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Faith & Disability

Public Group active 3 weeks, 4 days ago ago

SNAPPIN’ MINISTRIES, a Christian-based organization will lead a forum on issues affecting families within the faith setting. Parents of all faiths & denominations are welcome. We ask that participants be respectful of differing beliefs while sharing what they believe in this forum.

Reasonable expectations at church? (6 posts)

  • Profile picture of Sylvia Ross Sylvia Ross said 1 year, 4 months ago:

    Am I being unreasonable when I expect the nursery staff to keep foods that my 21 mo old is allergic to out of his reach? What about all of the rotating nursery staff who “don’t know what to do about his walker”? Ummm, you let him use it when he needs it! Don’t put it in the bathroom “so the other kids don’t touch it.” Hello? He can’t WALK without it. I’m tired of telling each set in the rotation to let the other kids check it out, use it, etc as long as Micah doesn’t want it, but when he wants it, their turn is over and he gets it back. There used to be a woman who was in there every week with the rotating helpers but she has been sick and not there for a while and since then he’s gotten hold of cheerios twice (he’s allergic to both wheat AND oats!) and someone’s milk another time. Ugh.

  • Profile picture of Tina Seward Tina Seward said 1 year, 4 months ago:

    No, you’re not being unreasonable. Do you have a nursery coordinator at your church? He/she might be the best person to speak to.

  • Profile picture of Roxanne Kielpikowski Roxanne Kielpikowski said 1 year, 4 months ago:

    I’m the children’s ministry director at our church, and it sounds like you need to talk to your CM director or nursery coordinator. In the case of kids with special needs, we actually work as a team with our parents to make sure our kids’ needs are being met – both physical and spiritual. The food allergies definitely need to be addressed – his health depends on it! Schedule a meeting and make sure you bring something in writing about what needs to be done (or not be done). My son has a life-threatening peanut allergy, and I have signs posted all over our classrooms. I also bring his Epi Pen to church every week, just in case something unexpected happens. And, yes, unfortunately, you’ll have to give everyone instructions EVERY WEEK. It’s frustrating, but it’s definitely worth the time and effort. My ASD son has milk, wheat, and egg allergies, and I’m constantly reminding people not to feed him anything that I don’t send for him to eat. Praying that things work out for you!

  • Profile picture of Michelle Howard Michelle Howard said 1 year, 3 months ago:

    I agree with Roxanne that you should speak to the person in charge. However, you have to also realize that its difficult for people who aren’t used to caring for special needs children. It’s nice that they want to accommodate him. At my church my son doesn’t go to children’s church because they are just not equipped to care for him.

    On another note my daughter has an epi pen because “supposedly she has a peanut allergy” However it cost me $130 for the epi pen set and she has never used it and I know for a fact she’s had food with peanut in it. This came from her having an allergy to eating peanut butter when she was like 2. She’s now 16 and never had a reaction and hasn’t watched her eating.

  • Profile picture of Shannon Shannon said 1 year, 3 months ago:

    What about having a written set of instructions that you can hand out to the Sunday School teacher if it’s a new one. Then they have no excuses for not knowing. Also, it may help them to feel better about what they’re allowed to do and not do.

  • Profile picture of Chaotic Mom Chaotic Mom said 1 year, 3 months ago:

    I used to like church so much. It’s been a challenge with our 8 year old. He’s deaf, but can’t really use an interpreter. I just found out about a church in town that has several deaf people attending, with an interpreter. I might check there to see if anyone might be willing to spend some one-on-one time with him, too. It’s just so hard for him to sit in church and not know what’s going on. Then it’s also hard to explain it to him. There was a Sunday School teacher who was so patient and loving with him, even tried to learn as much sign language as she could. But my little guy felt out of place, anyway. It wore him out, first church, then Sunday School. We’re not giving up, though.