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Profile picture of Sylvia Ross

Sylvia Ross @sylvia ?

active 6 months ago
We are HOME! Day 54! Yippeee! View
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  • Profile picture of Sylvia Ross

    Sylvia Ross commented on the post, Hello, Lover!, on the site Kidneys and Eyes 6 months, 1 week ago

    Someday I won’t be stuck in this walking boot and can get back into some real ones!

  • Profile picture of Sylvia Ross

    Sylvia Ross replied to the forum topic Summer? Stressed for ready? in the group Group logo of Anything GoesAnything Goes 1 year ago

    Ready, sorta. Summer is hard here because Micah (3 yrs old) is extremely heat intolerant. So we can’t be outside after 10am usualy, unless he is in the pool (doesn’t like sprinklers yet). Because of this, we are […]

  • Profile picture of Sylvia Ross

    Sylvia Ross commented on the post, 10 Things That Make My Special Needs Life Easier, on the site Support for Special Needs 1 year, 1 month ago

    Finally having a friend who understands our lives. Her 5 year old son is a pediatric cancer survivor. Even though it’s a very different diagnosis, she understands the fight I have to fight to get my son the care […]

  • Profile picture of Sylvia Ross

    Sylvia Ross replied to the forum topic I feel like I'm sinking here… in the group Group logo of Caregiver StressCaregiver Stress 1 year, 2 months ago

    I’m there with ya too. My 2 year old is hurting, big time. We have spent every minute of the last 4 days on my bed with him on serious pain meds, trying to keep him out of the hospital for pain control, but still […]

  • Profile picture of Sylvia Ross

    Sylvia Ross replied to the forum topic Changing Peds Sucks. in the group Group logo of Caregiver StressCaregiver Stress 1 year, 3 months ago

    Ugh, I hate finding new providers! We went through half a dozen GI doctors with Jennifer before I completely gave up on them. Turns out we needed an endocrinologist and an allergist, not a GI doc. But anyway, I hear ya.

  • Profile picture of Sylvia Ross

    Sylvia Ross replied to the forum topic worry wrap in the group Group logo of Anything GoesAnything Goes 1 year, 3 months ago

    We’re doing okay. The worry wrap serves a dual purpose… I’m making another one and it’s keeping me occupied! She wanted a snuggle wrap that the 3 of us can share if we need snuggles with extra comfort. So […]

  • Profile picture of Sylvia Ross

    Sylvia Ross replied to the forum topic worry wrap in the group Group logo of Anything GoesAnything Goes 1 year, 3 months ago

  • Profile picture of Sylvia Ross

    Sylvia Ross started the forum topic worry wrap in the group Group logo of Anything GoesAnything Goes 1 year, 3 months ago

    My 5 year old gets really worried when her little brother is in the hospital, missing both of us, worried about him not being well, etc. Plus she may be going with dh to Australia for 2 weeks this Spring. I […]

  • Profile picture of Sylvia Ross

    Sylvia Ross commented on the post, Sweet Trip to Build-A-Bear®, on the site Support for Special Needs 1 year, 4 months ago

    We love build a bear too! We like to go for birthdays with the non-birthday sibling who gets to pick a new snuggle buddy for the birthday kid. :-)

    My favorite story about stuffed animals is my 2 year old son […]

  • Profile picture of Sylvia Ross

    Sylvia Ross commented on the post, I Didn’t Sign Up for This, God!, on the site Support for Special Needs 1 year, 5 months ago

    I definitely need this book.

  • Profile picture of Sylvia Ross

    Sylvia Ross replied to the forum topic Daily Injections in the group Group logo of Medical Special NeedsMedical Special Needs 1 year, 5 months ago

    We started early last week. She ran away from us and then hid under the nurse’s chair in the doctor’s office. And screamed bloody murder the first few times. She’s finally realized it’s not too bad, […]

  • Profile picture of Sylvia Ross

    Sylvia Ross replied to the forum topic This parenting stuff is hard! in the group Group logo of Caregiver StressCaregiver Stress 1 year, 6 months ago

    I’m right there with you! What I’ve found the most helpful (still not perfect though) is to explain to the kids that I have the grumpies because we’ve had a rough day, and I’d really like a second chance or a […]

  • Profile picture of Sylvia Ross

    Sylvia Ross started the forum topic Daily Injections in the group Group logo of Medical Special NeedsMedical Special Needs 1 year, 6 months ago

    Anybody have to give their kid daily injections? My almost 5 year old is starting on growth hormone sometime in the next week, and I am anticipating lots of tears. Tips? I am comfortable giving injections since […]

  • Profile picture of Sylvia Ross

    Sylvia Ross replied to the forum topic Organizing Thanksgiving for Special Diets in the group Group logo of Organizing … Specialized!Organizing…Specialized! 1 year, 6 months ago

    This is our 3rd gluten free Thanksgiving. We have a LOT of food allergens in the family, but I just try to make sure I have a balanced yummy meal available for each of us, which means I make a bread item (and buy […]

  • Profile picture of Sylvia Ross

    Sylvia Ross commented on the post, iPad2 Giveaway. Seriously., on the site Support for Special Needs 1 year, 6 months ago

    Is there any way to remove my entry? There are others who need it more than I do. :) I tried to delete my comment but couldn’t see how to.

  • Profile picture of Sylvia Ross

    Sylvia Ross commented on the post, iPad2 Giveaway. Seriously., on the site Support for Special Needs 1 year, 6 months ago

    Oh wow! Awesome giveaway!!! I’m doing a public FB note too since I don’t have a public blog, only a private one.

  • Profile picture of Sylvia Ross

    Sylvia Ross replied to the forum topic Just shoot me now. Please? in the group Group logo of Medical Special NeedsMedical Special Needs 1 year, 6 months ago

    Oy vey. A sedated CT scan, 3 sets of chest x-rays (so 12 total) a thoracentesis and 3 nights in the hospital and we come home with a diagnosis of reactive airway. Yeesh!

  • Profile picture of Sylvia Ross

    Sylvia Ross commented on the post, Why @xtremeparnthood Encourages a Wandering Emergency Plan, on the site Support for Special Needs 1 year, 6 months ago

    Wow, scary situation!

  • Profile picture of Sylvia Ross

    Sylvia Ross posted on the forum topic Just shoot me now. Please? in the group Group logo of Medical Special NeedsMedical Special Needs: 1 year, 6 months ago

    Thanks ladies. They’re going to do a thoracentesis tomorrow morning to drain the fluid and run some tests on it. Then we’re going to see if he improves, how much, and how long it takes for it to come back. Then we’ll have to decide if we are going to mess with the shunt that’s [...]

  • Profile picture of Sylvia Ross

    Sylvia Ross posted on the forum topic Just shoot me now. Please? in the group Group logo of Medical Special NeedsMedical Special Needs: 1 year, 6 months ago

    Alrighty then… now they’re saying he doesn’t have an infection, so we’re trying to figure out what is going on and what needs to be done about it. He’s been admitted because he wasn’t improving on the antibiotics and we need some answers!

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  • Profile picture of Sylvia Ross

    Sylvia Ross commented on the post, Hello, Lover!, on the site Kidneys and Eyes 6 months, 1 week ago

    Someday I won’t be stuck in this walking boot and can get back into some real ones!

  • Profile picture of Sylvia Ross

    Sylvia Ross replied to the forum topic Summer? Stressed for ready? in the group Group logo of Anything GoesAnything Goes 1 year ago

    Ready, sorta. Summer is hard here because Micah (3 yrs old) is extremely heat intolerant. So we can’t be outside after 10am usualy, unless he is in the pool (doesn’t like sprinklers yet). Because of this, we are […]

  • Profile picture of Sylvia Ross

    Sylvia Ross commented on the post, 10 Things That Make My Special Needs Life Easier, on the site Support for Special Needs 1 year, 1 month ago

    Finally having a friend who understands our lives. Her 5 year old son is a pediatric cancer survivor. Even though it’s a very different diagnosis, she understands the fight I have to fight to get my son the care […]

  • Profile picture of Sylvia Ross

    Sylvia Ross replied to the forum topic I feel like I'm sinking here… in the group Group logo of Caregiver StressCaregiver Stress 1 year, 2 months ago

    I’m there with ya too. My 2 year old is hurting, big time. We have spent every minute of the last 4 days on my bed with him on serious pain meds, trying to keep him out of the hospital for pain control, but still […]

  • Profile picture of Sylvia Ross

    Sylvia Ross replied to the forum topic Changing Peds Sucks. in the group Group logo of Caregiver StressCaregiver Stress 1 year, 3 months ago

    Ugh, I hate finding new providers! We went through half a dozen GI doctors with Jennifer before I completely gave up on them. Turns out we needed an endocrinologist and an allergist, not a GI doc. But anyway, I hear ya.

  • Profile picture of Sylvia Ross

    Sylvia Ross replied to the forum topic worry wrap in the group Group logo of Anything GoesAnything Goes 1 year, 3 months ago

    We’re doing okay. The worry wrap serves a dual purpose… I’m making another one and it’s keeping me occupied! She wanted a snuggle wrap that the 3 of us can share if we need snuggles with extra comfort. So […]

  • Profile picture of Sylvia Ross

    Sylvia Ross replied to the forum topic worry wrap in the group Group logo of Anything GoesAnything Goes 1 year, 3 months ago

  • Profile picture of Sylvia Ross

    Sylvia Ross started the forum topic worry wrap in the group Group logo of Anything GoesAnything Goes 1 year, 3 months ago

    My 5 year old gets really worried when her little brother is in the hospital, missing both of us, worried about him not being well, etc. Plus she may be going with dh to Australia for 2 weeks this Spring. I […]

  • Profile picture of Sylvia Ross

    Sylvia Ross commented on the post, Sweet Trip to Build-A-Bear®, on the site Support for Special Needs 1 year, 4 months ago

    We love build a bear too! We like to go for birthdays with the non-birthday sibling who gets to pick a new snuggle buddy for the birthday kid. :-)

    My favorite story about stuffed animals is my 2 year old son […]

  • Profile picture of Sylvia Ross

    Sylvia Ross commented on the post, I Didn’t Sign Up for This, God!, on the site Support for Special Needs 1 year, 5 months ago

    I definitely need this book.

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