Oops. Just saw your number. I will give you a call. Thanks

Hello. I just saw this post. I am interested in finding out more about your school and possibly receiving some help. Thanks so much

“I feel great. He only got up four times last night!”

At my daughter’s birthday party last month, the mother of her friend who has a trach said “yes, she is allergic to peanut butter, but don’t worry too much – […]

The grapefruit juice is really weird; it actually effects a lot of different classes of drugs (including blood pressure meds sometimes used in PKD patients), so even if you’re not on immunosuppressants it’s […]

Walking in to my son’s out-of-state specialist appt in Richmond, my purse fell off of my son’s wheelchair onto the sidewalk. In a desperate attempt to locate it, my husband called my phone.

The couple that […]

Never thought I’d have to physically stop my son from repeatedly banging his head as hard as he can into a couch pillow or any other soft (thankfully) surface. My response is usually something like “stop banging […]

“He took his (prosthetic) eye out – hold his arms down so I can put it back in.”

Or:

“Thank heavens for his feeding tube – we’d never get these meds in him otherwise.”

Yeah. I can’t imagine you or any other parent would ever imagine that one!

“Well, it’s cheaper and faster to just order the walker ourselves than to let Medicaid pay for it, so I guess we’ll do that.”
“I can’t meet you because she has PT that day. Oh, no, she has speech on that day. […]

Yeah. Puke. I never thought I’d be comfortable with puke in my bare hands.

Her arm is on back order!

A lot of our special needs came from my son’s extreme malnutrition from when he was in an orphanage. One night at dinner, I put my head down and cried, “Oh God! If I have to clean puke up off the dinner table […]