needs

October 7, 2010 in Special Needs News by Admin Dawn

Lindsey Emory’s big brother Bryant sometimes acts a little differently from other children during Mass.

He might see something that grabs his attention and stare. He might hear a song he likes and start dancing in his pew.

And occasionally, when Bryant, 12, who is autistic, behaves that way during church, people stare.

That doesn’t happen, however, at the Special Needs Ministry Mass at St. Luke Parish in Long Valley, Lindsey said.

“(The Mass) makes me feel happy, not just for me, but for Bryant, too,” said 9-year-old Lindsey. The shortened Mass, held once a month, helps Bryant “learn how Mass works,” she said.

“The special-needs Mass makes Bryant very happy, and I think he thinks that he fits in well, and he has a lot of fun there, and he really doesn’t ever want to leave,” she said.

St. Luke Parish in Long Valley is one of area several houses of worship that have created worship services catering to members of their religious communities who have special needs. The emphasis, in most cases, are the littlest members and the families that worship with them.

Read more here: Everyone can relax during mass for kids with special needs in Long Valley, NJ | dailyrecord.com | Daily Record.

Iditarod leads autistic boy to Xenia for service dog

September 21, 2010 in Special Needs News by Admin Dawn

Logan Erickson pressed his nose against the airport window near his hometown of Unalakleet, Alaska.

The little boy with autism who hadn’t spoken in about seven years watched a family friend — Iditarod sled dog musher DeeDee Jonrowe — get on a plane with her dog, Miyagi. Jonrowe had been stuck there because of a storm.

“It was like the perfect moment,” said Logan’s oldest brother, Austen. “He was saying ‘Miyagi’ and Miyagi had just got on the plane. It was perfect. It was cute. It was just amazing to hear him say his word and hear him use his voice.”

Ten months later, the Ericksons were in Xenia on Tuesday at 4 Paws for Ability, a service dog training nonprofit organization.

Read more here: Iditarod leads autistic boy to Xenia for service dog.

The R Word: Sticks, Stones, and Rosa’s Law

September 6, 2010 in Special Needs News by Admin Dawn

What you call people is how you treat them. What you call my sister is how you will treat her. If you believe she’s ‘retarded’ it invites taunting, stigma. It invites bullying and it also invites the slammed doors of being treated with respect and dignity.”

–14-year-old Nick Marcellino, Rosa’s brother, in testimony to the Maryland General Assembly

Say what you will about New Jersey. Yeah, we are called the Soprano state, and, yeah, everyone in Jersey is rumored to have an attitude. You got a problem with that? But I couldn’t be more proud of its recent legislation.

The U.S. Senate passed the bill known as Rosa’s Law in August 2010, and in September it goes before the House. Terms such as “mental retardation” and “mentally retarded” will be removed from federal education, health, and labor laws. Additionally, “a person with a disability” is preferred rather than a “disabled person.” New Jersey passed a similar law in June.

Read more here: The R Word: Sticks, Stones, and Rosa’s Law | World of Psychology.

Special Education: Connections

September 3, 2010 in Special Needs News by Admin Dawn

Discovering your child has special needs can come as a shock and trigger a period of deep reflection and even depression as you attempt to adjust your expectations to meet the new reality. Just like anything else in childrearing, the road ahead is often unclear and may seem solitary. Yet, many parents have found that raising a special needs child can also have unexpected benefits and force constructive changes in their lives.

Suzanne Schwartz, the mother of an 11-year-old autistic son in Tenafly as well as a neurotypical 9-year-old boy, says that she always knew something wasn’t right with her son, although others refused to see it. “My brother was autistic, so I knew that something was wrong,” she says. “But everyone, except my father, tried to deny it.” She describes being incredibly isolated because she says, “you go to play groups and you try to make friends but you can’t have the same conversations and you start to withdraw from them. It doesn’t matter what else you have in common.”

Read more here: NorthJersey.com: Special Education.

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