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	<title>Comments for Support for Special Needs</title>
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		<title>Comment on Scouting &amp; Special Needs by CJ Lucke</title>
		<link>http://supportforspecialneeds.com/2012/02/22/scouting-special-needs/comment-page-1/#comment-2373</link>
		<dc:creator>CJ Lucke</dc:creator>
		<pubDate>Wed, 22 Feb 2012 17:58:57 +0000</pubDate>
		<guid isPermaLink="false">http://supportforspecialneeds.com/?p=7426#comment-2373</guid>
		<description>We provide training on inclusion for out of school programs like the Scouts. Give us a call if you think we can help!</description>
		<content:encoded><![CDATA[<p>We provide training on inclusion for out of school programs like the Scouts. Give us a call if you think we can help!</p>
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		<title>Comment on Scouting &amp; Special Needs by Jennifer King</title>
		<link>http://supportforspecialneeds.com/2012/02/22/scouting-special-needs/comment-page-1/#comment-2372</link>
		<dc:creator>Jennifer King</dc:creator>
		<pubDate>Wed, 22 Feb 2012 17:01:37 +0000</pubDate>
		<guid isPermaLink="false">http://supportforspecialneeds.com/?p=7426#comment-2372</guid>
		<description>Yay!</description>
		<content:encoded><![CDATA[<p>Yay!</p>
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		<title>Comment on Unfair Monsters by Louise Kinross</title>
		<link>http://supportforspecialneeds.com/2012/02/20/unfair-monsters/comment-page-1/#comment-2371</link>
		<dc:creator>Louise Kinross</dc:creator>
		<pubDate>Wed, 22 Feb 2012 16:01:28 +0000</pubDate>
		<guid isPermaLink="false">http://supportforspecialneeds.com/?p=7408#comment-2371</guid>
		<description>Hi -- Just a thought (which may be totally off base). But is there any chance Schuyler was having a panic attack vs a seizure from all of the over-stimulation?

It was just a thought I had when I read your description.

This is a beautiful piece of writing.</description>
		<content:encoded><![CDATA[<p>Hi &#8212; Just a thought (which may be totally off base). But is there any chance Schuyler was having a panic attack vs a seizure from all of the over-stimulation?</p>
<p>It was just a thought I had when I read your description.</p>
<p>This is a beautiful piece of writing.</p>
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		<title>Comment on Scouting &amp; Special Needs by Jana A</title>
		<link>http://supportforspecialneeds.com/2012/02/22/scouting-special-needs/comment-page-1/#comment-2370</link>
		<dc:creator>Jana A</dc:creator>
		<pubDate>Wed, 22 Feb 2012 13:27:26 +0000</pubDate>
		<guid isPermaLink="false">http://supportforspecialneeds.com/?p=7426#comment-2370</guid>
		<description>I love hearing this. Enjoy the Camporee!</description>
		<content:encoded><![CDATA[<p>I love hearing this. Enjoy the Camporee!</p>
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		<title>Comment on Scouting Inclusion Policies &amp; Special Needs by Girl Scouts and Special Needs &#124; Kidneys and Eyes</title>
		<link>http://supportforspecialneeds.com/2011/12/21/scouting-inclusion-policies-special-needs/comment-page-1/#comment-2369</link>
		<dc:creator>Girl Scouts and Special Needs &#124; Kidneys and Eyes</dc:creator>
		<pubDate>Wed, 22 Feb 2012 13:21:29 +0000</pubDate>
		<guid isPermaLink="false">http://supportforspecialneeds.com/?p=5984#comment-2369</guid>
		<description>[...] wrote an article a while back on Support for Special Needs about Scouting and Inclusiveness. It fits nicely with what is going on now because Quinnlin will be enjoying [...]</description>
		<content:encoded><![CDATA[<p>[...] wrote an article a while back on Support for Special Needs about Scouting and Inclusiveness. It fits nicely with what is going on now because Quinnlin will be enjoying [...]</p>
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		<title>Comment on Unfair Monsters by Debbie Arenson</title>
		<link>http://supportforspecialneeds.com/2012/02/20/unfair-monsters/comment-page-1/#comment-2368</link>
		<dc:creator>Debbie Arenson</dc:creator>
		<pubDate>Tue, 21 Feb 2012 14:27:02 +0000</pubDate>
		<guid isPermaLink="false">http://supportforspecialneeds.com/?p=7408#comment-2368</guid>
		<description>I think that is a wonderful idea, jennifer.  I remember our first time at Disney World in Orlando- I refused to get the &#039;red pass&#039; for my twins who are both physically and intellectually disabled.  I thought we can do it just the same way as the NT kids( I also have two NT kids).  

I didn&#039;t want the girls to feel badly or different, but the day was long, and we went back to the hotel early and defeated.  

The next day, I swallowed my pride, and got two red passes and went that route.  Our family split up: we went on the same rides but the twins and I could get in with assistance using the red pass (no overstimulating lines, long tiring waits) and the day was great.  

The staff was amazing, really willing to help, and we met some really nice families who also took the &quot;red pass&quot;

It was a tough lesson to learn, and it stinks that sometime the most basic thing can trigger a meltdown or even worse, a seizure in kids that aren&#039;t NT, but I think most places will modify for kids if we ask for help- the more of us that do, the better :)</description>
		<content:encoded><![CDATA[<p>I think that is a wonderful idea, jennifer.  I remember our first time at Disney World in Orlando- I refused to get the &#8216;red pass&#8217; for my twins who are both physically and intellectually disabled.  I thought we can do it just the same way as the NT kids( I also have two NT kids).  </p>
<p>I didn&#8217;t want the girls to feel badly or different, but the day was long, and we went back to the hotel early and defeated.  </p>
<p>The next day, I swallowed my pride, and got two red passes and went that route.  Our family split up: we went on the same rides but the twins and I could get in with assistance using the red pass (no overstimulating lines, long tiring waits) and the day was great.  </p>
<p>The staff was amazing, really willing to help, and we met some really nice families who also took the &#8220;red pass&#8221;</p>
<p>It was a tough lesson to learn, and it stinks that sometime the most basic thing can trigger a meltdown or even worse, a seizure in kids that aren&#8217;t NT, but I think most places will modify for kids if we ask for help- the more of us that do, the better <img src='http://supportforspecialneeds.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </p>
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		<title>Comment on Unfair Monsters by Coral B</title>
		<link>http://supportforspecialneeds.com/2012/02/20/unfair-monsters/comment-page-1/#comment-2366</link>
		<dc:creator>Coral B</dc:creator>
		<pubDate>Mon, 20 Feb 2012 23:48:53 +0000</pubDate>
		<guid isPermaLink="false">http://supportforspecialneeds.com/?p=7408#comment-2366</guid>
		<description>Every time someone or something tells us No, our instinct is to rebel.  It&#039;s even harder when it&#039;s something which we imagine is incredibly wonderful and &#039;should be ours by right.&#039;

My son isn&#039;t very active.  I learned long ago that if he was running around playing like all the other kids, he&#039;d get &#039;charged up&#039; and incapable of self-regulation - he couldn&#039;t stop running without an emotional crash.  It was sad to hear him tell his sister that he just can&#039;t run much at all, and to know that he might always be physically hindered because of this self-regulation issue.  But because we keep everything manageable, he doesn&#039;t have meltdowns, he doesn&#039;t need to crash first to stop.

Yes, Christmas is somewhat odd, because we have even slowed that down dramatically.  We fill it with days of quiet family tradition and well-spaced gifts, and there are no tears.  The anticipation is eased, the sheer overwhelming glut of gifts is tamed, and it&#039;s nice to have little things that bring our family close.  &quot;Nice&quot; can replace &quot;thrilling,&quot; &quot;good&quot; can replace &quot;exciting,&quot; and while it can be sad to think of muting even the good stuff, it is worth it.</description>
		<content:encoded><![CDATA[<p>Every time someone or something tells us No, our instinct is to rebel.  It&#8217;s even harder when it&#8217;s something which we imagine is incredibly wonderful and &#8216;should be ours by right.&#8217;</p>
<p>My son isn&#8217;t very active.  I learned long ago that if he was running around playing like all the other kids, he&#8217;d get &#8216;charged up&#8217; and incapable of self-regulation &#8211; he couldn&#8217;t stop running without an emotional crash.  It was sad to hear him tell his sister that he just can&#8217;t run much at all, and to know that he might always be physically hindered because of this self-regulation issue.  But because we keep everything manageable, he doesn&#8217;t have meltdowns, he doesn&#8217;t need to crash first to stop.</p>
<p>Yes, Christmas is somewhat odd, because we have even slowed that down dramatically.  We fill it with days of quiet family tradition and well-spaced gifts, and there are no tears.  The anticipation is eased, the sheer overwhelming glut of gifts is tamed, and it&#8217;s nice to have little things that bring our family close.  &#8220;Nice&#8221; can replace &#8220;thrilling,&#8221; &#8220;good&#8221; can replace &#8220;exciting,&#8221; and while it can be sad to think of muting even the good stuff, it is worth it.</p>
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		<title>Comment on Unfair Monsters by Elizabeth Aquino</title>
		<link>http://supportforspecialneeds.com/2012/02/20/unfair-monsters/comment-page-1/#comment-2365</link>
		<dc:creator>Elizabeth Aquino</dc:creator>
		<pubDate>Mon, 20 Feb 2012 18:22:38 +0000</pubDate>
		<guid isPermaLink="false">http://supportforspecialneeds.com/?p=7408#comment-2365</guid>
		<description>I&#039;m sorry to hear that Schuyler&#039;s joy at the American Girl store was dampened by her seizures. My own daughter has seizures nearly every time she eats because she loves to eat. It seems that stress -- both negative and positive -- is something that her brain just cannot handle. I do think there are ways to modify these stressors and imagine that Schuyler will learn how to do so. There&#039;s a great book by Adrienne Richard called &quot;A New Approach&quot; that might be helpful for all of you to read. 

Sending strength and courage to you all as you navigate onward --</description>
		<content:encoded><![CDATA[<p>I&#8217;m sorry to hear that Schuyler&#8217;s joy at the American Girl store was dampened by her seizures. My own daughter has seizures nearly every time she eats because she loves to eat. It seems that stress &#8212; both negative and positive &#8212; is something that her brain just cannot handle. I do think there are ways to modify these stressors and imagine that Schuyler will learn how to do so. There&#8217;s a great book by Adrienne Richard called &#8220;A New Approach&#8221; that might be helpful for all of you to read. </p>
<p>Sending strength and courage to you all as you navigate onward &#8211;</p>
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		<title>Comment on Unfair Monsters by Niksmom</title>
		<link>http://supportforspecialneeds.com/2012/02/20/unfair-monsters/comment-page-1/#comment-2364</link>
		<dc:creator>Niksmom</dc:creator>
		<pubDate>Mon, 20 Feb 2012 17:57:47 +0000</pubDate>
		<guid isPermaLink="false">http://supportforspecialneeds.com/?p=7408#comment-2364</guid>
		<description>I&#039;m so sorry Schuyler&#039;s seizures aren&#039;t showing any evidence of decreasing. No matter how many times it happens or how prepared you are for the possibility, nothing takes away the sting of watching your child struggle so. Sending very good thoughts to you all. (FWIW, we experienced something very similar just today; my son is enjoying a post-ictal nap as I write.)</description>
		<content:encoded><![CDATA[<p>I&#8217;m so sorry Schuyler&#8217;s seizures aren&#8217;t showing any evidence of decreasing. No matter how many times it happens or how prepared you are for the possibility, nothing takes away the sting of watching your child struggle so. Sending very good thoughts to you all. (FWIW, we experienced something very similar just today; my son is enjoying a post-ictal nap as I write.)</p>
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		<title>Comment on Unfair Monsters by jennifer bristow</title>
		<link>http://supportforspecialneeds.com/2012/02/20/unfair-monsters/comment-page-1/#comment-2363</link>
		<dc:creator>jennifer bristow</dc:creator>
		<pubDate>Mon, 20 Feb 2012 15:26:22 +0000</pubDate>
		<guid isPermaLink="false">http://supportforspecialneeds.com/?p=7408#comment-2363</guid>
		<description>If Schuyler would like to visit during a more quiet time or have a place to go to have a little down time, I would recommend emailing the store manager.  The folks in the NY store were really helpful and kind and so completely generous and caring when my daughter went.  It was part of her make a wish and she was a freshman in high school.  The store is crazy busy and overwhelming for the best of us. So being able to step out of the intense environment was nice...</description>
		<content:encoded><![CDATA[<p>If Schuyler would like to visit during a more quiet time or have a place to go to have a little down time, I would recommend emailing the store manager.  The folks in the NY store were really helpful and kind and so completely generous and caring when my daughter went.  It was part of her make a wish and she was a freshman in high school.  The store is crazy busy and overwhelming for the best of us. So being able to step out of the intense environment was nice&#8230;</p>
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