I joined the group a while back and never introduced myself. Sorry! My daughter Daphne is 3yo, and will get a kidney transplant soon. My husband is the donor. She was born at 27w, minutes after her identical twin sister, Leah, died. Leah’s death is what caused Daphne’s kidney damage. We were not sure if she was going to make it past the initial shock, but her kidneys started working, little by little, and then she had to overcome all the usual preemie issues. She was in the NICU for 5 months. She also had a congenital heart defect, common in mono/mono twins. That was corrected with open heart surgery when she was 6 months old, which further aggravated the kidney disease. Now, she has about 30% kidney function and each lab result is a little bit worse. We are currently looking to schedule surgery for August, if things continue as they are. I look forward to meeting other families here.