Ok, so my daughter has Celiac disease. She failed to grow for 6 months at the age of 3 months due to lack of nutrients, resulting from her undiagnosed allergies. So here’s what I’m polling the audience about. She has a place she goes where she makes progress in her speech therapy, and social skills, has a good time and thrives. She likes it, and I like that she likes it. From a parental perspective, however, there’s a lot of BS to deal with that I don’t like. The icing on the cake, however, was yesterday when for the umpteenth time they gave her GLUTEN. They have strict instructions not to give her food I didn’t send her with. They have a list of foods and other items that contain gluten. I’ve spoken to them ad nauseum about not feeding her unless I sent it or they get my approval ahead of time. Despite all of this, I cannot get them to honor my requests, and she repeatedly gets gluten containing foods.
I get it, really. Since she doesn’t immediately break into hives, or drop on the floor dead, it seems like not a big deal. But it IS a big deal.
So, I’m at a point now, where I can choose to stop sending her there, or not. I’m very torn. Like I said, she’s happy, she’s thriving, mostly things are good. But then there’s the other stuff, and on top of that the continued proof that I cannot count on them to take her health seriously.
What do y’all think? Would you try again, to get it through their heads? Would you trust them again?
Thanks for the input.
Laura