web analytics

Supporting your Sensory Child through Spring Break

March 14, 2011 in Featured, Insider Insight by Carolyn Dalgliesh

For “Sensory” kids – those with anxiety disorder, sensory integration dysfunction, learning challenges, ADD/ADHD, obsessive/compulsive disorder, high- functioning autism, Asperger’s syndrome, or other sensory challenges – this can be a time for year filled with uncomfortable experiences like changes in routines, lots of people visiting, and travel to unfamiliar places full of unfamiliar faces. As a professional home organizer and the parent of a sensory and a typical child, I know the importance of coming up with a few simple ways to provide extra support during the holidays to help your “sensory” child and the whole family enjoy the season. Pick the one or two things that are the hardest for your “sensory” child and create extra support to target those challenges.

Preparing for Changes in Routines

Preparing our “sensory” child for what is coming is a one way to support them in their day-to-day experiences all year round. This is especially true this time of year when there are frequent changes in their regular schedule. Create a visual support whenever possible before the change is coming. Explain in pictures and/or words the new schedule making sure to highlight what they have done before successfully or people that will see that they enjoy. Make sure to include a few options of what can be done when your child is overwhelmed or needs an break.

Visits and Interactions with New People

Spontaneous visits can happen very frequently this time of year. Try to set the expectation of more visits and social interactions. For younger “sensory” kids, try making a story about “People we see during the spring break and the holidays”. You can also talk about the social expectations of these visits in the book – saying “hi” and introducing yourself to the visitor. For older “sensory” kids, make a laminated sheet that explains what you expect them to do socially with visitors, how long they need to stay and “visit” and when they can go do their own thing.

Make Travel Easier

Again, preparation ahead of time is key to making holiday travel easy on yourself, your family and your “sensory” child. Give your “sensory” child a visual of where you are going via online sites, pictures of the family home you will be staying and the people you will be seeing. For younger sensory kids, make a trip book that explains what will happen during your travels. During your visit, set-up a space for your child that is their “escape and regulate” spot. It can hold the toys or things that are calming and relaxing for your “sensory” child.

Creating Routines during Vacation Week

The lack of regular structure during the holiday vacation time can also be a challenge for most “sensory” kids. Create a special calendar for vacation week and write in a loose schedule of what is happening. Have a list to the side of the calendar that will give your “sensory” child options of what you might do when during your free time. Be sure to write in the things that will hard for your child so the expectation is set and they will be prepared to be successful.

Take some of the stress out of the holidays for you, your family and your “sensory” child. Create a few simple supports to prepare them for new routines, to set expectations for frequent visitors and more social interactions, and to make holiday travel successful. Happy Holidays!

Carolyn Dalgliesh is the owner of Simple Organizing Strategies and Systems for Sensory Kids. She can be reached at Carolyn@simpleorganizingstrategies.com or (401)413-2811.

 

Welcome to New Members

March 11, 2011 in Around the Site, Featured by Admin Dawn

Gail Curran: Gail works at the Arizona Centers for Comprehensive Education and Life-Skills. Are you in Arizona? Look Gail up!

Achieve Beyond: Achieve Beyond specializes in nationwide pediatric therapy and autism services for children ages 5 and under including states like California, Illinois, New York, Virginia and Conencticut. Achieve Beyond uses a family focused approach in providing early intervention speech therapy, occupational therapy, physical therapy, ABA/autism therapy and psychological counseling. We strive to serve our patients and their families by providing services and evaluations support in their predominant language, at both the home and community settings. We also offer private pay / insurance services, educational workshops for parents and therapists as well as translation / interpretation services at several of our branches.

Denise Moberg: Retired from 30 years as an SLP in the public schools. Currently have a part time private practice.

Kyra: I am a stay at home mother of 4 kids. 2 are Special Needs. My 7 yr old has ADHD, Auditory Processing Disorder, Sensory Modulation Disorder, and Dyspraxia (the last 3 are very new to us). My 2 yr old has Apraxia and Sensory Modulation Disorder. My other 2 kids are just in special need of special attention. I am on a leave of absence from school right now so that I can get a better handle on my family and concentrate more on them than me.

Julie Fick: I am a full time mom to my son who has DiGeorge Syndrome. We live in Woodstock, GA.

Alisa Ricketts: I have been married for almost 20 years and I am a SAHM of two teenagers, one of whom is a special needs child.

Patricia: I have a 7 yr old with odd severe, conduct disorder, ocd tendencies, generalized anxiety disorder, separation anxiety disorder severe

Ayoca Freeman: I have two beautiful daughters; their ages are 8 and l year old. My oldest was blessed with an extra chromosome better known as Trisomy 21, one of the types of Down syndrome.

Jennifer McMahan: Mom to 2 beautiful daughters. The youngest one has Dravet Syndrome. I am actively involved as a volunteer in the IDEA League, the only organization that provides advocacy, support, education and research for Dravet Syndrome. Their website is http://www.Idea-League.org. It is my goal to help raise money for research as well as educate the public on this very rare syndrome.

Amanda L.: Mommylebron is the slightly diabolical leader of Lefam (just don’t tell LeDaddy, he thinks he’s the leader, riiight). She is a snarky & sweet mom on a mission! Once she attains her goal of world domination she will educate all its poeple on pediatric mental illness and erradicate stigma. All while wearing a really cute apron. This domestic diva, kitchen queen, laundress extraordinaire also enjoys writing, reading, movies, scrap booking, word puzzles, kiddie cuddles, wet kisses, big brown eyes……Oh, and, during her “on time” she molds the only-slightly-less-diabolical-minds of 4 year old’s (aka preschool teacher).

Stephanie LeMieux: I have a boy with HFA and Tourette’s

Happy new year everyone!

January 7, 2011 in Around the Site by Admin Dawn

Here’s what’s been happening around our community since we last updated:

Are you in Atlanta?

Join us on March 5th for our first (but definitely not last) In Real Life Connect event! We will be adding details over the next month as we finalize speakers but you can get a head start on registration here! Keep an eye out for our updates!

On the Forums

Julia is looking for tips on helping her son with his confidence issues. Have ideas for her? Please share them here.

Andy asked for (and got!) some tips on getting a new digital camera. (Did you know you can share pictures in your profile? Get more info on that here!)

Siobhan is offering a New Year’s discount on Creative Memories scrapbooking supplies! Go here for details — offer ends January 31st!

Melanie would like to hear from community members with experience changing a child’s behavior meds over here.

We have lots of new members! Welcome!

Vicky: “I am a mom to two dtrs who are my world. I am a nurse who currently works in a childcare center.”

Karen Yaughn: “I am a 48 year old single mom of a 7 year old daughter diagnosed with Freeman Sheldon Syndrome with Arthrogryposis, glenoid hypoplasia, midline cleft in the soft palate (repaired).”

The Domestic Goddess: “I am a Domestic Engineer, Total Babe and SAHM to two boys with autism, ADHD, OCD and a variety of other acronyms. I was a band geek in high school, live vicariously through computers and prefer dogs to people, which means I have STELLAR social skills.”

Renee Pratt: “I am a 29 yr old single mom. I have little boys who are my world. My 6 yr old has several disabilities. We currently live in Gwinett & are trying to build a support network with other social need families. My son attends Kanoheda. He is in 1st grade. He has trouble being social but does well doing one on one with a similar diagnosed child.”

Cheneespeaks

Julie Tutwiler: “mom of 2 kids – son has Down syndrome, ADHD and AV Canal defect; daughter has some ADHD and mostly LOTS of attitude”

Sadie

Laura LaPlante: “My name is Laura and I have 3 wonderful kids! My oldest who is 10, has Lyme’s disease, my middle who is 4 has moderate Sensory Integration Disorder along with Lyme’s which was passed through via pregnancy and my youngest who is now 18mths has severe “intolerances” to all Dairy and Soy products (both food and non food items). We remain active to the best of our ability. I have a wonderful, supportive Husband who tries his best. My jobs as both Mother, Wife and Employee to Sprint make my life non-stop.”

Jennifer: “Mother to 4. 2 That are differently-abled. My oldest is nearly 20, my 2nd(ASD-PDD-Nos) 15, my 3rd (severe verbal childhood apraxia, global) is 7 and my 4th is almost 4!”

Jennifer Giroux: “Mom and advocate of 3 children, the oldest of whom has hydrocephalus/strabismus/amblyopia and all the LDs that go with it: NVLD, apraxia, cognitive delay.”

Dana Sears: “I am a Blog designer and a Mom of three boys under five. My second son Mason has been diagnosed with Smith-Magenis Syndrome and PDD-NOS.”

Rachela

Carolyn Dagliesh: “My husband and I are the parents of two wonderful children. I have a home organizing business – Simple Organizing Strategies and I offer in home organizing support for general organizing, paperwork management and closet design. The larger part of my business is my Systems for Sensory Kids business – http://www.systemsforsensorykids.com. As the parent of a “sensory” child, I have learned the importance of organizing supports for “Sensory” Kids in the home. Sensory kids—like those with anxiety disorder, sensory integration dysfunction, learning challenges, ADD/ADHD, obsessive/compulsive disorder, high-functioning autism, Asperger’s syndrome, or other sensory challenges—often look at the world through a different lens. It can be challenging to connect with them, and little things can often turn into major stress points. Learning simple ways to create structure and routines as well as ways to connect and communicate can be life changing in your day-to-day living experience – something that can make the whole family more successful!”

Nicole

Mary

Stacy

Nicole Gutrich

Meagan Watts: “I am the mother of a 3 yr old with Childhood Apraxia of Speech and Sensory Processing Disorder. He’s making tremendous strides and working hard, but we have longer to go before he’s actually able to communicate with others.”

Christie Roberts: “I have two special needs grandchildren. I am a grandmother to ten children.”

Charity

I know we’ve missed a lot of new members since our Great Big Wish List giveaway derailed our community updates! If you would like a special shout-out for your intro, please contact me so I can add you to our list for our next update.

Meanwhile, did you know you can search member profiles? Just go to our members page and put your search term in the search box at the top of the list. You can also list members by new registrations, too, to see who has joined us recently.

We’re looking for your input!

What do you want to see on the site in 2011? So far we’re hearing you’d like more livechats! Michelle Howard has stepped up to volunteer to host a Rant Chat Thursdays at 8pm EST. Just drop in! You can check out Michelle’s blog including her Ranting Sessions for Stress Relief here!

Assessments In the Driver’s Seat

November 3, 2010 in Ask the Special Ed Lawyer, Insider Insight by dianaglick

The most important thing to remember about assessments is that they not only determine eligibility — they also drive placement and services.

A good and appropriate initial assessment can be used by the IEP team to determine whether a child is eligible for special education. My prior articles have described the requirements for eligibility, in short: a qualifying disability and a showing that the disability interferes with a student’s ability to access his or her education. However, that initial assessment will also set the stage for the placement and services offered by the district. While the eligibility category (such as autism, specific learning disability, or a speech/language impairment) will signal the main interventions to be provided, an IEP should include services necessary to address all of your child’s areas of need.

For example, if a child is eligible for special education as a student with Other Health Impairment because of a diagnosis of ADHD, he should receive services designed specifically to address the challenges arising from attention deficit. However, it is possible that in the scope of the assessment, the evaluator also identifies some problems with social/emotional functioning, such as withdrawal, anxiety or depression. These issues should be addressed as well, usually by an initial offer of school-based counseling, or a social skills groups for students.

When Assessments Steer You Wrong

Clearly, when an assessment is used to conclude that a child is not eligible for special education or not eligible under a certain category that you may be seeking, this can be a frustrating setback in your advocacy efforts. However, the worst assessments are the ones that provide absolutely no useful information about a child. Even if you disagree with a particular recommendation or conclusion that the district may have drawn from an assessment, the data itself can still be very helpful in understanding your child’s educational strengths and deficits.

Some of the more common issues that that arise with assessments are when the district fails to use an appropriate testing instrument, fails to properly score a test, or fails to administer or conduct any testing in an area that is a known issue with the child. To expand upon the example above with the child who suffers from ADHD, if that child’s teachers have noted troubling behaviors in the classroom that they believe could be emotionally-based, or if his parents are raising concerns about his mental health status, this would be considered an additional area of suspected disability. When his triennial re-evaluation rolls around, the district should absolutely include some kind of assessment to address these concerns.

Federal law sets forth several requirements for evaluations, including that they be conducted at least every three years, but not more than once per year unless agreed upon by the IEP team. A full assessment should include a variety of testing instruments and tools, so as not to rely on a single measurement of a child’s ability. In addition, standardized tests should be administered in accordance with the publisher’s instructions by knowledgeable and qualified personnel, should be given in the language of the student and should not be racially or culturally discriminatory. One key requirement is that the child must be assessed in all areas of suspected disability.

Getting Back on Track

A major part of my practice involves helping parents navigate a situation in which their child has not been appropriately assessed. The law allows parents to obtain an independent educational evaluation (IEE) at public expense when they disagree with a district assessment. A key point to note: there generally must be an assessment with which to disagree. While there are exceptions to every rule, if the district simply fails to assess and you take them to court, they will likely be given an opportunity to conduct an evaluation before having to pay for a private one.

If you request an independent educational evaluation, federal regulations provide the district with two choices: they can either agree to your request or they can file for due process to establish that their assessment was appropriate. In most cases, the district will determine that it is more cost-effective to pay for an independent assessment than to incur the expense of a due process hearing against the parents. However, it is important to know that the district may file for due process in response to a request for an IEE.

Many times, a district will deny the parents the requested IEE, but fail to bring due process. In this situation, parents often seek out a private assessment themselves and then request that the district reimburse them. They may have to file for due process against the district in order to obtain this reimbursement.

If the district agrees to fund an IEE, parents should be given the opportunity to negotiate with them regarding the independent professional who will conduct the evaluation. It is important to go with an assessor who is truly independent of both the parents and the district so that all sides feel they are getting an objective opinion. Ask other parents in your community for references in order to identify the good assessors in your area.

Once an independent assessment has been conducted, the district should convene an IEP meeting to consider the results of that assessment. If the independent assessor draws different conclusions than the district, this may strengthen the parents’ argument for a particular category of eligibility, a particular placement or additional or different services. Parents may use the independent assessment in a due process hearing against the district to establish that the district’s assessment was inappropriate or that the child has been denied services because of the district’s failure to identify his or her needs.

While trying to obtain an appropriate assessment of your child can be a frustrating experience, the law has built in a mechanism for a second opinion, which in most cases I recommend pursuing. Having more information about the student’s strengths and deficits leads to better team decision-making, better educational planning and better outcomes for the child.

ADHD Overdiagnosed? September is ADHD Awareness Month

September 8, 2010 in Special Needs News by Admin Dawn

September is ADHD awareness month. Recently there have been many debates over the validity of diagnosis and contributing factors.

In the latest information available in Missouri, nearly 8 percent of children between ages 4-17 were diagnosed with ADHD. This rate matches the national average. To put this number in perspective, it would be equal to 181 children in Linn County being diagnosed with ADHD. Broken down by gender, boys are about 3 times more likely than girls to have ADHD. Doctors and educators are doing everything they can to shed more light on this condition. “

We have many things to look for in helping with potential ADHD students,” observes Gary Routledge, Director of The Linn County Health Department.

“The first person to get involved would be the teacher, who would have a conversation with the nurse and counselor, who in turn would meet with parents and help recommend a course of action involving a pediatrician.”

Many symptoms are similar to medical and psychological conditions related to other disorders such as bi-polarism. Students will often have trouble staying focused and completing work. Their grades may drop and behavioral problems arise. Since these incidents are truly behavioral and not actually connected to a true disease with medical symptoms they are very tough to diagnose accurately.

Read more here: ADHD Overdiagnosed? September is ADHD Awareness Month – Brookfield, MO – Linn County Leader.

by

A thank you to our community

May 14, 2010 in Around the Site by

Our site has now been live for two weeks and we wanted to take a minute to thank all of you who have joined our community! Here’s some information about what’s happened since we launched!

  • •  We are on board to break 100 registered members by the end of today! (There are 97 as of this post at 11pm Thursday)
  • •  We have added more than a dozen new support groups to our list of state and province-wide groups. Members have created several including ADHD/ADD with learning disabilities, Language and Auditory Processing Disorders, Sibling support, Mental Illness/Mood Disorder the very busy Autism Spectrum Disorders Forum and more. Check ‘em out! Don’t see one that fits your needs? You can create exactly the support group you’ve been waiting for.
  • •  People are connecting, finding new resources and making new friends.
  • •  We are exceeding industry-set benchmarks for site growth!
  • •  We’ve had nearly 9000 pageviews and our stats tell us that when our visitors come by, they stay. They come to browse our content and stay to read the groups. You guys are doing a great job of creating a supportive, welcoming community and we THANK YOU!
  • •  We’ve given away a Magic Blanket™, a box of great summer reads, an amazing guided imagery book, a pound of gourmet coffee and we’re about to give away a sound machine sheep! We’ve also lined up a lot more fabulous giveaways that we’ll be scheduling throughout the summer so stay tuned.
  • •  Speaking of coffee, we also secured a nice deal for our community. All our members can get $10 off any Aroma Ridge order by using code GET10! This is good stuff people, high octane!
  • •  I finally fixed the comments to the posts. (I know, I know. Maybe I should have done that before the launch but see how responsive I am when someone tells me something needs fixed?) So please comment away on some of our terrific Insider Insight articles. Your comments will help drive future content as we learn what YOU want to read and share with the community. Also we encourage you to ask questions of our insiders. We’ll pass them on and you just might see the topic addressed in a future article.

We are so excited to see the support community we envisioned in February coming to fruition. We have big plans ahead and terrific content (interviews, profiles, featured resources) scheduled. And of course we welcome YOUR input. Please share with us your thoughts and what content you would like to see. What topics would you like addressed? Let us know!

The (Magic) Weighted Blanket Giveaway

May 1, 2010 in Giveaways, Product Reviews by Julia Roberts

Gage says, "I like it how I like it!"

For our first contest we’re giving away The Magic Blanket™

A couple of years ago when my son was having his first bout of acute depression it manifested in numerous ways, including interrupted sleep, another blogger told me about the weighted blanket. I can’t believe that in all the years working with multiple therapists I’d never heard about it (weighted collars for PT therapy, yes) so I started doing some research and found The Magic Blanket™ through google searches. I searched around and from the sites I found, The Magic Blanket prices were most competitive.

What I liked about the site? They told me what weight blanket I needed for Gage’s weight (under 70 lbs) and we could choose the fabric and pattern. They custom make a lot of them and so I ordered a camouflage, 10 pound blanket for Gage and he loved it (we’ve since purchased at second at 15lbs). Gage is somewhat complicated…sensory issues, hyper, depressed, delayed. If a weighted blanket could at least help him rest, well, then I was willing to try it.

They call it magic, we call it a miracle!

I had no idea that weighted blankets could help with some of the issues that Gage has but it does. To this day where Gage sleeps, the blanket goes (Honestly, camping? Yes.). All 15 lbs. of it. It’s one of the seven things he needs to sleep! Hey! I said he had issues. (items include two pillows, fan, two stuffed animals and a completely dark room.)

Their website says,

Weighted blankets, like The Magic Blanket™, have shown to generate proprioceptive input on our bodies. For many people, this input causes the brain to release neurotransmitters like serotonin, dopamine, among others. These neurotransmitters released by the brain have naturally calming effects, which have proven to be beneficial for people experiencing sensory integration disorder, anxiety, stress, Asperger’s Syndrome, ADHD, and Rett Syndrome. It’s important to note that The Magic Blanket is not a substitute for care from an occupational therapist or mental health professional.

Here’s how you can win a Magic Weighted Blanket!

First register as a user and we’ll enter your name into a random drawing. We’ll include every single person who (is and) becomes a registered user before Friday, May 7, 2010 5PM, PST! The winner will get to pick the weight – an 8, 10, 12 or 15 lbs blanket in any pattern in a fleece style and they will ship it for FREE. Blanket value $75-115. (Just a note — we’re going to be running lots of giveaways and only registered community members will be eligible so go ahead and register today to be eligible for future giveaways!)

Want another entry? Here are two more ways to win:

  1. Tweet the contest! Just click the cute little Twitter bird peeking out in the first “Sharing is Caring” button below. Then comment back here with a link to your Twitter status so we can check it out.
  2. Blog about the contest. Let your readers know about Support for Special Needs and our terrific community resources. Then comment here to let us know you did it.

Keith, at The Magic Blanket™ jumped at the chance to bring a weighted blanket to one of our community members. Want to talk to him about one for your kid (or yourself) if you don’t win? Call Keith at (877) 711-2020.

Good luck!

%d bloggers like this: