When I said, “Seriously, we’re not talking about anything else until you take your meds.” I realized there are so many things I say in the typical (haha) week that I couldn’t fathom saying before I was a […]

Two little known facts for post kidney transplant patients:

1) Because of immunosuppression it is not advisable for patients to handle birds; mainly because their feces carries a high level of germs that cause […]

Some times about transplant just doesn’t come up when you are discussing donors and surgeries with doctors and coordinators..

- Even before the patient is awake out of anesthesia there is urine in the […]

Here’s a link to great information from the PKD Foundation on nutrition and diet for renal patients. Click here to the webinar.

The Story of PKD

We’re happy to report that Champ, the Build-A-Bear on an adventure around the world has landed in Slovenia.

Do you know where that is? Yeah, I didn’t either, but now I do. I’m told from the family that Champ […]

This is going to be one of those posts where I have a lot in my head but don’t want to enter in 4 different posts, so this is what you get.

“You get what you get and you don’t pitch a fit.” Teachers everywhere. […]

Did you know?

There are so many little things to learn about kidney failure and transplant that you don’t think about until you’re faced with it at transplant time…

A great example is that if they can, […]

Transplant terminology.

It’s procure not harvest.

It’s living, unrelated related donor. 

It’s deceased donor.

Also? I think I could get a job consulting on television shows about how to handle kidney […]

It’s overwhelming when you have a child diagnosed with something. For me, I just lived in a fog. At least three months. I don’t remember how we performed the day to day functions for our family. But we did. I wish […]

Finding the right care team is one of the most important things you can do in the care of a chronic illness of your child. I recently changed pediatricians and I’m so surprised, just 3 weeks into our first […]

Remember when I sent this letter to my pediatrician? Our pediatrician of 10 years. I faxed it twice because the founder of the practice did not respond to it the first time I faxed it. You know, benefit of the […]

The thing about star power is that it brings terrific awareness to causes. Happy to hear that Sarah Hyland of Modern Family fame has gone public with her kidney condition and about the new kidney she got from her […]