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Holidays in the Hospital

November 16, 2011 in From the Hospital, Insider Insight by Children's Healthcare of Atlanta

By Ginger Tuminello

Child Life Specialist for Heart, Kidney and Liver Transplant Patients at Children’s Healthcare of Atlanta

The holidays can be stressful, especially if your child is in the hospital. Here are some tips on making the holidays in the hospital a little more bearable.

Acknowledge your feelings and the feelings of your child.

Being in the hospital, especially over the holidays, stinks. Recognize those feelings and say them out loud to your child. Once you’ve established that you’re both sad/upset/frustrated, focus on the things that can make being in the hospital over the holidays better. Just think, one day you may be telling stories that start, “Remember that Thanksgiving we spent in the hospital and had to eat turkey from the cafeteria…”

Continue established family traditions, or some variation of them.

As a family, identify what family traditions are most important to you and find ways to continue them. If your family always goes to church on Christmas morning, find out if the hospital chapel is having a service. If you always make holiday cookies, try making holiday ornaments instead. If your child’s favorite Thanksgiving treat is pumpkin pie, have someone make and bring it to her (if dietary restrictions allow). Or simply postpone Thanksgiving dinner until your child is feeling better and out of the hospital. There are no rules that say you must eat Thanksgiving dinner on Thanksgiving.

Create new family traditions.

Talk to your family about starting new holiday traditions. Make holiday ornaments to put on the hospital tree. Plan a holiday game night using either board games you love or finding new holiday games to play (check out http://www.coolest-christmas-holidays.com for some ideas). Make small gifts for the nursing staff. Organize a toy drive or fundraiser for hospital or organization. Your hospitalized child could always help design a flyer and plan other details.

Find out about special events and visitors offered by the hospital.

During the holidays, lots of folks enjoy volunteering and putting on special events for the hospital. Even though the local nursing home group playing hand bells may not sound very exciting, you might be surprised. Think of these events as opportunities to get out of the room, socialize, and make new holiday memories.

Start a special project with your child.

Take pictures and create a holiday scrapbook. Make holiday cards for other patients. Make gifts for family members. There are lots of inexpensive craft projects that you could do with your child that would provide hours of entertainment and bring a smile to many faces. Check out www.familyfun.com or www.craftbits.com for some great ideas.

Decorate.

Nothing says holidays like decorations. Bring a holiday blanket and pillowcases from home. Create holiday pictures and hang them on the walls. Get a small fake tree, decorate it, and put it on display. Get washable window paint and paint your windows. Wear festive clothing. If the room looks festive, you may find yourself in the holiday spirit. Just be sure to check with the hospital staff about policies regarding lights, hanging pictures, live plants/flowers, and window painting. And don’t forget to bring pictures of your loved ones at home.

Plan one small thing to look forward to each day.

The trouble with being in the hospital is that it gets boring and redundant. Plan something each day that you and your child can look forward to. Pick out an interesting location (i.e., gift shop, outdoor garden area) and plan for an afternoon walk there. Rent or borrow a new movie and plan for a movie night. Borrow a game you’ve never played and have a game night.

Create a schedule for visitors.

Hospital rooms can be tight quarters and too many visitors at once can be overwhelming. Creating a schedule for visitors can help limit the number of visitors and also allow you to schedule some quiet/alone time, which is important.

Find out the visitor policies.

During cold and flu season, some hospitals don’t allow siblings to visit. Find out these policies and ways to work around them. Is there a common area that the siblings can come to, like the cafeteria, so that you have time as a family? Could you use technology like Skype to communicate when you can’t be together? Try playing a game using Skype, making sure there’s a board on each end. Have your children at home and your hospitalized child write letters, send pictures, or record messages/stories often. Getting mail or email can really light up someone’s day.

Make time for yourself.

If someone offers to play with your child so that you can take a break, let them! Go for a walk, get a cup of coffee, or take a shower. Make sure that you are taking time to decompress and focus on yourself.

Use your team.

Your child life specialist, social worker, and chaplain are all great resources to help you and your family cope with hospitalized holidays. Be sure to let them know when you need something or just need to talk. They can be a great source of comfort and support.

We Were In Real Life

March 9, 2011 in Featured, From Julia by Julia Roberts

Rody, Our Mascot!

One of the important things about this site is the connection. Connecting with others who can relate is by far one of the best things about coming here and sharing. Here, you can support and be supported. We love to see people talk in the groups and help each other.

One of our 2011 initiatives was to bring that connection to life by hosting small events. Atlanta seemed like the logical choice and so we set out to plan. We knew we wanted it to be educational. Casual. Affordable. We didn’t want it to start to early or end to late. We talked about future childcare options. Large locations, central to Atlanta. Again, affordability. We ended up settling on a 3 speaker format and the theme of Relationships. Personal, medical and educational relationships and navigating them better in a special needs world.

I’m proud and happy to say our inaugural IRL event in Atlanta was a huge success! Thank you to our sponsors that made it affordable for attendees ($15) and muffins and lunch were deliciously provided by Babette’s Cafe.

Presenting sponsor: Celebrate Calm

Additional sponsors: Hewlett-Packard, and Spin Master

How do we define success?

  • Everyone moved in from seats around to gather for lunch to talk.
  • Everyone loved the format of speakers then lunch then speaker then an hour before we left for the day.
  • Everyone asked when the next one was going to be held.
  • Everyone asked to be put on our mailing list.
  • Many people hugged when they left.

We hope to bring this type of event and others to other cities where we have members. If you think you’d like to have one in your city, let us know! With Dawn in Ohio and several community members there as well, it’s the next logical location…and of course, BlogHer! But that’s another type of event altogether.

Thanks for letting us create a different kind of community. One where we can grow and learn from each other and one where we can figure out what kind of community we want! Thanks Atlanta!

 

The Sensory Under-Responsive Child

February 21, 2011 in Ask the Occupational Therapist, Featured by Susan N. Schriber Orloff, OTR/L

Alex is 6 years old. Unlike his peers he is lethargic, minimally verbally responsive to engagement, has difficulty making eye contact and hesitates entering into gross or fine- motor activities.

He seems shut down as if enshrouded in a fog that limits his ability to interact in his world.

Children like Alex are often under-responsive to tactile, proprioceptive/vestibular input, poor body in space perception and awkward motor abilities both gross and fine. In addition they are easy bullying targets by their classmates due to the above-mentioned characteristics.

They are often unpopular because their motor skills lag behind their peers due to the sensory issues that limit opportunities for learning motor skills.

This under-responsiveness within the vestibular system according to Ayres, can have far-reaching consequences. The neurological connections within the vestibular system reach into the visual system, impacting receptors in the eye, (tracking, reading and visual responsiveness), muscle tone (large and smaller eye muscles as well) and balance (postural security).

These children often have emotional deregulation as well, making them cry more easily and becoming withdrawn. Observed to be sluggish, apathetic, or clumsy social interactions often become painful. It is easy to understand why others might perceive these children to be self-absorbed and inattentive.

In a classroom these children are often the ones who stay in from recess “to finish their work”, when recess is exactly what they need to jump-start their sleeping sensory system.

What can be done to help this child within the occupational therapy setting and as the OT consults to the classroom teacher?

First explain to the teacher that this is an issue of sensory modulation not a behavioral choice on the part of the child. Without getting too technical outline that there are systems that modulate input that are skewed and this child is getting “static” in his interpretation system of incoming stimuli.

For the practicing OT I have briefly outlined (an over simplified) chart to help make this clearer. These descriptions are valid for all sensory irregularities.

CNS SystemFunction
ThalamusActs as a relay between multiple subcortical/sensory organs areas and the cerebral cortex—It is part of the Limbic System
Think “Grand Central Station”
Limbic SystemComplex set of structure that is found on both sides of the Thalamus. Responsible for regulation of emotions. Amygdala (excitation) and the Hypothalamus (calming forces).
Reticular FormationArousal, attention, cardiac reflexes, awareness, motor functions (found in the central core of the brainstem). It creates a pattern of connectivity for convergence and divergence of sensory structures.

This snapshot should help explain why the child looks a particular way and why often-frustrating behaviors are unintentional and need to be addressed by alternative and modified methods.

Classroom suggestions to help teachers address these issues and more effectively teach and reach these sensory under-responsive children (SUR).

BehaviorsSuggestions for classroom teacher
Irregularities with:
• Child seems to be in a continual state of “chaos”
• Language irregularities (expressive)
• Cannot easily elicit rapid fine motor skills
• Slow auditory processing
• Oral apraxia
• Visual spatial dysfunctions
Be structured and present materials in small sections.

Have the child demonstrate what he is to do. Do not expect him to be able to verbalize the process.

Do not rush him, but do give him reasonable time limits.

Actually speak slower. Research has shown that children with auditory processing can synthesize information better when the speaker slows speech by just a few seconds

Present seat work with limited questions on each page.
Irregularities with:
• Impulsiveness
• Obsessive tendencies
• Skewed perspective of situations
• Limited ability to anticipate areas that might need help and/or potential outcomes of a behavior.*
• Labile behavioral reactions*
Provide a lot of structure preferably with 1 or 2-step repetitive processes.

Do not react to the child’s over-reaction, give time to calm and then return him to the task. Do not get into “fair and not fair” discussions.*

Check on his work, he may go off on a tangent and not know he is doing anything wrong.
Irregularities with:
• Endurance
• Abstract reasoning
• Curiosity
• Low persistence with difficult or unfamiliar tasks
• Cognition
• Externalizing and internalizing affect appropriately
Give break times between assignments—this could be walking around the room to collect papers, etc. Just let the child have definite breaks between transitions.

Give him choices within a task so that he has to decide what to do next. Limit choice initially to 2 selections.

Intervene when you see he is “stuck” on a task.

Help him differentiate between what are his thoughts, ideas and feelings and the actions of others. (social skills group could help here).

Remember that the SUR child cannot go “faster”, talk more, transition better, etc. just because he is encouraged to do so. But he can with the right strategies in place.

Susan N. Schriber Orloff, OTR/L, is the author of Learning Re-enabled, a guide for parents, teachers and therapists and Write Incredibly Now™ 12 hours to better handwriting. She is the Executive Director of Children’s Special Services, LLC, in Atlanta, GA. She can be reached on the Web at www.childrens-services.com or through her blog at LDMadeEAsy@blogspot.com. Her WIN™ program is available through YourTherapySource.com.

Why IRL, Why Now?

February 4, 2011 in Featured, From Julia by Julia Roberts

When Dawn and I had this grand plan of Support for Special Needs.com we talked about what we liked about communities online. We talked about how we loved to make connections, share information and resources and how we like to expand our friendship base.

We are certainly making that happen here. We’ve both been able to get to know people here, build friendships and give and get support and we hope that everyone here that is engaged feels the same! Our little Support for Special Needs is growing up. Way back when (a year ago) when we were brainstorming what we wanted to do to make the site unique we talked about turning what is happening online to offline. That was the day we dreamt up some kind of official function we could replicate in cities offline. At the time we didn’t really know what they would look like but we did know that we wanted people to meet, to learn, to connect. We wanted people to enjoy what we’ve enjoyed with people we’ve met online – to connect in real life.

The timing is right and we’re set.

The IRL Connect events were official. We had a logo, a timeline and we had a date! We’re thrilled to announce (again) that our very first IRL Connect event is March 5th in Atlanta. It’s focus is Navigating Relationships in the special needs world relating to personal, healthcare and educational needs. It’s a casual setting with lunch, time for connecting. Here’s specific information on the Atlanta, March 5 event. We welcome our Presenting Sponsor of the event and site contributor, Kirk Martin with Celebrate Calm.

We’re also in the throes of planning an IRL Connect event pre-BlogHer (for August 3) for the Comma Bloggers (my term because I introduce myself as a “Blogger, Special Needs.”). We hope that if you are going to BlogHer you will sign up on our list to make it easier to identify each other (we’ll provide a list electronically before BlogHer). We’re working on a couple of topics for that event with speakers just for us and we’ll let you know when we iron everything out.

I just wanted to thank all of you community members. Thank you for sharing here, for helping each other (and me) and for allowing us to serve the special needs community in a different way through our IRL Connect events.

Doodling: bane to teachers but a boost to the brain

January 31, 2011 in Ask the Occupational Therapist, Featured, Insider Insight by Susan N. Schriber Orloff, OTR/L

I went to “teacher school”; even was one for a while. And I have to say unequivocally that there was no information about how a child learns — just what they should learn.

I guess that is why I became an occupational therapist. I needed to know what was going on “inside” not just the outside — as they say, can be deceiving.

And so it is the case of “doodlers”. Admonished for “not paying attention” they are often made to feel belittled and self-conscious about something they really do on “auto-pilot”.

Recent research has shown that doodling actually helps learning!! The child may not look like he or she is paying attention but science says otherwise. In findings published in Applied Cognitive Psychology (2009) test subjects who doodled while listening to recorded messages had a 29% better recall than those who didn’t.

The article goes no to state that, “If someone is doing a boring task, like listening to a dull telephone conversation, they may start to daydream,” study researcher Professor Jackie Andrade, of the School of Psychology at the University of Plymouth, said in a news release issued by the journal’s publisher. “Daydreaming distracts them from the task, resulting in poorer performance. A simple task, like doodling, may be sufficient to stop daydreaming without affecting performance on the main task.”

Various articles on associative memory contend that doodling can boost retention up to 50% for immediate recall. In other articles there is information that doodling actually helps the learner “opt-IN” to discussions by enhancing recall invigorating multiple neural pathways.

Science is giving a new slant on doodlers, fidgeters, and, Heaven forbid – whisperers!! Reprimands from teachers (and even bosses) may soon be a thing of shame to them NOT to the “culprit”. “Pay attention”, “Are you listening, I will not repeat myself” and “Am I bothering you?” and similar phrases are more than inappropriate, demeaning and harsh – they scientifically wrong.

TIME Magazine (Feb. 2009) states a study that defines the benefits of doodling very simply. It prevents daydreaming. Daydreaming tends to trigger the brain to recruit other networks that shift your attention to other things so you cannot focus on the tasks at hand. Doodling does just the opposite; it keeps the motor running so the brain can focus. And historically we have had some rather impressive doodlers: Winston Churchill, John F. Kennedy, Franklin D Roosevelt, John Keats and Bill Gates to name a few.

Other studies support that doodlers tend to be more organized than their non-doodler counterparts. Doodling, it is reported, actually helps clear the mind by relieving stress and aiding in relaxation. So what is the problem? Obviously with the people that doodling seems to upset. (Teachers??) “Paying attention” in class usually means sitting up straight, feet on the floor, not touching anyone else and eyes on your work or the teacher.

Research has a different slant on doodling. Similar to the analysis of dreams, the inspection of doodles can actually create a better understanding of how a mind works. It is the connection between the conscious and unconscious and that is where we learn. Rather than a distraction, doodling can assist in triggering many major routes for us to store information into long-term memory.

Margaret Livingstone, a Harvard University neurophysiologist writes in her book, Vision and Art: the Biology of Seeing that art is a “spin-off” of our brains visual system and this connection cues neurons. Not only does it help us pay attention, it also helps our mind wander into unimagined areas stimulating associative thinking aiding in symbolic expression.

What is known about doodling is that it increases arousal in the brain and forces it to use up just enough energy to STOP it from daydreaming. Doodling seems to stimulate the right side of the brain that mediates visualizations (reading and writing) leaving the left side (information gathering) to relax and absorb information more readily. Both sides together allow the person to synthesize the total concept being presented.

Encouraging doodling may be a route to increasing attention in class. Wouldn’t it be amazing if “Increase doodling while listening” became an IEP goal?

Susan N. Schriber Orloff, OTR/L, is the author of Learning Re-enabled, a guide for parents, teachers and therapists and Write Incredibly Now™ 12 hours to better handwriting. She is the Executive Director of Children’s Special Services, LLC, in Atlanta, GA. She can be reached on the Web at www.childrens-services.com Her WIN™ program is available through YourTherapySource.com.

Happy new year everyone!

January 7, 2011 in Around the Site by Admin Dawn

Here’s what’s been happening around our community since we last updated:

Are you in Atlanta?

Join us on March 5th for our first (but definitely not last) In Real Life Connect event! We will be adding details over the next month as we finalize speakers but you can get a head start on registration here! Keep an eye out for our updates!

On the Forums

Julia is looking for tips on helping her son with his confidence issues. Have ideas for her? Please share them here.

Andy asked for (and got!) some tips on getting a new digital camera. (Did you know you can share pictures in your profile? Get more info on that here!)

Siobhan is offering a New Year’s discount on Creative Memories scrapbooking supplies! Go here for details — offer ends January 31st!

Melanie would like to hear from community members with experience changing a child’s behavior meds over here.

We have lots of new members! Welcome!

Vicky: “I am a mom to two dtrs who are my world. I am a nurse who currently works in a childcare center.”

Karen Yaughn: “I am a 48 year old single mom of a 7 year old daughter diagnosed with Freeman Sheldon Syndrome with Arthrogryposis, glenoid hypoplasia, midline cleft in the soft palate (repaired).”

The Domestic Goddess: “I am a Domestic Engineer, Total Babe and SAHM to two boys with autism, ADHD, OCD and a variety of other acronyms. I was a band geek in high school, live vicariously through computers and prefer dogs to people, which means I have STELLAR social skills.”

Renee Pratt: “I am a 29 yr old single mom. I have little boys who are my world. My 6 yr old has several disabilities. We currently live in Gwinett & are trying to build a support network with other social need families. My son attends Kanoheda. He is in 1st grade. He has trouble being social but does well doing one on one with a similar diagnosed child.”

Cheneespeaks

Julie Tutwiler: “mom of 2 kids – son has Down syndrome, ADHD and AV Canal defect; daughter has some ADHD and mostly LOTS of attitude”

Sadie

Laura LaPlante: “My name is Laura and I have 3 wonderful kids! My oldest who is 10, has Lyme’s disease, my middle who is 4 has moderate Sensory Integration Disorder along with Lyme’s which was passed through via pregnancy and my youngest who is now 18mths has severe “intolerances” to all Dairy and Soy products (both food and non food items). We remain active to the best of our ability. I have a wonderful, supportive Husband who tries his best. My jobs as both Mother, Wife and Employee to Sprint make my life non-stop.”

Jennifer: “Mother to 4. 2 That are differently-abled. My oldest is nearly 20, my 2nd(ASD-PDD-Nos) 15, my 3rd (severe verbal childhood apraxia, global) is 7 and my 4th is almost 4!”

Jennifer Giroux: “Mom and advocate of 3 children, the oldest of whom has hydrocephalus/strabismus/amblyopia and all the LDs that go with it: NVLD, apraxia, cognitive delay.”

Dana Sears: “I am a Blog designer and a Mom of three boys under five. My second son Mason has been diagnosed with Smith-Magenis Syndrome and PDD-NOS.”

Rachela

Carolyn Dagliesh: “My husband and I are the parents of two wonderful children. I have a home organizing business – Simple Organizing Strategies and I offer in home organizing support for general organizing, paperwork management and closet design. The larger part of my business is my Systems for Sensory Kids business – http://www.systemsforsensorykids.com. As the parent of a “sensory” child, I have learned the importance of organizing supports for “Sensory” Kids in the home. Sensory kids—like those with anxiety disorder, sensory integration dysfunction, learning challenges, ADD/ADHD, obsessive/compulsive disorder, high-functioning autism, Asperger’s syndrome, or other sensory challenges—often look at the world through a different lens. It can be challenging to connect with them, and little things can often turn into major stress points. Learning simple ways to create structure and routines as well as ways to connect and communicate can be life changing in your day-to-day living experience – something that can make the whole family more successful!”

Nicole

Mary

Stacy

Nicole Gutrich

Meagan Watts: “I am the mother of a 3 yr old with Childhood Apraxia of Speech and Sensory Processing Disorder. He’s making tremendous strides and working hard, but we have longer to go before he’s actually able to communicate with others.”

Christie Roberts: “I have two special needs grandchildren. I am a grandmother to ten children.”

Charity

I know we’ve missed a lot of new members since our Great Big Wish List giveaway derailed our community updates! If you would like a special shout-out for your intro, please contact me so I can add you to our list for our next update.

Meanwhile, did you know you can search member profiles? Just go to our members page and put your search term in the search box at the top of the list. You can also list members by new registrations, too, to see who has joined us recently.

We’re looking for your input!

What do you want to see on the site in 2011? So far we’re hearing you’d like more livechats! Michelle Howard has stepped up to volunteer to host a Rant Chat Thursdays at 8pm EST. Just drop in! You can check out Michelle’s blog including her Ranting Sessions for Stress Relief here!

MONICA & DAVID, Screened and Seen

October 12, 2010 in In Real Life by Julia Roberts

Three or so weeks ago very capable and resourceful Dawn saw something come through her email about an HBO Documentary’s MONICA & DAVID and she wondered if we could help preview it for an article to share with our community members on Support for Special Needs. She thought we’d get a great interview, be able to see the film and share it here. Sounds simple, right?

Fast forward a couple of days and it turned into a private screening that we were hosting as our first in real life event. We were thrilled and excited and we kept pinching each other (telephonically). We reached out to special needs friendly AMC Theaters who graciously agreed to host the event at their Atlanta AMC Phipps Plaza. GM Ken and Manager Virginia were the nicest people! Highly recommend you see a movie there!

Last night, with nearly 50 people I was able to introduce the cinemaphotograher, Abel Klainbaum and after the screening he answered questions from the audience. It was really moving to hear what he had to say about the Monica & David and their families. Lovely actually. This was a labor of love, that is for sure.

I hope you will see this documentary. If you have children with special needs, if you love a family that has a child with special needs For people not close to a special needs family, it’s a wonderful way to see some of the issues facing families like ours. If you don’t have HBO, I’m guessing it will come out on DVD.

Now what did I think about the MONICA & DAVID? I thought it was fantastic! It was an extremely personal example of parents wanting their kids to live the best life possible for them – and creating the opportunities for them to do so.

I was struck by both the mothers’ ability to let go and figure out the best way to let their kids live within what we all want – to love and be loved. One of the most insightful things (to me) said by Monica’s mother was that parents of children with special needs have to protect them, but out of that protection, we’re often the ones who treat them poorly – that we shield them from living a full life.

I have to say I did tear up a couple of times both for happy and sad feelings I was having. Thinking about the future of my kids and my fears for them because I want them to be happy and have the kind of life they want was hard for me because it’s hard to picture what their lives will look like. I loved how MONICA & DAVID’s marriage, while different, was a lot like other marriages! She’d tell him how to make the bed and fix the pillows just so! I was charmed by Monica’s directness!

I cried too, because I was so moved by Monica and David’s love for each other. It’s pure and sweet and they are happy. Also, though, it’s complicated. Much like the lives of families of children with special needs.

I flipped through the comment cards and I saw all 4s/5s out of a scale of 1-5 and that everyone would recommend it. Some of the comments were, “Wonderful!” “Thanks for sharing this documentary with us!” “I learned something and I’m already immersed in parenting children with special needs!” “I loved MONICA & DAVID so I hope that we get to see a follow-up one day!” It airs on HBO this Thursday.


Monica & David Screenings Around the Country

October 11, 2010 in Resources by Admin Dawn

Monica, David and filmmaker Alexandra Codina at the Tribeca Film Festival

As you know, Support for Special Needs is hosting a screening of the award-winning documentary Monica & David in Atlanta tonight at AMC Phipps Plaza with cinematographer Abel Klainbaum attendance. (You can still reserve your tickets by clicking here!) It is also premiering on HBO on this Wednesday, October 14th. But if you can’t get to our screening and you don’t have HBO, you can check out the screenings page at the Monica & David web site and watch some clips on their video page. Screening around the country listed so far include:

Long Island, NY, USA

Port Jefferson Film Festival

Editor, Mary Manhardt, will be in attendance.

Monday, October 11 AT 7:00 pm

Towson, MD, USA

Towson University Council of Exception Children Chapter

Screening will be followed by a discussion

Monday, October 11 AT 7:00 pmTowson University, Smith Hall 356

Blacksburg, VA, USA
Monday, October 11 AT 7:00 pmBlacksburg High School, 3109 Price’s Fork RD.

Kansas City, MO, USA

Down Syndrome Guild of Kansas City

Screening followed by a facilitated discussion with Q& A from the audience afterwards. RSVP to Amy Allison amy@kcdsg.org

Monday, October 11 AT 7:00 pmAMC Main Street, AMC 6, 1400 Main Street, Kansas City, MO 64105

San Diego, CA, USA

Qualcomm Screening

Screening followed by an informal networking session. RSVP to lrood@qualcomm.com

Tuesday, October 12 AT 6:00 pm5775 Morehouse Drive, Building N Auditorium

Greeley, CO, USA

University of Northern Colorado Best Buddies Chapter

Lower Level, Lindou Auditorium 501 20th St, Greeley, CO  80639

Tuesday, October 12 AT 6:00 pmUNC, James A Michener Library

Anaheim, CA, USA
Wednesday, October 13 AT 7:00 pm

Albuquerque, NM, USA

Best Buddies New Mexico

UNM Student Union Building, Fiesta A and B 1 University of New Mexico, Building 60, Albuquerque, NM 87131 Screening followed by panel discussion

Wednesday, October 13 AT 7:00 pmUNM Student Union Building, Fiesta A and B

New York, NY, USA

Adaptations and UJA Federation Screening

Screening followed by discussion

Thursday, October 14 AT 8:00 pm

Columbia, MI, USA

Citizen Jane Film Festival

Community Engagement Coordinator, Beckett Horowitz, will be in attendence.

October 15 – October 17

Charlottesville, VA, USA
Saturday, November 6 AT 10:00 am

Tribeca Film Festival Winner: Monica and David

October 5, 2010 in Special Needs News by Admin Dawn

Tribeca’s jurors surprised a trio of family members with the Best Documentary Feature award for their film Monica and David. It’s no wonder. Everyone in it and everything about this documentary shouts “winner.” Despite the touchy subject matter – two people with Downs syndrome who fall in love and marry – audiences see and hear how love is carried out between people whose innocence and capacity for love keep relationships going. It’s extremely rare for intellectually disadvantaged people to marry. But with prodigious support from their parents, this couple proves it can succeed. They’ve been married for five years now and live with Monica’s parents. Also successful are the medical and social advances that allow people with Downs syndrome a life expectancy of 60 years. (In 1983, this number was 25.)

Read more here: Linda Hassler: Tribeca Film Festival Winner: Monica and David.

Sign up for our Atlanta Screening!

A special screening in Atlanta

September 30, 2010 in In Real Life by Admin Dawn

Seven months ago when Julia and I first started talking about building this site we had big plans and most of those plans have come to fruition. We’ve watched you all make connections on the special needs parenting support groups — getting advice, encouragement and even a new recipe for dinner. We’ve watched you pull together as a community — checking out the live chat, joining the book club and adding to the news page. It’s been amazing! But we knew when we started this that we wanted more. We wanted to give you opportunities to have fun in your real lives. That’s why we’ve organized the giveaways and that’s why we’ve put this together:

We are proud to present the Atlanta premiere of the award-winning documentary, MONICA & DAVID, in partnership with HBO and AMC Phipps Plaza in Atlanta, GA. Look at this trailer, doesn’t it look amazing?

The film premieres on HBO on October 14th but we have arranged a special FREE screening for the Support for Special Needs community on Monday, October 11th at 7pm at AMC Phipps Plaza, home to the Sensory Friendly Film Series.

You can reserve your seats to the show by clicking to our sign up page here.

We’ll be featuring an interview with the filmmaker, Alexandra Codina, next week!

It makes sense that Atlanta would be our first in-person event — after all Julia lives there and parenting two kids with special needs means she’s been an active member of that community since her kids were diagnosed. But we plan to come to YOU, too.

If you want us to put your town on our list for any upcoming events you can help by inviting your in-person friends to join our site. If we know that you can help us rally an audience, we will work hard to give you a reason to do it! We’re already planning for next year but first we want to enjoy this inaugural event. If you’re in Atlanta — or close enough to drive in — please join us! Julia would love to shake your hand in person! (Now me, I live in Ohio so I still haven’t been able to shake Julia’s hand in person because we’ve never actually met! Oh the magic of the internet!)

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