When parents look at the future for our kids with disabilities, there’s a lot that’s unknowable. For us, as I’ve said before, it’s the biggest unknowable in the world. We do everything we can to stack the
Last school year when our daughter Quinn was smack dab in the middle of middle school she started exhibiting a lot of anxiety. She’s come by the anxiety honestly because she’s been raised with a chronic, ongoing,
This isn’t going to be a long post. It’s not going to be filled with true wisdom or even my pretend wisdom. It’s not going to even have a story, because the narrative wouldn’t be mine but
Schuyler’s monster doesn’t have a proper birthday. Perhaps it could be said to share Schuyler’s. Even that doesn’t feel quite right, because it was there from very early on, probably the second trimester or so, a shadow
We visited some of our closest friends in San Antonio over the weekend. We celebrated the Fourth of July at the Alamo, which is about as much patriotism as a good Texan can reasonably hope to achieve.
It’s easy to conclude that raising a kid with special needs is hard. It’s hard work, certainly, but I’m not sure that’s exactly the same thing. It’s rewarding in a way that calling the whole experience “hard”
“And now here is my secret, a very simple secret: It is only with the heart that one can see rightly; what is essential is invisible to the eye.” ― Antoine de Saint-Exupéry, The Little Prince On