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Organ Transplants
Public Group active 3 weeks, 3 days ago agoSupport for organ transplant related issues
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Julia Roberts posted an update in the group
Organ Transplants 3 weeks, 3 days ago@karen, this group is “public” meaning it could come up on specific searches…wondering if you want to edit names out of your post (Know you consider privacy an issue for your old kids!) You can easily edit without losing the whole post. It could come up on specific searches in good but someone wouldn’t be able to comment if they aren’t a…[Read more]
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megan posted an update in the group
Organ Transplants 3 weeks, 3 days agoHi! I’m Megan and I have one daughter, who is 20 months- with the same rare form of common kidney disease as Julia, ARPKD. She also has spinabifida oculta- unrelated to her kidney disease- but compounds her disorder and can complicate it. We’re kind of new to the whole thing, and trying to navigate our way through a diagnosis that we don’t…[Read more]
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Julia Roberts replied to the forum topic Introductions again… in the group
Organ Transplants 4 weeks agoI have 2 kids with a rare form of a common disease – polycystic kidney disease. Theirs is ARPKD (autosomal recessive). They also share a vision disorder – OMA (ocularmotor apraxia) and she has an additional one […]
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Nicole Wardell joined the group
Organ Transplants 4 weeks ago -
Karen Lincoln replied to the forum topic Introductions again… in the group
Organ Transplants 4 weeks, 1 day agoFor those who are new to the group I’ll post the “short” story about my family.
The Threelivers Family Story
Our daughter Jennifer was born in 1986 with an undefined liver disease. She was evaluated at 4 […]
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megan joined the group
Organ Transplants 1 month ago -
Julia Roberts started the forum topic Introductions again… in the group
Organ Transplants 1 month agoI am sending someone new to this group, so I wanted to start introductions again. Please introduce yourself!
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Paula Ruter joined the group
Organ Transplants 7 months ago -
Nancy Foreman joined the group
Organ Transplants 1 year, 8 months ago -
Jennifer Ryan joined the group
Organ Transplants 1 year, 9 months ago -
Heather joined the group
Organ Transplants 1 year, 10 months ago -
Jess joined the group
Organ Transplants 1 year, 11 months ago -
Tiara McFalls joined the group
Organ Transplants 1 year, 11 months ago -
rebecca call joined the group
Organ Transplants 2 years ago -
posted on the forum topic Introductions in the group
Organ Transplants: 2 years agoI have two kids with polycystic kidney disease (recessive) and they both had kidney transplants at age 8. Our son was on dialysis before and it was rough. He’s had a lot of medical intervention and he’s paying the price emotionally now. Both kids’ kidneys are stable, with no rejection – from 2007 and 2010 [...]
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joined the group
Organ Transplants 2 years ago -
started the forum topic Introductions in the group
Organ Transplants: 2 years agoI have two kids that were born with an undefined familial liver disease. Most likely some form of PFIC, progressive familial intraheptic choleostasis. My daughter is now 24 years old and had her first liver transplant at 7 years old at Children’s Medical of Dallas in 1993. My son is now 19 yrs old and [...]
Megan, so glad to see you hanging out here! I need to make sure you and member Sylvia ”meet” on here — her son has spinabifida.
her profile…”friend” here http://supportforspecialneeds.com/members/sylvia/