Rachelle @rockatweety ?active 2 years, 2 months ago
I am the mother to a wonderful most precious angel with special needs. My daughter Alyssa has OPCA (a degenerative brain disease), Cerebral Palsy, Microcephaly, ONH (optic nerve hypoplasia) Infantile Spasms (a form of Seizures), developmental delay (almost 2 and at a 6 month level) and has a G Tube. She is the happiest most beautiful baby girl I know. I was devastated at first but came to realize that God chose me to raise this blessing and I thank him every day for her. I stay strong so that she will stay strong. I used to pray for healing but them realize that in order for God to heal her he would have had to make a mistake when he created her. God does not make mistakes. Now I pray that he will just keep her happy and make her the best she possibly can be. I have my moments when I must cry and morn that child I dreamt of but I never let her see me. I use the shower for that release period. I know that for me to dwell in her short comings would only take away from the time I have her since with her degenerative brain disease I do not know how long God will bless me with her. She was born with 3 rare diagnosis so we say she is extra special 3x's over. I love her more than anyone could ever know and I would not change her for the world. She is my precious angel.
August 6, 1972