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Cerebral Palsy and Hydrocephalus
Public Group active 4 months, 2 weeks ago agoMy daughter has both. I am interested in talking with other parents who have a child or children with one or both of these. Anyone is welcome to join to put their own opinions, facts or ask questions.
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Jennifer Giroux posted an update in the group
Cerebral Palsy and Hydrocephalus 4 months, 2 weeks agoMy daughter is 10 years old and was diagnosed with hydrocephalus at 18 months, shunted at 19 months. She is on an IEP at school and receives speech and occcupational therapy at school, pull out for math and push in for language arts. She is a pretty happy girl but really wants to have some friends.
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Jennifer Giroux joined the group
Cerebral Palsy and Hydrocephalus 4 months, 2 weeks ago -
Tammy Giardina posted an update in the group
Cerebral Palsy and Hydrocephalus: 6 months, 3 weeks agoI have an 8 year old son who wears an AFO on his right foot. The latest one he received is a bit bulky. I have heard on the CP/Hemiplegia list serve I read occasionally that the Croc’s brand shoes are good. Does anyone have any experience with this?
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Tammy Giardina joined the group
Cerebral Palsy and Hydrocephalus 6 months, 3 weeks ago -
Laurie joined the group
Cerebral Palsy and Hydrocephalus 7 months, 3 weeks ago -
Jean Schroeder joined the group
Cerebral Palsy and Hydrocephalus 8 months, 3 weeks ago -
Erin joined the group
Cerebral Palsy and Hydrocephalus 9 months ago -
CJ joined the group
Cerebral Palsy and Hydrocephalus 9 months, 2 weeks ago -
Courtney joined the group
Cerebral Palsy and Hydrocephalus 10 months, 4 weeks ago -
Shelley Mannell posted an update in the group
Cerebral Palsy and Hydrocephalus: 1 year agostudy in Experimental Brain Research journal in 2010 indicates that children with spastic CP have more difficulty with sitting balance with their eyes closed (not so for children with dyskinetic CP). These children may be using their eyes to reinforce their balance which may interfere with their ability to use their eyes for reading. Ask your PT!
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Very interesting. My son has spastic cp and has trouble sitting steady with his eyes open!
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Shelley Mannell joined the group
Cerebral Palsy and Hydrocephalus 1 year ago -
Colleen Pohl-Weary posted an update in the group
Cerebral Palsy and Hydrocephalus: 1 year agoA specialist I took my 2 year old son to suggested that he has slight spasticity in his lower legs, Babinski’s reflex, and had some white matter brain damage in his deep brain white matter. He called it a static encephalopathy. No one has yet called it Cerebral Palsy, but I’m pretty sure that would explain why he stumbles over one leg all the…[Read more]
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Colleen Pohl-Weary joined the group
Cerebral Palsy and Hydrocephalus 1 year ago -
Tubaville joined the group
Cerebral Palsy and Hydrocephalus 1 year ago -
Marla_B posted an update in the group
Cerebral Palsy and Hydrocephalus: 1 year agoI didn’t realize this group existed until just now. My daughter has what has been classified as mild athetoid/dystonic CP. (She doesn’t seem to actually have dystonia, but the neurologist used that term so for now I use it too.) Hello!
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Marla_B joined the group
Cerebral Palsy and Hydrocephalus 1 year ago -
Julie Vila joined the group
Cerebral Palsy and Hydrocephalus 1 year ago -
Ruth Nelson posted an update in the group
Cerebral Palsy and Hydrocephalus: 1 year, 1 month agoI have a son with both as well. However his Hydrocephalus has been considered benign and he has been released from that specialist!!
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Ruth Nelson joined the group
Cerebral Palsy and Hydrocephalus 1 year, 1 month ago -
Sylvia Ross posted an update in the group
Cerebral Palsy and Hydrocephalus: 1 year, 2 months agoMy son has hydrocephalus secondary to Spina bifida and Chiari II malformation. He was shunted (VP) at 10 days old and has had 3 revisions.
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Tammy, when our daughter had them we went to get her fitted for a pair of shoes…there were a few brands that run wider. Crocs wouldn’t have worked for our girl because she lacked (and still does) the toe strength to keep shoes like that on her feet and trips too much. She JUST this past summer started wearing flipflops, although she’s worn…[Read more]
Micah can’t do Crocs either. We love Keens hiking style shoes. I get them from zappos.com (free shipping both ways if you want to try a couple of different sizes to see what she needs). The insoles were easy to remove to allow extra depth for his AFOs.
Claire used to wear AFO’s in her shoes and we found that Stride Rite x-tra wide shoes worked best. They are a little expensive, but gave her solid support. Crocs do not work for her, as much as she would like them to. They just don’t offer enough support.