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Profile picture of Marisa Howard-Karp

Marisa Howard-Karp @mhowardkarp ?

active 8 months, 1 week ago
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  • Profile picture of Julia Roberts

    Julia Roberts commented on the post, For better or worse. Or worse., on the site Kidneys and Eyes 1 day, 3 hours ago

    I completely understand…because, let’s face it, the kids health surrounds everything we do. As far as lessons, well, a lot of it we just make up as we go along.

  • Profile picture of Julia Roberts

    Julia Roberts commented on the post, For better or worse. Or worse., on the site Kidneys and Eyes 1 day, 3 hours ago

    Awww, thanks. But it’s really Julian.

  • Profile picture of Susan

    Susan commented on the post, Surrounded by the love of a public school., on the site Kidneys and Eyes 1 day, 11 hours ago

    Awww….this is bringing tears to my eyes. What a wonderful community (and what wonderful kids!)

  • Profile picture of Julia Roberts

    Julia Roberts wrote a new post, Surrounded by the love of a public school. , on the site Kidneys and Eyes 1 day, 12 hours ago

    ThumbnailFor the last nine years, we’ve sent Gage and Quinnlin off to our small neighborhood elementary school. This week marks the transition to middle school for our youngest, which means we give up the safe, nurturing […]

  • Profile picture of Robert Rummel-Hudson

    Robert Rummel-Hudson wrote a new post, The Things That Matter, on the site Support for Special Needs 3 days, 10 hours ago

    ThumbnailI take a lot of things for granted.

    Looking back on what was undeniably a bad week, there were many elements I wasn’t feeling very good about. I was already feeling low myself, even before Schuyler’s Miracle […]

  • Profile picture of Julia Roberts

    Julia Roberts commented on the post, For better or worse. Or worse., on the site Kidneys and Eyes 4 days, 12 hours ago

    So glad you commented Carrie! Thanks for reading along and I’m super happy to learn there are more people how can handle the jokes we make and make them too!

  • Profile picture of Julia Roberts

    Julia Roberts commented on the post, For better or worse. Or worse., on the site Kidneys and Eyes 5 days, 4 hours ago

    It’s true, when you vacation with us there is bound to be A) A natural disaster B) A hurt adult needing emergency care C) A kid whose kidney team thinks they should get to a hosptial STAT.

    So, if you want to […]

  • Profile picture of Julia Roberts

    Julia Roberts commented on the post, For better or worse. Or worse., on the site Kidneys and Eyes 5 days, 5 hours ago

    Thanks for saying that…we started out with a good foundation, so that for sure helped when the times got tough!

  • Profile picture of Julia Roberts

    Julia Roberts wrote a new post, For better or worse. Or worse. , on the site Kidneys and Eyes 1 week, 1 day ago

    I am not sure when I knew I’d get through some hard times with my marriage to Julian intact but I am sure I thought it would be when we said, “Yes” and “I do” in 1994, but it wasn’t. That day as people laughed and […]

  • Profile picture of Robert Rummel-Hudson

    Robert Rummel-Hudson wrote a new post, One Small Light, on the site Support for Special Needs 1 week, 3 days ago

    ThumbnailThere’s someone I want to talk to. There’s someone I want to reach. There’s someone I desperately wish would listen to me.

    And it isn’t you. Sorry.

    It isn’t you because you are already here, at a site called […]

  • Profile picture of Julia Roberts

    Julia Roberts wrote a new post, This Mother Wants, on the site Kidneys and Eyes 1 week, 4 days ago

    ThumbnailOn Friday I was in an ER room with my son, who now feels fine (I know!), he’s playing a game on his phone and holding a stuffed animal, which is what he does when we’re here. I was thinking of course we’re in the […]

  • Profile picture of Julia Roberts

    Julia Roberts wrote a new post, When it’s Not Fair for Our Kids, on the site Kidneys and Eyes 2 weeks ago

    Thumbnail

    In what can only be described as Not Fair, Gage has decided to cancel his Spring Break Redo trip we had planned for the weekend.

    Over a month ago during spring break, Gage ended up in the children’s […]

  • Profile picture of Robert Rummel-Hudson

    Robert Rummel-Hudson commented on the post, Tooth and Claw (and an IEP), on the site Support for Special Needs 2 weeks, 3 days ago

    I suspect a little of everything. We’ll find out soon enough, I guess.

  • Profile picture of Robert Rummel-Hudson

    Robert Rummel-Hudson wrote a new post, Tooth and Claw (and an IEP), on the site Support for Special Needs 2 weeks, 3 days ago

    ThumbnailWhat to say this morning, in the aftermath of Schuyler’s IEP meeting last Friday?
    It was the best of times, it was the worst of times.
    I thought it might be a bad one going in, actually, one in which we were […]

  • Profile picture of Julia Roberts

    Julia Roberts wrote a new post, 5 (special needs) Relationship Tips, on the site Support for Special Needs 3 weeks, 1 day ago

    ThumbnailJust off of a blissful 18th wedding anniversary I wrote this post with tips on how we’ve made our relationship (with the challenges we’ve faced) work. I’ve been thinking about this a lot because we are approaching […]

  • Profile picture of Robert Rummel-Hudson

    Robert Rummel-Hudson wrote a new post, Field of Dreams, on the site Support for Special Needs 3 weeks, 3 days ago

    ThumbnailOne of the most satisfying relationships that Schuyler has had over the years has been with the Miracle League. For those of you who don’t know, Miracle League gives over 200,000 kids and young adults with […]

  • Profile picture of Julia Roberts

    Julia Roberts wrote a new post, Where I Am, on the site Kidneys and Eyes 4 weeks ago

    Every once in a while I get to write that I’ve written in some other places and today is one of those days.

    BlogHer - I’m so proud to have a post on BlogHer for their Being a Mother Made Me series (as part of […]

  • Profile picture of Julia Roberts

    Julia Roberts wrote a new post, Tips for Making Life Easier in Special Needs, on the site Support for Special Needs 4 weeks ago

    I was driving my son to an appointment the other day and I was thinking about the chaos our family used to be in when he and his sister were little. Like years ago when we had 15 appointments a week and my head […]

  • Profile picture of Robert Rummel-Hudson

    Robert Rummel-Hudson wrote a new post, What We Need From Schuyler, on the site Support for Special Needs 1 month ago

    ThumbnailI’ve written for years about what Schuyler needs. From her teachers, from her parents, from her friends. From the world, really.

    But let’s talk about something else. Let’s discuss what the world needs from […]

  • Profile picture of Julia Roberts

    Julia Roberts wrote a new post, Special Needs Parent Wish List, on the site Support for Special Needs 1 month ago

    Looking for a new healthcare provider, therapist or tutor? What do you want? Because I have two kids with multiple issues, we’ve had the chance to work (and fire) a lot of professionals. What do you look for in a […]

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  • Profile picture of Julia Roberts

    Julia Roberts commented on the post, For better or worse. Or worse., on the site Kidneys and Eyes 1 day, 3 hours ago

    I completely understand…because, let’s face it, the kids health surrounds everything we do. As far as lessons, well, a lot of it we just make up as we go along.

  • Profile picture of Julia Roberts

    Julia Roberts commented on the post, For better or worse. Or worse., on the site Kidneys and Eyes 1 day, 3 hours ago

    Awww, thanks. But it’s really Julian.

  • Profile picture of Susan

    Susan commented on the post, Surrounded by the love of a public school., on the site Kidneys and Eyes 1 day, 11 hours ago

    Awww….this is bringing tears to my eyes. What a wonderful community (and what wonderful kids!)

  • Profile picture of Julia Roberts

    Julia Roberts wrote a new post, Surrounded by the love of a public school. , on the site Kidneys and Eyes 1 day, 12 hours ago

    ThumbnailFor the last nine years, we’ve sent Gage and Quinnlin off to our small neighborhood elementary school. This week marks the transition to middle school for our youngest, which means we give up the safe, nurturing […]

  • Profile picture of Robert Rummel-Hudson

    Robert Rummel-Hudson wrote a new post, The Things That Matter, on the site Support for Special Needs 3 days, 10 hours ago

    ThumbnailI take a lot of things for granted.

    Looking back on what was undeniably a bad week, there were many elements I wasn’t feeling very good about. I was already feeling low myself, even before Schuyler’s Miracle […]

  • Profile picture of Julia Roberts

    Julia Roberts commented on the post, For better or worse. Or worse., on the site Kidneys and Eyes 4 days, 12 hours ago

    So glad you commented Carrie! Thanks for reading along and I’m super happy to learn there are more people how can handle the jokes we make and make them too!

  • Profile picture of Julia Roberts

    Julia Roberts commented on the post, For better or worse. Or worse., on the site Kidneys and Eyes 5 days, 4 hours ago

    It’s true, when you vacation with us there is bound to be A) A natural disaster B) A hurt adult needing emergency care C) A kid whose kidney team thinks they should get to a hosptial STAT.

    So, if you want to […]

  • Profile picture of Julia Roberts

    Julia Roberts commented on the post, For better or worse. Or worse., on the site Kidneys and Eyes 5 days, 5 hours ago

    Thanks for saying that…we started out with a good foundation, so that for sure helped when the times got tough!

  • Profile picture of Julia Roberts

    Julia Roberts wrote a new post, For better or worse. Or worse. , on the site Kidneys and Eyes 1 week, 1 day ago

    I am not sure when I knew I’d get through some hard times with my marriage to Julian intact but I am sure I thought it would be when we said, “Yes” and “I do” in 1994, but it wasn’t. That day as people laughed and […]

  • Profile picture of Robert Rummel-Hudson

    Robert Rummel-Hudson wrote a new post, One Small Light, on the site Support for Special Needs 1 week, 3 days ago

    ThumbnailThere’s someone I want to talk to. There’s someone I want to reach. There’s someone I desperately wish would listen to me.

    And it isn’t you. Sorry.

    It isn’t you because you are already here, at a site called […]

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