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Group logo of Medical Special Needs

Medical Special Needs

Public Group active 1 month ago ago

Juggling medical specialists, extensive hospital stays, and/or multiple surgeries? Let’s discuss the special challenges of raising a child with medical special needs.

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  • Profile picture of Mama Meerkat

    Mama Meerkat joined the group Group logo of Medical Special NeedsMedical Special Needs 1 month ago

  • Profile picture of Tracy

    Tracy replied to the forum topic Daily Injections in the group Group logo of Medical Special NeedsMedical Special Needs 1 month, 1 week ago

    My 3 year old has been on growth hormone injection Nutrapen since he was only a few months old. He does awesome with it. He pulls up his pant leg (we only rotate legs). If I give him his vitiamin while I do the […]

  • Profile picture of Tracy

    Tracy joined the group Group logo of Medical Special NeedsMedical Special Needs 1 month, 1 week ago

  • Profile picture of megan

    megan joined the group Group logo of Medical Special NeedsMedical Special Needs 1 month, 1 week ago

  • Profile picture of CM French

    CM French joined the group Group logo of Medical Special NeedsMedical Special Needs 3 months ago

  • Profile picture of Debbie Arenson

    Debbie Arenson joined the group Group logo of Medical Special NeedsMedical Special Needs 3 months ago

  • Profile picture of Colleen Pohl-Weary

    Colleen Pohl-Weary started the forum topic Pediatric Home Apnea Monitor? where to buy/rent in the group Group logo of Medical Special NeedsMedical Special Needs 3 months, 3 weeks ago

    my 3 year old has had his angelcare monitor alarm 3 separate nights over the last few weeks – we have 2 under him now – i am concerned because when i go in he’s either not been breathing or has had very very […]

  • Profile picture of Sylvia Ross

    Sylvia Ross replied to the forum topic Daily Injections in the group Group logo of Medical Special NeedsMedical Special Needs 5 months, 3 weeks ago

    We started early last week. She ran away from us and then hid under the nurse’s chair in the doctor’s office. And screamed bloody murder the first few times. She’s finally realized it’s not too bad, […]

  • Profile picture of Julia Roberts

    Julia Roberts replied to the forum topic Daily Injections in the group Group logo of Medical Special NeedsMedical Special Needs 5 months, 3 weeks ago

    Hi you guys (Sylvia, I don’t know how I missed this!),
    Both kids have been on injections and the best thing that worked for them was a warm compress before and after – we just used one of those microwave […]

  • Profile picture of Michele Karl

    Michele Karl replied to the forum topic Daily Injections in the group Group logo of Medical Special NeedsMedical Special Needs 5 months, 3 weeks ago

    We are about to start as well with our five year old. We went to a friends house recently who does growth hormone and my son watched his friend get it. I heard it is not as painful as other shots but I know my son […]

  • Profile picture of Laura

    Laura joined the group Group logo of Medical Special NeedsMedical Special Needs 6 months, 1 week ago

  • Profile picture of Sylvia Ross

    Sylvia Ross started the forum topic Daily Injections in the group Group logo of Medical Special NeedsMedical Special Needs 6 months, 1 week ago

    Anybody have to give their kid daily injections? My almost 5 year old is starting on growth hormone sometime in the next week, and I am anticipating lots of tears. Tips? I am comfortable giving injections since […]

  • Profile picture of Sylvia Ross

    Sylvia Ross replied to the forum topic Just shoot me now. Please? in the group Group logo of Medical Special NeedsMedical Special Needs 6 months, 2 weeks ago

    Oy vey. A sedated CT scan, 3 sets of chest x-rays (so 12 total) a thoracentesis and 3 nights in the hospital and we come home with a diagnosis of reactive airway. Yeesh!

  • Profile picture of Emily

    Emily posted on the forum topic Just shoot me now. Please? in the group Group logo of Medical Special NeedsMedical Special Needs: 6 months, 2 weeks ago

    Really, that’s one of the hardest things I think, just waiting until they know what’s going on. I hate it when they say, “oh it looks like ‘x’” so you prepare for ‘x’ and you get everything ready, mentally and physically to deal with ‘x’ and then they come back and say, “Oops, no. It [...]

  • Profile picture of Sylvia Ross

    Sylvia Ross posted on the forum topic Just shoot me now. Please? in the group Group logo of Medical Special NeedsMedical Special Needs: 6 months, 2 weeks ago

    Thanks ladies. They’re going to do a thoracentesis tomorrow morning to drain the fluid and run some tests on it. Then we’re going to see if he improves, how much, and how long it takes for it to come back. Then we’ll have to decide if we are going to mess with the shunt that’s [...]

  • Profile picture of Diane Davis

    Diane Davis joined the group Group logo of Medical Special NeedsMedical Special Needs 6 months, 2 weeks ago

  • Profile picture of Diane Davis

    Diane Davis posted on the forum topic Just shoot me now. Please? in the group Group logo of Medical Special NeedsMedical Special Needs: 6 months, 2 weeks ago

    Sending thoughts and prayers. The mom in me hates when things just can’t be fixed.

  • Profile picture of Julia Roberts

    Julia Roberts posted on the forum topic Just shoot me now. Please? in the group Group logo of Medical Special NeedsMedical Special Needs: 6 months, 2 weeks ago

    Thinking of you Sylvia! Hope they find out what is going on SOON!

  • Profile picture of Sylvia Ross

    Sylvia Ross posted on the forum topic Just shoot me now. Please? in the group Group logo of Medical Special NeedsMedical Special Needs: 6 months, 2 weeks ago

    Alrighty then… now they’re saying he doesn’t have an infection, so we’re trying to figure out what is going on and what needs to be done about it. He’s been admitted because he wasn’t improving on the antibiotics and we need some answers!

  • Profile picture of Sylvia Ross

    Sylvia Ross posted on the forum topic Just shoot me now. Please? in the group Group logo of Medical Special NeedsMedical Special Needs: 6 months, 2 weeks ago

    Pneumonia, with partial atelectasis. Lovely. It’s funny, he doesn’t even have a cough.

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