My daughter is 10 years old and was diagnosed with hydrocephalus at 18 months, shunted at 19 months. She is on an IEP at school and receives speech and occcupational therapy at school, pull out for math and push in for language arts. She is a pretty happy girl but really wants to have some friends.

A specialist I took my 2 year old son to suggested that he has slight spasticity in his lower legs, Babinski’s reflex, and had some white matter brain damage in his deep brain white matter. He called it a static encephalopathy. No one has yet called it Cerebral Palsy, but I’m pretty sure that would explain why he stumbles over one leg all the…[Read more]

I didn’t realize this group existed until just now. My daughter has what has been classified as mild athetoid/dystonic CP. (She doesn’t seem to actually have dystonia, but the neurologist used that term so for now I use it too.) Hello!

I have a son with both as well. However his Hydrocephalus has been considered benign and he has been released from that specialist!!