My 3-year-old son had a grade 1 bleed right side bleed as a 27 weeker and was diagnosed with mild left hemiparesis last fall, though whether that diagnosis sticks remains to be seen, based on his improvements since then. My 5 week old baby girl (28 weeker, still in the NICU) also has a grade [...]

I’m so glad to see this group exists! I’m the mom to Roo, who has cerebral palsy that nobody knows the cause of and that nobody can seem to define – best we’ve come up with is mild athetoid/dystonic (though she doesn’t really have dystonia). She recently got SMOs (with butterflies on them!) and uses [...]

I am mom of 4 children 12, 7 and 21 month old twins. Ashton, one of the twins, has Cerebral Palsy Spastic Quadriplegia as well. The rest of the children do not face any challenges of special needs. I don’t see this as just his challenge. I see this as a family challenge. We invest [...]

If you don’t ALWAYS do exactly what the therapists tell you to do, do not beat yourself up. Tomorrow is a brand new day!!

A doctor once told me to look at him for him and not what I expected him to be. THat I need to just take the time to encoarge and support what he is able to do rather than pushing him to do more.